Pixie

Hello friends.  I'm sorry I haven't been on in a while. I have been visiting my sister in PA for the past 3 weeks and just got back in. I have a lot of crap to deal with this month including a new chemo treatment...shots of mexotrexate followed up by Folic Acid to  supposedly help keep the side affects to a minimum.

I'm hoping that the beginning of February will be

Sorry I haven't been on in  several months but with the chemo treatments and 3 surgeries plus all my other chronic health issues time flew by but on most days I didn't know if I was comingor going...my short term memory continues to...shorten.  Just wanted to let all of you know that I've been thinking of you...remember I'm always here...if only in my mind, heart and soul

HELLO FRIENDS...JUST STARTED A NEW CHEMO TREATMENT SEVERAL WEEKS AGO. WE'RE HOPING THIS ONE WILL DO THE TRICK. I HAVE TO HAVE SURGERY THE END OF AUGUST AND MIGHT HAVE TO HAVE MY LEFT KNEE REPLACEDSOON IF THE SHOTS DON'T START WORKING. STARTED PT A MONTH OR SO AGO TO TRY AND KEEP MY BODY TONED AND RELAXED. STILL HAVING TO DEAL WITH ALL THE OTHER HEALTH CRAP.SOME OF MY FAMILY IS COMING DOWN

Hello friends! Well the cancer in my lungs is getting worse...it is going from my left lung into my right. So they have changed the chemo  and have increased the predisone ...again. The sarcoidosisthat caused the lymphfoma is not only in my lungs and skin...it is now in my musclesketal system (my muscle & bones)...They have put me on cymbalta...it helps with depression, fibromyalgia and m

Hello friends...I continue to fight all these chronic illnesses but just when I didn't think things could get worse...well they did. I had lost my dad about a year ago. I was just finishing up thegrieving process regarding my dad when I suddenly lost my mom on March 29th. My appetite sucks...suffering from lack of sleep. I just feel so confused and out-of-sorts. I still call her number and get

Hello friends. So sorry that it's been so long since my last entry. It has been a difficult past several months...my health is getting worse in a lot of ways plus I just lost my mother on March 29th. In a year and three months I have lost my dad and my mom. I am in so much pain...emotionally and physically. Even the Pain Management doctor says I need a stronger pain medicine that will last lon

Hello friends...hope 2012 is going well for all of you so far.  Like all of you I'm working 'it' the best I can. I have my good days, bad days and REALLY bad days but is going to be agood day today regardless of the pain and nausea and such because today is my birthday. I'm having a small 'party'...my family and a few really good friends.  All of you will be here

Dear friends, I have seen the pain management doctor and have some good (okay GREAT) pain medication. After A nap I've been trying to get on more. Thank you for your patience and continued prayers! Hugs, Kathleen

Hello Dear Friends,

Again I apologize for my continued absence. I had 2 surgeries back to back...12/20 &12/21. I am still on 'home rest'. My holiday seasons was tough & painful...not only because of the surgeries but because I broke my right arm/hand (my dominate hand) which I may have to have surgery on. I'll find out Friday 1/20/12. Plus this was my first Christmas w

Hello friends. I'm so sorry that I haven't been on in such a while. This new chemo med I take 2x's a day everyday and it makes me so sick and tired. I have a whole team of doctors and I'm just coming off a marathon. I'm waiting for test results and progress reports. I have found out that I have osteopenia, degenerative arthritis in my neck, hands, knees and ankeels. I have t

Hello dear friends!  Today is the day when I meet with my lung doctor again and he's suppose to set up my next lung scan. I hope he gets it set up next week and I hope the masses have shrunk. If the masses have shrunk then they keep me on the chemo and predisone, If there are no changes or it's worse he has told me that they would have to open up my chest which means a being on a resp

Hello friends. I've been on this new chemo med for  6 days now and I am still so sick. I don't get it. They tell you to take it easy, get plenty of  rest yet they schedule test aftertest after test back to back. Plus having to deal with all my other health issues, doctors etc. Got the results of my last blood work and there were several 'bad' things...especially the resul

Hello dear friends! I am now on my new chemo medications plus 2 more and I am as sick as a dog. Hopefully my body will get use to  . They took  11 tubes of blood and it just went on.from there. I have a ton of test to do beginning this Monday.And it jjust goes on. I see the lung doctor again on October 28th and he  will schedule the next lung scan. If nothing shrinks or whatever the

Hello friends,

6 more days and I'll find out what chemo med they will try me on next. I just hope and pray that I can tolerate whatever they give me this time.  I thank you, my specialfriends for your continued encouragement and support. Your friendship and especially your prayers mean so much. Hugs, Kathleen

 

Hello dear friends. Well 13 more days I'll  go back to the doctors  and find out what chemo medication (pills/shots etc) they'll try on me next. I just hope and pray that it's somethingthat my body can/will tolerate so I can take it until this sickness inside my lungs is killed. Thanks once again for your continued friendship & prayers. Hugs, Kathleen

Well my friends I am finally healed up from the toxic reaction I had to the first chemo medication. I get a little break and then it's back to the doctors on September 29th to see what chemo drugthey are going to try next whether it be  pills,  shots or whatever. The thing is the doctors cannot promise me that I won't have a toxic to the next drug....like everything else, it&#

Hello dear friends. Sorry I hadn't been on on  too much lately  but I was in the medical center from Tuesday to Friday, only to end back up in Unicoi hospital from Sunday morning untillate this afternoon. I'm not doing too well my friends. It gets harder and harder with each passing day to hide the illnesses...the pain...but it's the least I can do for those who love me...

Hello dear friends. Well like I said they took me off the chemo drugs for now. They gave me medications for the ulcers, skin openings, pain and so on. I see the Skin cancer doctor again on the 9th of Sept. Everything is healing it's just taking a while since I have diabetes. I see the cancer & lung doctor again on the 29th of Sept to see what Chemo medication I will try next. My doctor tol

Hello dear friends. Well like I said they took me off the chemo drugs for now. They gave me medications for the ulcers, skin openings, pain and so on. I see the Skin cancer doctor again on the 9th of Sept. Everything is healing it's just taking a while since I have diabetes. I see the cancer & lung doctor again on the 29th of Sept to see what Chemo medication I will try next. My doctor tol

To my special Friends...I just want to take this moment to thank you for your continued friendship, support, encouragement, patience, and of course all those hugs! during this difficult time.  I just hope that I am helping you in some small  way as well!   Love & prayers! Hugs Kathleen                          

Hello dear friends...I didn't know if I told yous or not but I was diagnosed with sleep apena on July 5th! I have to sleep with a CPAP machine and a mask. I got to pick out the mask so I got theleast restrictive one. The machine is pretty cool too. Instead of cold air, it warms up the air if you want to use it when it's cold. My quality of sleep has inproved by 100%...if only the steroi

Hello dear friends. They have stopped my chemo meds for now. I guess I just couldn't handle them. It started with ulcers in my mouth...on the inside of my checks, tongue, lips, throat and so on. NowI have open ulcers on my abdomen and such and with me being diabetic there is always concern for infections. Right now, besides my 'regular' meds all I'm on is the steroids. I see the ca

Well it goes on and on. I continue the battle but the side affects from the chemo and  especially the steroid meds are getting the best of me. My diet already sucks because of my IBS-M but now I have ulcers all in my mouth and throat...even on my tongue and lips. The doctor gave me special mouth wash and told me to put oral jell on them but it doesn't work and they hurt. Unfortunately I n

Actually it came this past Friday...my CPAP machine. I'm still adjusting to it. My body wants to fight it and get it off but part of me really likes it because it helps me sleep so well. I'm stillnot sleeping all night like I should but I'm sleeping more and the quality of my sleep is better.  Just after a few days I can tell a difference in my energy level  and such. I thoug

Well I did a sleep study last Tuesday, July 5th and was diagnosis ed with sleep apnea.  I had to go back last night to do the CPAC thing. I should have mine by this weekend. There are billions ofother people in this world...pick on someone else for a change. I say enough already! LOL! Hope everyone is doing well. Hugs, Kathleen

As you will discover in my last post I didn't make it to August 2nd and in a way I am so very glad. God must have been looking out for me because according to the pulmonary doctors I should have neverbeen discharged from the local hospital after that first abnormal lung scan I should have been transferred to the medical center in Johnson City. With  blinded blessings  I didn't ha

Hello friends...I really need your support and friendship now. I have been hospitalized several more times since my last post. Most recently discharged on June 16th after a 6 day 5 night stay at the medicalcenter in Johnson City, TN.  I have been diagnosised with SARCOLDOSIS after another lung scan  found numerous nodules (some already forming masses)  several of which have the pote

Hello friends. Just got back out of the hospital again. Found out that that the lymph nodes in my lungs are swollen...they also found a mass in my lungs as well as some other 'stuff'. Now I haveto see a lung specialist. I'll need to be seen for about 5 hours straight on my first visit so the soonest they could get me in is August 2nd....3 months to wonder if I have lung cancer or not.

Hello friends. I had my oral surgery on Tuesday May 10th. My whole left jaw was severely swollen inside and out. Started running a high fever (103)  and was having problems breathing so I was in the hospital again. UGH! It always seems to be something ya know? Anyway, please keep me in your thoughts and prayers. Hugs, Kathleen

Hello my friends. I am having oral surgery tomorrow(Tuesday, May 10th). Because of the nausea I suffer from that keeps me vomiting all the time lately caused by my IBS the oral surgeon decided that heis not going to put me asleep after talking to my doctor...so...I will not be a happy camper tomorrow.Please keep me in your thoughts and prayers. Thanks to all of you. Hugs, Kathleen

Just want to wish all the moms a very happy Mother's Day! Hugs, Kathleen

Hello friends. just got out of the hospital again. Have a colon infection. My IBS has been so bad...unable to keep food down on liquids right now. Even my pain medicine, my anti-nausea medicine, my antibiotics...all liquid and the suppositories are a pain in the butt. It's just been up & down, up & down plus I have to go have some oral surgery done next week...I'm a mess so please

Hello...still very ill but getting better slowly but surely. I can't help but feel that I'm letting yous down my friends but please know that I am trying to get on as much as I can right now. It's not just my health but...well...my heart is aching. My mom finally decided she was ready to go through my dad's things after four months since his passing and it's been emotionally di

Hello friends. As many of you know I've been really really sick. In and out of the hospitals...seeing all kinds of specialist. For the longest time I haven't been able to eat or keep my medicationsdown. It either comes up or rushes out. I've been having to go to the hospital twice a week for fluids and anti-nausea medications so I can keep some food and medication down and it seems to

I finally get to see the surgeon on Monday 21st at 2:10pm. He said he should have all my medical records and have an ideal of what he wants to do then we';; discuss what he's going to do. I amso ready to get rid of this swollen abdomen....it's been like this  since April of last year. I've been on so many pills, diets, doctor after doctor...I hope the 21st will be the day that

Hello friends. I  want to once again thank all of you for all the kind words, the prayers and encouragement. My heart is full. Love & prayers! Hugs, Kathleen

Dear friends, I just want to say thank you for your prayers & support during this difficult time. It's almost been 3 weeks since my daddy passed yet it still feels like a dream.  I'm glad that he is in a warm & wonderful place but I miss him so very much. Sometimes it really physically hurts. Thank God I'm a christian...I find peace & comfort in knowing that I'll s

Hello friends. I  am so sorry for my absence but my dad had become seriously ill. Me & my mom were caring for him at home but he  was so sick he was placed in the IC UNIT at the local hospital. He was only there two days when he passed away on Dec 29th. Things have been hectic but hopefully things will calm down soon. Thank you for your patience and understanding. I hope that this is

Hello friends. Just wanted to let you know that my dad came home today.  He still has nursing care and such but when my family goes back home in PA & MD it will be just me & my mom again taking care of him. Please continue to pray for us that we will continue to have the strength and patience to give him the care he needs. Thanks so much! Hugs, Kathleen

Hello friends...My dad has been in and out of the hospital & nursing home for about 4 months ...my mom got really ticked off of the lack of care (or no care) so she decided to bring my dad home some & my mom can care for him. He needs care 24/7...he is full assist...my mom is up in age and as you know I have several health issues of my own...parkinson disease, IBS, diabetes and I can go on

Still trying to get my medications in order and such but still hanging on. It's difficult when you have so many medications as a result of many different  medical issues. I guess it will workit's way out as always. Wish me luck!

Hello friends. I am finally starting to feel better. I still have bad days  but for the most part now it's good days. I have been so sick over the past few months that I haven't done muchof any thing! It's a little hard getting back on track. but I'm off to a good start . Anyway, thank you four prayers and support! Hugs, Kathleen

Hello friends. I was asked t obe a co-group leader for theIirritable Bowel Syndrome support group. I was truly surprised. I will be working with Violett who  is such an inspiration to me ever sinceI joined MDJ. I'm sure I'll learn a lot. Wish me the best! Hugs, Kathleen

While I still have nausea and abdominal tenderness, swelling and pain...but other than that (and my other health issues the parkinsons, diabetes etc) I've been having some really okay days. Thank you my friends, for your concern, support, friendship and continuous prayers! Hugs, Kathleen

I went to see the new gastro doctor yesterday. he didn't want to do or change much until he gets my medical records from both hospitals and doctors. He told me to stay on the IBS , anti-nausea and pain meds that I'm on for now. Check me out..sia the bloating probably won't go down until this flare -up is under control. He gave me  alist of foods and drinks to avoid and  a

I haven't had a freezing episode in the past couple of months so I finally get to drive again! It feels so good to be able to get up and go on my own! Thank you to all my friends here for your prayers, encouragement and support! Many hugs to you! Pixie1960

I saw my neurologist this morning..after 6 months of bumming rides I can drive again!!!

Well, tomorrow is the big day...I go to the neurologist! I haven't had any freezing episodes since my last visit so I'm really really hoping I'll get to drive again. Wish me luck! Hugs, Kathleen

Hello my friends. I hope all of you have a happy & safe holiday weekend! I go to the neurologist on Wednesday June 2nd..haven't had any more freezing episodes so hopefully he'll let me startdriving again! Wish me luck! Hugs, Kathleen

Was rushed to the hospital early Saturday morning...I was in so much pain and so sick...they did all kinds of test including blood work...come to find out I have IBS...Irritable Bowel Syndrome. Got homeabout two hours ago. They put me on Levbid, promethazine for nauesa, loratab for pain and told me that by trail and error I have to find out what foods cause a flare up like this past one. They said

A couple of weeks ago I woke up with a swollen gut...it looks like I'm 7 months pregnant in the wrong place. They have done x-rays, ultrasounds, cat-scans, colonoscopy, etc and I go for an Upper GIthis coming Monday. It is so uncomfortable, it pulls on my back, hurts after I eat is tender to the touch...it's a mess. I just hope on Monday the upper GI will tell the doctor something ...so th

Go to the neurologist June 2nd...Haven't had any freezing episodes since last visit soI might get to drive again!

Went to the neurologist yesterday...it was the same ole same ole...if I have no more freezing episodes between yesterday's visit and my next visit June 2nd I'll be able to drive. I'm notgoing to hold my breath!

Hi everyone...I go to the neurologist this Tuesday afternoon. I'm hoping to be able to drive again...not holding my breath...said I can't drive until I have 0 freezing episodes  inbetweenappointments! I had 1 on Palm Sunday. Still gonna keep my fingers crossed. The medicine is starting to work because I'm having less and less episodes...so...who knows...

 

I go back to the neurologist on the 27th. I know I had a really bad freezing episode on the church van on palm Sunday but I am still hoping he'll let me start driving again...even though I doubt it, I still have a little hope. I guess I'll find out on the 27th.

Last time I went to the neurologist on March 27th  I had my stelavo increased in the dosage and the number of times I take it each day. He also changed my fibro meds. He told me that if I have nomore freezing episodes and can tolerate the meds that he would let me start driving again.  I went to church last night and had a freezing episode while getting in the van and fell backwards. If

Went to the neurologist today. He imcreased my stalevo to twice a day and took me off the neuroton and put me on Lyrica twice a day. He said if I have no more freezing episodes and tolerate the medicationshe would let me start driving again on April 27th...that's when my next appointment is. I'm keeping my fingers crossed!

I go back to the neurologist this Thursday the 25th...hopefully he'll let me start driving again. Haven't had any freezing episodes since January!

My dad got out of the hospital yesterday! Everything is going well right now except for the fibro pain. Gonna ask my neurologist for something else when I see him on the 25th.

Well it's been running, running and running lately...my dad is in the hospital, the neurnton doesn't seem to be helping much with the fibro pain so when I see the neurologist on the 25th I'm going to ask to try something else. All the other meds seem to be working..I haven't had a freezing episodes since early January...so hopefully I'll get to drive again! Well all the snow

When I was at my neurologist on Jan 26th he changed my meds...D/C the seniment and put me on Stalevo instead. I haven't had any more freezing episodes since then...I'm hoping I won't becauseI go back to my neurologist on March 25th and hopefully he'll let me drive again since the symadine & the stalevo seem to be working.

It's snowing again...we got 9 inches of snow yesterday/last night and we're suppose to get about 5 more inches today befpre it stops. it's cold and damp and my fibro is really hurting me. It's days like this when I wish I would have accepted my doctor's offer of pain medication but I already take so much medication and I really don't want to get hook on anything so I'll

 The psyc medication change has went well. No manic episodes so far and the Lexapro and ambienCR seem to be working well. Even though I only get between 5-5&1/2 hours of sleep  I wake upfeeling okay. Also the increase in the neuronton seems to be helping with the fibromyalgia pain for the most part and  I've only had 2 more freezing episodes since I last saw my neurologist (

Well  it's snowing again. We've got about 9 inches of snow over the past few days and a new snow storm is coming our way tomorrow afternoon into Saturday.  I did my sleep study Monday night. It wasn't so bad. I'll get the results on Jan. 26th when I see my neurologist. So far so good with the medication changes but I've only been sleeping about 4 & 1/2 hours a

I slept pretty well last night considering I kept waking up  So far so good with psyc medication change...feeling a little shaky but okay. The increase in the neuronton seems to be working.  I'm not sure if the symadine that the neurologist gave me for the freezing episodes is working or not...had 2 episodes since I last saw him Dec. 8th., both in December, none so far in January.&nb

Well today is my first day as group leader for the Diabetes II support group. There isn't much activity today hopefully it will pick up after the holidays are over with.

Roy PM me and  asked me to write a paragraph about myself  to put under the leaders section of the Diabetes forum support group. I tried to keep it as short and simple as possible. I hope it's  okay. Just waiting to start...I should be set up to go in a few days &  I'm really looking forward to it! Last night was uneventfull...me & my son just hung out here at h

I felt okay today. I went through a major change in medications yesterday....we discontinued my Rozerem, Remron, and abilify...we also cut my seroquel in half.  We did this because my neurologistsaid that they were interfering with my parkinsons medications. We added Lexapro and ambien...so we,ll see how it goes! Roy PM me and asked me to be group leader for the Diabetes II support group. I w

Couldn't sleep...the pain has been bad...got up about 4:30am...went to the fibromyalgia group site and answered some posts...it's now9:18am!!! Wow!!! Had been meaning to get to my other supportgroups besides the parkinsons one and answer some post. I did it...pain and all...hand & wrist worked well...not even that sore...well it's Christmas eve...gotta go check the PO Box...that

I miss Steve this morning, my chat buddy. He ison holiday with his wife & family for a few days. gotta go with my mom to take my dad to the doctors again to day. I think I'm I pretty much readyfor Christmas even though I've have 'little' bout of confusion over these past few days. I've been hurting with the fibro...didn't sleep well last night. The snow is pretty much g

Gosh, it's been snowing here in Erwin since Friday afternoon...we got almost two feet. Even church was canceled today. And it's suppose to snow again this Thursday & Friday. I wouldn'tmind a white Christmas for a change! Feeling okay today inside my spirit but the pain in my muscles (fibromyaalgia) really hurts...the Neuronton the neurologist gave me takes a little bit of the nip o

This is the first time in a week or so that I'm feeling pretty good. I still have the pain from the fibromyalgia and there is a lot of crap going on right now, but I feel calm inside my soul and thatis truly a blessing! I now have 25 friends between the various support groups I'm in and each one of them has brought me comfort & support...my biggest concern is my parkinsons disease so I

Oh Lord what a difficult, painful  day in just about EVERY WAY! I'm so very glad it's almost over!

Ever since I saw my neurologist on Dec 8th and was was told that I have fibromyalgia and that I can't drive for the next two months again due to my 'freezing' episodes courtesy of my parkinsons, I've been feeling down and in a 'slump' these past several days. I got online & checked out the support group discussions for fibromyalgia and parkinsons but as hard as I tried

I saw my neurologist today...indeed I have fibromyalgia. He put me on neurontin which is generally used for seizures but is also used for nerve pain...hope it works...at least take the edge off the pain. I have been having freezing episodes lately...he gave me symadine for that...and told me that for now I can't drive. I see him again on Feb. 9th and he said if the medication works and I have

Well I finally get to see my neurologist today and will find out for sure if I have fibromyalgia. To be honest I'm kinda scared. All I need is 1 more medical condition to worry about...1 more pillto take...stiil I'll be relieved if he can give me an answer and do something about this constant, all over achy pain...so we'll hope for that.

I slept a little better last night. Used an electric blanket. Still feeling the pain but not as bad today.Sundays are my days...go to church then lay around watching football all afternoon! Still can't wait to see my neurologist this Tuesday Dec. 8th. Have a whole list of things to discuss...hopefully he'll have some answers for me.

Feeling kinda lonely tonight. Still having that constant, all over pain.I have 20 friends on this site  but none of them are online right now. My only child Jacob went to spend the nights withhis friends. All my friends are busy...so it's just me. They too took off my judge shows and my WWE wrestling off for a high school football game. I seem a little 'thrown off' my schedule

Feeling tired & hurting today...it's cold & rainey. I have been having this burning, aching pain in my muscles all over for the last several months...it's only getting worse. A friend of mine says it sounds like fibromyalgia...as if I don't have enough medical issues already...as my son says, it's probably just another pill for me. Ugh!!! I can't wait to see my neurolog

Feeling a bit tired today...probably from all the excitement & running from yesterday. Left a poem on the discussion forum last night to share with everyone. Hope at least 1 person finds it as upliftingas I do. Got three new friends! Will spend some time putting up the wreath & getting out my little Christmas Tree and then just lounge around the rest of the day.

I'm having a good day today. Woke up feeling good. Steve (from this site) and I have been chatting on yahoo messenger. We chatted this morning and I look forward to chatting with him again soon. Noneof my friends are on line at this time but I look forward to chatting with them sometime soon. But like I said woke up feeling good...so far today my mind, body & spirit are in line with one an

I now have 14 friends...but Songfellow (Steve) has been most helpful & supportive. I look forward to chatting with him again soon.

I now have 2 friends on this site Nicole & Steve...I got to chat briefly with Steve and looking forward to sharing with others on this site!

I had2 responses to my discussion note titled hello...Nicole & Steve both welcome me to the site..I asked them both to add me as a friend! I look forward to chatting with them!

I joined a few support groups today...the one I really want to get involved with was the parkinsons disease support group. It was kind of disappointing because no one else in that group was on line totalk with.