Why wear a ribbon?

"RSD/CRPS" (QTPIE7)

MDJunction to me

"MDJunction to me is somewhere i feel safe i feel i can be myself and not be judged. I love the fact that i get to see that im not alone in what i am going through and i also get the chance to help others on their journey through guidance and communication.
I would truly be lost without MDJunction... to me its my savior, my personal place to go where i don’t feel so alone anymore in the world." (Storm6751)

more testimonials

my thoughts

this is what i think about, but feel i cant share with people other then you guys because many don't understand

rock and hard place

Apr 24 2011

Do any of you ever feel frightened of carrying out daily activities due to the pain, swelling, stiffness, color changes, and many more symptoms that occur? Do you ever feel like you're "paying for" what you accomplished today after you have fought through the day? I do. Some days I feel as if I am a prisoner in my own body. I have become what feels to be a lazy bum. I can no longer workout nor can I do a lot of the activities I used to enjoy. However, I also feel like I am damned if I sit and do nothing because that's when RSD sets in, especially if you don't stretch. We're all stuck between a rock and a hard place. I am back in this spot after having had a pretty good week. Ya the pain was there but it was manageable with meds. I know I need to push myself, but at the beginning of this RSD mess I pushed myself too hard. I am having a hard time finding that happy medium.

I am worried about my future. I have four months to build up my strength from the RSD flares, mono/epstein barr, post infectious fatigue syndrome, sinus infections, and bouts with Crohn's disease. I am in my lowest of the low spots. I wish doctors and everyone could understand for just one minute that I am frustrated from being sick. Sick of being sick. Tired of being tired, and ready to get on with my life! I know I need to just dust myself off and try again. I am going to do just that. I believe Thomas the tank engine said it best with "I think I can. I think I can..."

Previous diary posts by darlaa:

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reality is setting in
another bump in the road
spread and life
random thoughts on life

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Comments (2) Add Comment

written by xXdevilsXgraffittiXx, April 24, 2011

understand exactly were your comming from (giving in),i know your going threw hell..i always hate the first walk of the day,feels like im walking on broken bonesall in my infected area i ended up with dropfoot and rhabdomyolisis.its all so unbearable,when i sleep now i grind my teeth and breaking em off worried about pulling them..last week i had to see a judge for child support,was scared about going to jail (non narcotic state)was worried about taking my own if they did(cowardly)judge took one glance at me and asked what meds i was on,,and told me to tell my doctor he isnt giving me enouph meds...dismissed my court dates..and told me good luck and go home.IT was one of my happiest days so far since ivee had these problems..maybe talk with your doctor for better meds and a counsilor at any point from here (just what i think...i know this starts getting dangeros mentally and physically..just hang in there, easier said then done surely..were all here to deal with this together

written by Kim4105, May 02, 2011

I understand where your coming from, especially right now because we are having a cold front and I cand hardly walk and use my arm. Its hard when people cant understand how we feel. Some days I feel like sitting around crying. Im 27 and feel like an old lady who needs a walker. I really hope you start to feel better.

Kim