New beginning

My doctor has decided to pull the plug on my treatment in a few weeks due to multiple complications of this disease.  I'm pissed off about it as the other specialists won't begin treatmentfor the other disorders unless the Hepatitis virus is completely gone.   Where does this leave me.   I am still giving myself Epogen and Neupogen injections every week with the

My boyfriend bought me a plane ticket to go se my son here in Florida for 10 days to help lift my mood.   I so needed to get out of my house..the walls were crashing in on me.   Feeling a lotbetter now...

My boyfriend bought me a plane ticket to go se my son here in Florida for 10 days to help lift my mood.   I so needed to get out of my house..the walls were crashing in on me.   Feeling a lotbetter now...

I need to add thatthis past 5 days have been the healthiest I have had since the beginning of last summer.  Almost feel like my old self and have been ableto go walking with my pain in the ass dogwho took of a few days ago nescessitating me walking along side my boyfriend in his car at night for 2 miles to get hime home since he kept running from us each time we came near him...A night I will

I had a great weekend..went to Palm Sunday service. saw my boyfriends mother in the nursing home then ate lunch at the diner..  Came home and rested before going to a church concert withsome relativeswhich I reall y enjoyed. 

  Just received another 3 months of PegIntron Epogen and Neupogen....Whoopppieee!!

It'd the middle of the night, woke up to get something to eat and decided to sit a spell at the computer.  I have a staircase with an outside wall and a storage area underneath.   By God if a f#####g rodent isn't digging a hole right now and I can hear him...He is partly inside as I can hear him breathing and grunting as he kicks the dirt .  My dogs have now found th

I've written before te3ling you I am out on short term disability and have been sinve February 2.  During the past few weeks I have tried to do the paperwork that is required for disabilityand have found it extremely difficult to get it all completed and sent back to work on a timely basis resulting in near panic attacks fearing I have forgotten  something.  I spoke again wit

February 1st I drove from my patients home straight to the hospital and stayed for a few days. I was so physically and emotionally drained that it hurt to move. Doc now says the joint swelling whichhas now gone to my hips and hands as well as the knees.Never again will I take a steroid. I'm seeinf a breast surgeon today to go over tests and a small lump I found the day before going to the h

Today I am trying to sych myself up to take a walk in the snow. My insurance company finally authorized my Epogen injections weekly for the anemia and I am hoping they help.  They are stillfighting the Neupogen.  How much snow has everyone had??  I'm going to really need to bundle up tightsince I get really cold in my feet and hands.  Supposed to have fasting labwor

I,m feeling better today.. the slow shot recovery.   The insurance wouldn't fill my epogen or neupogen without prior authorization.  So today I have to have my MD go to fight forme.   Say a prayer. Another pay stub came from work and I just give up ever believing I will get paid for my mileage.  The last weekend I worked I went to Greenwich which is 3

Today is different though.  I get to give myself the 3 injections now.  Whoopee.  PegIntron, Epogen and Neupogen.  Does anyone else hate the Epogen shots???  They hurt so muchI can't give  it to myself.  I'm going to teach my son who is going for his second ambulance ride along in his journey to become an ENT.  It's good practice for him. 

I had a mamagram and ultrasound done on my left breast for a lump I found just before going in the hospital.  They said it was benign.  I called the surgeon and figured I didn't need an appointment but instead was told I needed to get the films and a report then they said to come in March for the follow up.  Great ..another $40 co-pay.

HA HA !!!!  Just kidding.  I am referring to short term disability.  Since last weeks hospitalization I realize I cannot go back to work while I'm on these medications..I have alsocome to terms with the fact that my bones are not going to miraculously recover from the Prednisone.  The Hematologist is speaking with my Orthopedic MDs to figure out a game plan.  At fir

 Last  night I went to a Superbowl party for my mental health.  I've been in the hospital this past week with Gastritis (inflamed stomach), anemia and Neutropenia (a low WBC, really, a low Neutrophil count). Anyway one story at a time.  I was sitting next to this guy ,Billy,  and my old friend Michelle was next to him.  Michelle is a vetrinarian and I told her

I saw a Hematologist who specializes in blood disorders and cancer.  He believes my bone problems are due to excessive doses of Pednisone prescribed over this past summer through today as I am nolonger taking any   ANY more of this even for my Asthma.  Anyway, believe me it's good news for me considering what the other specialists were looking at.  The hematologist is

Today was an unbelievably good day.  The best one I have had in months.  I feel so good I don't want to take my injection...but I will. I have been able to catch up on a lot of my caseloadwork so I don't have that awful feeling of being fired every minute for not completeing documentation timely after I do my nursing visits.  I even put on a snazzy outfit today which always

Had my injection yesturday and Im so tired and sore in all of my joints I don't want to do anything.  My boyfriend bought tickets to 3D Avitar film for 3pm. I do want to see it but I'mnot looking forward to sitting there for 3 hours. 

Tomorrow, Sunday, I'm on call and already have 1 admission and 2 regular SNV.  I also have MRI,s scheduled at 9:45am for both of

I had to go to an ENT for a sore in my nose that wouldn't heal.  How pathetic is that...  He said he believed it is a Papaloma virus and told me to apply bacitracin and come back in 1 monthwhen he will do a biopsy.    I guess we are prone to catching other things with this chemo....My hair is changing..NO!!!!!.  It's getting real flat and mousy looking and I n

I am 49 years ol, single and the mother of 3 grown men, ages 27,26,23.  My oldest son is married and lives in Florida

I am 49 years ol, single and the mother of 3 grown men, ages 27,26,23.  My oldest son is married and lives in Florida

Today it isexceptionally warm outside and sunny.  I went for a nice walk through the woods with my middle son. Kevin, and our two dogs.  It was great and my knees feel better down to a deep ache which is bareable.