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amccaffrey Seeing Through the Lyme-Colored Haze.


And then there were two...

Apr 26 2011
Well...a pal at work came to me today with questions about Lyme disease.  She was just told that she probably has it today.  The look in her eyes was the same look I think I had when I foundout I had it.  I was just in shambles.  It's not the worst thing in the world to have, but I sure wouldn't wish it on anyone.  I just feel awful that she's going through this, too.  Hopefully she will have a good outcome and will be painfree when all of her treatment is done.  What I don't understand, though, is the way she was told.  She was told the same way I was, which was ridiculous.  "Your tests came back positive, so you need to start this."  The end.  No explanations....no options....no, "You should come in and talk to the doc so you have reassurance that everything will be ok."  She's so confused and has no idea what to expect....exactly how I was when I was told.  So many people just have no idea how lonely it is to have this....because it seems noone else around you has it.  Noone knows about it.  My husband told me a while back that the only thing he worries about when he goes backpacking is ticks because he doesn't want to get Lyme.  It actually made me feel not insane because it felt like he DID believe that I really am in that much pain.  I just wish people would be more educated about it and stop treating it like it doesn't exist.  I'm miserable proof.  :(

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