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People Helping People - roy's Diary
View Profile I hope to share with you all the meaningful events in MDJunction, new stuff we release and the overall adventures of a regular guy who believes in People Helping People.



Mar 21
2008

We Need Your Help

A lot of people ask me if/how they can help MDJunction grow and help more people.

Well… we do need your help!

Bellow is a small list of things I thoughtof it’s under 3 categories. On site, other places and people you know.I don’t expect everyone to start fulltime work on this, but when you do have some spare time please give this a thought ;-)

 

On Site

This is easy…

Be nice to everyone, join discussions and let people know your thoughts, hug people – everyone likes to be hugged, if you feel you can become a group leader – let us know, review your doctors (add them if no one did before), Invite your caretaker to help the group, write a diary (and comment others) and write articles related to your condition.

I know ‘Article’ is a big word, but what we really need is your opinion and point of view. You can write about your personal experiences, you can write some info about your condition (symptoms, treatments, and famous people), you can research a bit about clinics, associations, offline support groups – anything that might benefit others. That’s why we’re all here.

 

Other Places

The most important thing is Word-Of-Mouth. Tell people about MDJunction, about your experiences and what you gain. The more people know the better.

If you have a page on MySpace, FaceBook, friendster etc’ please link to your support group from there, make it easy for people to find it. If you write a blog – Please please please write about us ;-).

Many of our members participate in all sorts of forums. If you think it’s relevant, tell people in those forums about MDJunction. You can even link to it from your email signature (One of our members sent me an email and his signature said ‘I believe in People Helping People’. It was a link to MDJunction !!).

The help is not limited to the internet. You can tell your doctor, at the clinic or at a support group.

 

People you know (or can reach).

Fortunately (or not) humans still rule the earth. We all know people. They know people. And many of us know how to get to people…

All the people I describe bellow can be pros on a national level, but it’s just as good if they do it as amateurs in the basement.

So - Do you know?

Reporters, Bloggers, people who work in/with Organizations & Associations, website owners, Land base support group leaders and members ????? If you do, please tell them about MDJunction. they can help a lot in spreading the word around.

 

Thanks everyone!

roy

 

 

and a new pic…

DSC_0031.JPG





Comments (27)Add Comment
AWE!!!!!
written by jaime1978, March 21, 2008
First of all Roy, what an increadibly beautiful baby! Just want to give her a hug....I so am going thru that "i want a baby so bad phase" Of course, physically I can't do it, and of course caring for another would be just insane right now. But boy oh boy, I love to get my hands on all my friends babies and hold them!

Second, great entry. have you noticed how much our little lyme group has grown?! I'm so proud of that!!!! I will add it to my myspace page, never thought about that. I was just telling my LLMD about us yesterday too, he was thrilled I was here doing what i do! I'm always talking about us! Some site get all up in arms if you mention another site, just ridiculous, if you're in the business of helping people, then help people. I don't mind people mentioning other sites if it will help them, because I know they are also mentioning our site. I can't tell you how many people have pmd me telling me they are so happy they found a "home" finally. We are a rare site I think. Very low drama, and I'm so proud of that. I just won't tollerate it. And I think our "family" appreciates it .... yes disagreements are typical in a family, but rudeness, not tolerated. I will do what I can to find us more members smilies/smiley.gif
how cute
written by marsha6751, March 22, 2008
awww how cute such beauty in the eyes love.
i have been doing some article postings and etc in the self mutilation forum and everyone is welcome to come in and have a look we dont bite ...lol.
great idea's and i think this site rocks!!!!

Big hugs
Marsha6751
Hi roy
written by spectrummum, March 23, 2008
let me know what else I can do to help
shell
Happy Easter
written by Julie4848, March 23, 2008
First, That baby is so cute, love the smile, warms the heart...

Great post...

Sorry I have not been on a lot, Mom has been really sick and the dog had knee surgery (NEVER AGAIN)...lol

I agree with one thing...We need to keep this board, nice and friendly...Not everyone can agree with each other, but getting mean and nasty to me is childs play...

Ok, time to go back out and shovel (Yes still doing that)...lol

Julie
written by PamelaG, March 23, 2008
LOVE the pic!!

I've written about and stumbled mdjunction. Does anyone else Stumble? www.stumble.com It's a really lively place, and there is a Fibro group there. Not much goes on, the Junction is So much better for this. But it gets the word out to lots of people. I talk about it a LOT on the National Garden Club. I've had people from both tell me how better they felt (Like I did!!) coming here. It's incredible how much you learn here, how awesome the people are, etc. And if you just need to vent and get something off your chest, you can. It's great! I blogged in my Stumble about it, but I didn't in my reg. blog yet (been so busy fatigue-ing {ugh} and sleeping so much). Will get back on the ball. I know a reporter here in town. She's helped me with several stories in the past. I will send her a note and talk to her about a story on MDJunction!

Thanks for such a great place Roy!
Happy Easter
written by norma, March 23, 2008
I think I am going to go back and give a hug to a few people a day that have joined...and have not posted in a while...just a "HI how are you doing...whats new with you thing". Kind of a membership retention thing??? May get some more people posting that may have forgotten...they have joined.

Baby is beautiful...and happy...that's what we all want Happy Healthy kids....and a world to grow up in that will let them become all they can be...I think this forum is helping to do that...bless you sugar, for making it happen. Norma
Wow a cute baby!
written by mamanordy, March 23, 2008
Roy I will send the word out to everyone I know!!!
Thank you all !
written by roy, March 24, 2008
your comments are great!
PamelaG - did you mean www.stumbleupon.com or am i missing something?
written by bgcmom, March 31, 2008
Roy,
I added the link to the NDPH site on our caringbridge web-site, as an information link for people who don't understand what all we go through!!!
I have also informed our DOC's about the site! They took the info. and are spreading the word!!! smilies/grin.gif
I will also post a link to the site,(particularly the Adoption Forum and NDPH forums that I'm a member of) on my Facebook site!
I also will link the adoption forum on TxCare web-site! (a search support site for Texas!)

BEAUTIFUL BABY!!!! I KNOW you are PROUD!!! Squeeze those baby cheeks for me!!!
(((hugs)))
Ronda
that baby
written by sallie, April 07, 2008
Oh, my...what an absolutely adorable little person that is. I assume it is your son? Wow. Just too cute for words. smilies/smiley.gif
WONDERFUL SITE
written by sclady, April 07, 2008
I DONT NO WHAT TO SAY OTHER THAN THANK YOU SO MUCH FOR THIS SITE THSE PEOPEL HAVE REALLY HELPED ME A LOT FACING CANCER IN MY 26 YR OLD DAUGHTER REST ASSURED I TELL EVERYONE ABOUT THIS SIT I HAVE PUT THE SITE ON THE BOARD AT THE CANCER CENTER WHERE MY DAUGHTER GOES MANY HUGS TO EACH AND VERY ONE OF YOU AND THANK YOU SO VERY MUCH
New to cmv
written by mickey96, April 13, 2008
I been through every thing in my mind to figure out what went wrong with my daughter. I have come to except it now and deal with it!!!It took 4 yrss. does your son have cmv? and was there any side effects
Not sure how this site works.
written by Barbkubacki, April 14, 2008
Can someone help me with this? I signed up a while ago but haven't been getting on until now. What are the dos and the don'ts?
Barbara
your baby is cute !!
written by mickey96, April 14, 2008
how old is he?I talked with some people onyour web support group
they was nice to me . my problem is i have three kids all are disabled and alot of dx. I hope i can be supportive as they are to me i met two people a they asked me to be there friend smilies/smiley.gif
mickey96
MDJunction link on my website
written by LupieToons, April 22, 2008
Hey, Roy,

First of all...your baby is such a doll! Must look like Mom smilies/wink.gif

I have a link for MDJunction on my website at www.myspace.com/cammiegal Is there a pix/logo you'd like me to use with the link? I didn't want to take THAT liberty without this site's permission.

Geez, your baby is precious!

How's that Excedrin working?

LupieToons (Lynne)
Congratulations! your'e baby is so beautifull.
written by anaalcantar, April 30, 2008
My oldest one daugther's gonna have a baby girl.
I would like a healthy baby like you.
kisses and a huge hug.
Ana, good luck!
hippiechick
written by hippiechick, May 09, 2008
Wow, what a beautiful baby. I have a beautiful grandson "Finn" whose birthday is bext weekend , May 17th. Right now, I have Cellulitis and may not be able to visit him. I am also Bipolar, have Lupus, severe arthritis, Osteoporosus, deep depression and anxiety and Fibromyalgia.....anyone else have Cellulitus????? Did I spell that right.......Thanks for any help.
Ready to help!!!!
written by cindylee, July 05, 2008
Hi Roy..
I just joined the group this morning....and being a lifecoach, who is focused on helping others online with MG or other chronic illnesses.....your request for help got my attention.
You might want to read my blog....it may help you see the things that I do, the things I'm focused on and how my experience could help others. I may have just been diagnosed with MG...but I've been living with it for almost 20 years now.
Please let me know how I can help. I'm always available online for those in distress....to encourage....to empower....to motivate.....and to be a witness to someone elses pain.

I'm at your disposal.

Thanks...
Cindy Nunery(cindylee)
Here is my blog Roy!!!
written by cindylee, July 05, 2008
Forgot to give you my blogsite.
www.autoimmune-cindylee.blogspot.com
How beautiful!!
written by Karen08, July 09, 2008
Hello Roy ... just joined the site yesterday and the other posters have been friendly. Thanks for a great site and one that is easy to navigate! smilies/smiley.gif

Your little girl is a doll! They are definitely precious and they are truly a gift from God. She definitely has alot of fans here on MDJ! Give her a hug and kiss from all of us!!
Lilli
written by Lilli, August 06, 2008
I just had a Hysterectomy about a mouth ago. I feel fat. I feel like I want to have sex. Want to do.
written by kimminentdanger, August 31, 2008
I've just started spending some time in the "Yahoo Answers" Mental Health forum. I tell each and every single person I come in contact with to visit MD Junction; I'm your biggest cheerleader & I'll never stop spreading the word... smilies/grin.gif smilies/wink.gif
written by misshummingbird, September 03, 2008
Dear Roy,
I was awestruck when I happened upon her picture. I stared for a long time. How precious, you are blessed indeed!!( and so is she! ) Roy, I may can do a little here, I mainly do all I can to support, comfort and entertain ppl in my groups smilies/wink.gif...I hope it's enough. I have brought 3 ppl to MDJUNCTION, but that's about it. I love the Fibromyalgia best,,but I belong in a loooong
list of groups,,,,I LOVE IT!!
written by kira, September 10, 2008
lovely baby im new n id love to help exspecialy in depression/i was a very suicadal teen n im hoping my past can help another child r teen/but id be willing to help anyone depressed n needs to talk even if its to vent just message me n i'll get back to them as soon as i can
written by maddie34, September 19, 2008
what a cutiesmilies/smiley.gif
I'm new to the group. I have a 4 yr old boy with Down's syndrome. I,ve also had depression for several years but it's under control now. I also want to let everyone reading this know that I am a great listener and would love to talk with any of you if you'd like. I don't judge I'm just somebody who will listen. Nice to be in the group! Madlyn smilies/smiley.gif
written by rojomi, October 15, 2008
Well, I voted. My conscious decisions were made weeks ago, but I finalized them. No, I will not share them other than to say I voted the only possible way-change. YES-I went in w/open mind, but the choice was clear. GObama-down McLiar. We done had enough. Of all their lies, cheats, dirty tricks etc.-so, hope it works. If not, we have only ourselves to blame. Nice weather here, but cold, snow soon but we get out everyday, to do whatever. Take trip back to DC, VA,DE soon. Me want to see some real family, plus we gotta get outta here while we can. Molly b good will be kenneled-she b couch potato, but good girl. So she get best care at Town and Country, they have it all. Unsure which family members to contact. They done nothing for me lately, (Janet Jackson), but we shall see. I just want to go back for 1 last HURRAH! Then wipe my dirty hands clean of the whole mess. WOULD love to be in DC on Nov.5 to herald the new order. All. Robert
written by mushy, October 22, 2008
Roy...yes..definately beautiful...there is something so calming about innocence. I am an artist, of sorts, and have been thinking of drawing up a poster telling everyone who reads it about MDJunction. I live in a small town in Alaska, and a lot of the stores, curches, etc. all have message boards. Would it be o.k. to post some thing on a few of these so that I can at least tell my little world about the wonderful things you are doing for so many people. Thank you for doing this, until I found this site...completely by accident, I wasn't quite sure what I was going to do...thanks to you and a few friends here,I'm still around! God bless Mushy

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