Our glorious advocates |
May 09 2010 |
Hi everyone ;-)
It’s been a long long time since I last updated my diary. Too long, I guess I’m nearly failing :?
In about 10 days we will have some very excitingnews and updates (including the #1 asked for feature in MDJ history ;-) ) but before that I want to share with you some of the great stuff members of MDJunction have been doing to advocate and spread the word about their groups.
The list is beautiful and I have to admit that some of the ideas just blew me away. I hope I didn’t forget anyone (and if I did pls let me know) – so here we go:
• Many of our advocates (like littlebopeep1, kali31 and shortstuff116) have been active on facebook linking to MDJunction, sharing with their friends what MDJunction is and posting on different groups.
• YorkieLove and anamore made up flyers which they have posted in their doctor's office, grocery stores and local coffee houses (you can also download our flyer in the Spread the Word page)
• cappymuir, libit, wildsky & Lookinglass made it a habit to talk to everyone they meet about MDJunction
• rsdcrpsfire uses twitter and MySpace to invite people to join our community
• sofiadragon1979 and many more told her doctor, therapist and offline groups about MDJunction and encouraged them to tell others of it too!
• HiddenButterfly & booklady14 printed business cards with the MDJunction URL and short description, they are leaving those cards everywhere - at libraries, laundry mats and community billboards.
• members who have personal blogs (uppitywoman & naddya819) have been writing posts and links about us
• fluffyluggage & mitzigirl spread the word by sharing MDJ in all their social networking sites.
• manxbailey added a signature to his email account which includes a link to MDJunction! (that's actually an easy thing to do with great results)
• Wiggy & blondee8257 sent an email to all their contact list telling what MDJunction is and how it can help people they know
and my friends lumpybumpy, keeter and grandmasylvia (as seen bellow) who printed their own MDJunction T-shirts and wore them at the Fat Disorders Research Society 2nd annual Midwest conference !!!
so - if you haven’t joined the MDJ advocates program, pls do!
And a BIG BIG thanks to all of you. It is heartwarming ;-)
roy
2010 is almost here…
New support group features and MDJ Advocates
MDJ Insider - Summer Edition
MDJunction updates
Is it December already???
New support group features and MDJ Advocates
MDJ Insider - Summer Edition
MDJunction updates
Is it December already???
Here comes the new MDJunction.com
Spread the Word
Community Updates
We Need Your Help
Group Lounge – Off topic discussions
Spread the Word
Community Updates
We Need Your Help
Group Lounge – Off topic discussions
Comments (44)
Awesome!! Great people = great ideas!!
How totally awesome is that.........Great ideas.
Really cool, great job everyone!
Great ideas, thank you!
These are some great ideas! I have printed your flyers in the past. I handed them out to my practioners. I tell everyone I meet about this space. I like the idea of business cards. So glad you are here! 
)
) 
I have been given the site out to my contacts on facebook, and to friends who are not, some of the ideas that have been listed are great and I will use them. I will certanly give the link to the medical centre I belong to, I know they will be interested, don't know why I did not think of that. 
Thanks, Roy. You are awesome. I have told many other people I know who suffer from FMS about mdjunction. The flyer and business card ideas are great. I will print some out to post at my gym and at my dr. office and to have on hand. 
hi roy,
never signed up for the advocacy thing; guess i didn't notice it!
DANCINGWINDE, lyme board, created her own 2010 LYME FLYER & DRS. FLYER, which i spend many hours assisting & adding more accurate info.
dancingwinde gave the main WWW.MDJUNCTION.COM site on the bottom of her flyers, and folks can search for LYME FLYER that way.
MAY IS LYME AWARENESS MONTH so members have this, have sent to others, and when i write feedback articles to NEWSPAPERS who write about lyme, i include it always in my feedback unless they do NOT permit site links in feedback!
i write many newspapers & CONGRESS on our lyme disease bills; i use direct links of our lyme activities in EACH of these also.
bettyg, iowa lyme activist/group leader of lyme board
never signed up for the advocacy thing; guess i didn't notice it!
DANCINGWINDE, lyme board, created her own 2010 LYME FLYER & DRS. FLYER, which i spend many hours assisting & adding more accurate info.
dancingwinde gave the main WWW.MDJUNCTION.COM site on the bottom of her flyers, and folks can search for LYME FLYER that way.
MAY IS LYME AWARENESS MONTH so members have this, have sent to others, and when i write feedback articles to NEWSPAPERS who write about lyme, i include it always in my feedback unless they do NOT permit site links in feedback!
i write many newspapers & CONGRESS on our lyme disease bills; i use direct links of our lyme activities in EACH of these also.
bettyg, iowa lyme activist/group leader of lyme board
Great ideas: I will make sure and use some of them! 
This is rockin' news, Roy! I have talked with my neurologist about MDJunction as well as my family and friends. My SIL was recently diagnosed with Lymes disease and I turned her on to MDJ. My myspace page is under construction, but there is a url link (I cannot find the code for the Advocate button) and would like to place the button on my Facebook and Twitter sites. My neuro was impressed with the number of health conditions that are covered.
So, my friend, the kudos also go to you and the rest of the MDJ admin. crew who made MDJ the happening place to be.
So, my friend, the kudos also go to you and the rest of the MDJ admin. crew who made MDJ the happening place to be.
"GOD BLESS YOU GUYS"
Thank you all ;-)
Thanks Roy! Great picture...we also printed up 250 business cards for MD Junction and gave them out at the conference. Thanks for letting us use the logo to get the shirts made!!! I had never designed shirts or cards before so I was out of my comfort zone! We were proud to represent MD Junction! Hugs, Grandma Sylvia
that is great Roy , this site will go further , i am sure for that , u also made me to connected with a wonderful friends . from far Ethiopia , now i feel very good and it is very nice to share ideas and info with others, our MD crohn's group is also doing great ,as u mentions on the above libet , Nickey ,Garry Natalia , Dian all are doing a wonderful job on their advocate role .i am proud of them !!
thank u guys
RESPECT
mrew from Ethiopia
thank u guys
RESPECT
mrew from Ethiopia
Thanks for sharing, Roy! It's thrilling to see what our advocates are doing! Hugs, Kathleen
I love those smiles in MDJ T-shirts . You guys are great people. MDJ will go far....it will. Hugs to ALL IN MDJ. Pinkapple 
. You guys are great people. MDJ will go far....it will. Hugs to ALL IN MDJ. Pinkapple
Those t-shirts are an AWESOME idea! I totally want one!
Hi Roy,
Thanks for letting us know about all of the wonderful work our advocates are doing. These are great ideas! I've been telling my family and friends about mdjunction, and my fiance will be joining soon.
Hugs,
Jenny
Thanks for letting us know about all of the wonderful work our advocates are doing. These are great ideas! I've been telling my family and friends about mdjunction, and my fiance will be joining soon.
Hugs,
Jenny
I like the idea of putting posters up and giving the business cards out. I guess I'll have to get my noggin going and put together some of my own to give to doctors/counselors and the library. I love the t-shirts! I'd love one, too!
this great idea i have told a lot people throw internet, by word of mouth just spreading word about this support group .this great site. i told Towne House and several other place about this site. this site works wonders.
roy, hey how are you.... i am backkkkk. boy have i missed mdj. i am quick to tell anyone and i do mean any person suffering in any way shape or manner about mdj. i guess you can call me a 6 foot tall billboard ...lol have a great nit and thank you from the bottom of my hear for mdj. gator
Wow, this is so cool. I have mentioned the mdjunction website to the two support groups that I attend. When did you start mdjunction and how do you keep up with everyone?
Wow what great ideas.
Thanks so much
I will definitely let everyone I know
KNOW
Thanks again
Thanks so much
I will definitely let everyone I know
KNOW
Thanks again
Those are wonderful Ideas! I "liked" the MDJ facebook page and am in the process of letting everyone I know about how wonderful MDJ is. Thanks Roy!
Hi Roy Tell me more about advocacy group. Great new ideas and thanks for all the work you do.
Ladybug 14
Ladybug 14
I'm thinking about having shirts made for my sisters for Christmas and along with the shirt, I will add one of the letters, spoon theory or one of the others. We can do sooooo much to spread awareness. I wish I could walk, because if I could I would start some kind of fibro walk in the spring or summer. I'll have to give some thought to that. I do have many illnesses though, so I would have to do something for all of them. Some more things to talk about.
Thanks Roy and Alon~You two are the best-hands down!!!!
Thanks Roy and Alon~You two are the best-hands down!!!!
word of mouth, fliers, cards, email, other sites, pdoc office, doc's office, therapist, library, support groups I facilitate, stores, pharmacies, mail outs, beauty salons, churches.
A white wolf may comment, thank you roy, she said she always had your back and would like to partake again,
dd
dd
We are related as she is my twin,,,,,,,,,,,in some type of way,,, 
I love that t - shirt idea and would like info on how to get one printed up for me. someone please let me know... Kelti, G.L.
4 - 14 - 2011.
4 - 14 - 2011.
I was just playing games on POGO and was telling friends there about MDJunction . It felt so could to speak for us.
I'm just starting as an Advocate. I live in the NYC area, the Bronx, and am working to compile an email mailing list of mental clinics, support groups, hospitals, and interested people whether mental health survivor or professional to send out a monthly newsletter to promote and inform about our great MDJ to. This is interesting and fun!!
There are so many great ideas for MDJunction. The advocates are really giving 110 percent and should be proud.
My goal is to inform everyone and get things changed by force if necessary , I have 3 family members so far and 3 more to check....so ya I'm one big pissed off Advocate right now !
opening a page called www.LymeDiseaseLies.com
opening a page called www.LymeDiseaseLies.com
great ideas** and yes roy I've sign up on the fan page can't remember when.. It's easy to spread the word when it truly helps support so many wonderful people in so many ways*
Tell me where to get the tshirt and I'll wear it to my social work classes!
I just joined! Cant wait to further spread the word... I started telling everyone about MDJunction from the moment i joined the site.. Thanks to everyone who helps!
This is great to see! many ideas come to mind!!! congrads to every one here and the new ones that come!!!!!! many blessings!
GREAT ideas!
I just recently joined MDJ. I figured I'd come up with some "spread the word" ideas in the future. But the ones I read above have given me ideas how to start doing something NOW!
It was I..Grandma Sylvia in the DD group who had these shirts made. I designed them and gave them to several members. I wore them again at the next conference and even made my husband wear one! It isn't hard to design them so give it a try! I also designed and had made business cards to give out. Thanks Roy!
I sell on Zazzle [tiny tiny commission though] and ebay [845 stars and counting] If someone could point me towards some artwork [in jpeg, gif, or tif format, I could print some cards too and pass them out at school, and use them for bag stuffers for my half.com sales.
also: !!!!!!!mdj can register as a non profit on ebay and get listed&&&&&
also: !!!!!!!mdj can register as a non profit on ebay and get listed&&&&&
There are some very good ideas here. I hope that you continue to have advocates supporting the site. It has surely grown from when you started, but the feeling of community is there in the forums I participate in .
Thanks!
Jenny
Thanks!
Jenny
great idea totally amazing too sharing with everyone thank goodness for this website is totally TOUCHING warming to understanding of each other no matter what and we are we are not alone by are shining heart brightly glowing truly amazing to keeping in touch from are soul and faith of who we are there for and thank you so much... many blessing.
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