Rachelle's life with TTP

Wow its August.. what a crappy summer, my tomatoes are wilting away, I didn't plant any flowers this summer, and we haven't even been camping... I guess everyone knows that's because i take care of Rachelle full time. She has been in and out of the hospital 21 times since she had Julius and that's just Genesys, she has also spent time at the U of M, and on rare occasions Owosso memorial.
At this point she has started having seizures, The first one was Monday the 27th My birthday, in my van on the way home from dialysis. next one Thursday night while taking a bath, then 2 back to back yesterday upon waking up. We keep sending her to the hospital, they keep sending her home...The CT scan no longer shows the bleed on her brain, or any evidence of it. Her blood work is o.k., hemo a bit low,, and WBC still low, platelets real good at this point. Dr Broder (nuero) doesnt seem real concerned jus doubled her anti seizure med Lamictal to 50 mg twice a day, and 3 times a day on dialysis days. When she was on Dilantn she didnt have any seizures at all, but they think thats what caused her Neutropenia (low WBC) Im not yet convenced of that.  I try my best to trust her Dr.s but since nobody knows what has happened to her or why it makes trust very difficult for me. My anxiety has become out of control, and I get very little help with her care. I watch her constantly, keep track of up to 30 pills a day to control B.P and seizures, and am at the hospital more than I am home, unfourtanitly my kids are feeling it. Im supposed to start school again in a month, but am very nervous about being gone from her. I have also been offered a job cooking starting early September and am very stressed as to how Im going to handle it all.  I pray so hard that we will find the right Dr. to help us get through this madness, and give us some anwsers, but I know we may never know why all this is happening to her.
Debbie