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Feb 21
2008
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well my doctor called and my bloodwork showed i lost more blood they sad if i pass out go to the emergency room untill i can get the iv iron infusion. the cat scan showed i have crohns in my colon in my small intestines and in my large intestines and its all inflammed. they sad they couldnt try sergery cause its everywhere. . . . . . i dont think they know what to do cause my crohns is not respnding to any of the treatments. i now weigh 115 pounds there not sure how to stop me from losing more weigh. They moved my colonosopy and endoscopy to march 20th so they can completely knock me out . . . my doctor said after that test they will try to figure out a plan. I mean can you really die from crohns is the doctors cant save you ?
Comments (5)
written by lar, February 21, 2008
written by Journal, February 21, 2008
your are right negative thinking is not going to help . its true you never know how your going to go lol yeah im on 60 mg of prednizone but its not helping. iam very sorry to hear about that that makes me sad. i wish there would be an easier way to do this for us.
written by eternity, February 24, 2008
hey..
How r u?
sorry to know that things going so bad with u...
Things will be better, I'm sure, and ur case will be under control soon or later, I know its hard but try to pretend that everything is going alright,and its just a matter of time, I dunno if this will help you or not, but here's something.... My weigh was ranging between 85-90 pounds for almost a year, I was without any meds or any treatment, althought I know I have Crohn's disease, I was strugglin 4 a year and was @ college @ that time, has projects to submitt, classes to attend and students to teach, coz I was in B.Ed program, plus having 3 fistulas that need to be dressed like 5-6 times/day, but although of all this, I was attendin my classes, submittin my projects and teaching, why?? Because I belive that for every disease there is a cure, and I know it was jut a matter of time,....Now I weigh 110 pounds, and got my treatment in last August....
So just keep smiling and keep on thinkin positevly...
thinkin of u...
get will soon...
How r u?
sorry to know that things going so bad with u...
Things will be better, I'm sure, and ur case will be under control soon or later, I know its hard but try to pretend that everything is going alright,and its just a matter of time, I dunno if this will help you or not, but here's something.... My weigh was ranging between 85-90 pounds for almost a year, I was without any meds or any treatment, althought I know I have Crohn's disease, I was strugglin 4 a year and was @ college @ that time, has projects to submitt, classes to attend and students to teach, coz I was in B.Ed program, plus having 3 fistulas that need to be dressed like 5-6 times/day, but although of all this, I was attendin my classes, submittin my projects and teaching, why?? Because I belive that for every disease there is a cure, and I know it was jut a matter of time,....Now I weigh 110 pounds, and got my treatment in last August....
So just keep smiling and keep on thinkin positevly...
thinkin of u... get will soon...
written by Journal, February 29, 2008
Thanks for checking on me I havent been on in a while. I am bes rest till march the first week of march i have to go in everyday for 5 days to get iv ron infusions. I believe you have the right attitude you have to be positive and you have to look at the bright side of it all and find one even when there is none. I am sadden by your story but It does give me some comfert we are not alone I hope your doing ok yourself I am glad you got back up to 110 pounds
written by eternity, March 02, 2008
glad to see ur reply and sorry I was away for couple days...
i'm doing fine, living normally and pretendin that Crohn's Disease was a nightmare.. ^_^
About the attitude I've, if you think about it you'll definitely see that to be positive is the only thing that gives me hope and encourage me to live normal....I should keep controling ma live, coz if I failed in doing so, the disease will won! Do I wanna such thing happen? definitely NO...
Hope the 5 days pass a very quick and silent way so you don't have to suffer...
will keep on checkin on you... and still thinkin of u...
Take Care,,
i'm doing fine, living normally and pretendin that Crohn's Disease was a nightmare.. ^_^
About the attitude I've, if you think about it you'll definitely see that to be positive is the only thing that gives me hope and encourage me to live normal....I should keep controling ma live, coz if I failed in doing so, the disease will won! Do I wanna such thing happen? definitely NO...
Hope the 5 days pass a very quick and silent way so you don't have to suffer...
will keep on checkin on you... and still thinkin of u...
Take Care,,
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I know its not easy but try not to think about if you can die from it. Think of it this way you could choke on a sandwich and die. Who knows how you will go.
I can't remember, do they have you on prednisone or something to try and help with the inflammation? I know the last double oscopy I did was really painful and I was supposed to be asleep but it just didn't work out because the pain was pretty hefty.
Take it slow, and try to think positive.Thinking of ya!