Why wear a ribbon?

"I wear the Blue Ribbon because I have juvenile rheumatoid arthritis." (JRAgirl2002)

MDJunction to me

"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

more testimonials

Pixie

Support groups

Stopping by to say hi

Jan 18 2012

Hello Dear Friends,

Again I apologize for my continued absence. I had 2 surgeries back to back...12/20 &12/21. I am still on 'home rest'. My holiday seasons was tough & painful...not only because of the surgeries but because I broke my right arm/hand (my dominate hand) which I may have to have surgery on. I'll find out Friday 1/20/12. Plus this was my first Christmas without my dad who passed away in my arms on Dec 29th 2010. The cancer in my lungs ( maligant lympthnoma) caused by the sarcoldosis is also now affecting my skin, my bones and muscles. There is no cure for Sarcoldosis which can affect ALL body organs. All they can do is address the symptoms. I want to add that I miss you all and appreciate all the hugs and prayers and private messages. Again I feel as if I am being neglectful to my group leader positions. If you feel you need to get a new group leader I would understand. Thanks again for your continued friendship. God bless and I wish all of you a happy and healthy new year!

Many Hugs,

Kathleen

Previous diary posts by Pixie1960:

Waiting
Today is the day
Still going
Here we go again!
6 more days

Counting down
Next
I'm just getting started but I feel as if it's alr...
Hanging In There
Hanging In There

Comments (4) Add Comment

written by Dit, January 19, 2012

Hi nice to see you posting with and update, i wish you well and my heart goes out to you you've been through soooo much, take care ((((Hugs))))

written by pinkapple, January 19, 2012

Hi Kat

Sorry that you've gone through a lot lately. You always been my inspiration, your fighting spirit, you warm words, you thoughts for people in MDJ. I was initially suspected Sarcoidosis, but later they found out it's something else. I hope for your fast recovery. Rest well. Hugs.

written by Pixie1960, January 27, 2012

Thank you Dit...you've always been there for me. I appreciate your continued friendship, prayers & support.

Hugs,
Kathleen

written by Pixie1960, January 27, 2012

Hello pinkapple,

Thank you for your kind words. I am so very happy that you do not have sarcoldosis...it can affect every organ of your body mine is in my skin, muscles and bones...it started out in my lungs and is the cause of this lymphoma) it is really painful and there is no cure. This along with my other health issues is just too much a lot of times. Thanks again though for your kind words.

Hugs,
Kathleen