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sleepySheri"in august 2008, i accidentally found this site and i love it. i have struggled with narcolepsy since 1993 and to this day i have never met another narcoleptic in person. to share my story and read the stories of others as well as try to help others means the world to me. i want to thank all those who are there to listen to me and to give me advice...." (sleepySheri)

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Jessalynn1

My Lyme Diary

I'll use this as a way to discuss my lyme treatments, symptoms, struggles, and recovery.

Things are Looking Better

Apr 02 2011
I've restarted acupuncture (although I haven't noticed much of a difference with that) and started 1:1 yoga instruction.  The yoga is amazing.  It's really helped me to be able tobetter "sit with" the pain.  It's very calming and my nightly practice really helps to unwind and focus on me.  The mind-body connection is so amazing, yet so neglected in our...

Pain, pain go away

Mar 24 2011
So sick of the pain.  I've had a few "okay" days, but since this flare, even the "okay" days a wearing on me.  I had almost a year without having to take anything forpain, but now I can't get through the day without pain meds.  I know I should be thankful for that year, but I am so discouraged.  I don't understand why this relapse happened while...

A Glimmer of Hope

Mar 07 2011

The pain from my setback has been slowly decreasing over the past few days, although my anxiety has sky rocketed.  I think the setback scares me and the thought of such severe pain returning outof nowhere is just too much for me to handle so soon.  The past few days have been full of anxiety and tears 24/7, which I know is not helping my body heal as quickly as it could.  I just...

Still Struggling, but Slightly Better

Mar 05 2011
The pain has improved a little bit, but I'm still far from where I'd like to be.  The pain is so scary, and even though it's improved, I fear that it will return.  The mind-body connection seems to be so relevant when it comes to Lyme disease.  I'm trying to calm myself and not anticipate more pain, but it's so hard!  Feeling very sad and scared right now. &...

Still Hurting...

Mar 03 2011
I had hoped that I'd have better news to write about as the end of the week approached.... not so much though.  I'm still in TERRIBLE pain, and unable to move my neck.  It especiallyhurts to get up (from sitting or lying down) or lie down.  The pain meds are not helping.....  Hopefully the sleepless nights will end soon.  I don't know how much longer I can deal...

HUGE Setback :(

Mar 01 2011

I had been doing quite well- until yesterday.  I woke up with a stiff neck and radiating pain from my neck to upper back/shoulder region.  I can barely move my neck.  I hurt SO much.  I'm trying so hard to stay calm, but the pain is so scary sometimes, that's easier said than done.  I feel like I'm going do throw up because it hurts so bad :(

 I&#...

Trying Some New Things

Jan 28 2011
After speaking with my LLND, we've decided to continue with all of the antibiotics (doxy, rifampin, flagyl) for now.  We've also decided to add a few natural things in to help with detox and my adrenals.  For my adrenals, we recently added EnergyMultiplex (Researched Nutritionals) and we're also adding LicoricePlus (Metagenics).  For detox, I'm adding one of her deto...

1/18 - Lyme Makes Me Paranoid

Jan 18 2011
I received a copy of my recent labs (that I get done monthly to check my liver and CBC).  My AST (SGOT) and ALT (SGPT) are both elevated, which means my liver enzymes are elevated.  I'm wondering if I'll need to add a new supplement to help the liver, or if my naturopath will have my stop the antibiotics.  I know this happened once before and it ended up being a fluke, so I&...

1/17 - Feeling A Little Better

Jan 17 2011

After incorporating Rifampin into my regimen, I am slowly starting to feel a little better (not symptom-wise, but herx-wise).  It seems that some of the inflammation has subsided.  I am nowin the process of incorporating Flagyl into my regimen (4 days on, 3 days off).  I have worked my way up to 1 a day, and will be trying to introduce the second dose starting tomorrow.

The...

Wednesday - 1/12

Jan 12 2011

I've been using a paper log to track my symptoms over the holidays, so I've been kind of slacking on my journal entries on here.

headache: -

stomach: -

upper back: 6

fatigue: 6

 

anxiety: 3

shooting pains: 8

muscle twitches: 7

muscle soreness: 5

Now taking 200mg of doxy 2x/day and 300mg of Rifampin 2x/day.  Goi...

Wednesday - 12/8

Dec 08 2010

headache: - (shooting pains on left side of head)

stomach: -

upper back: 4

fatigue: 6

anxiety: 1

shooting pains: 5

muscle twitches: 4

muscle soreness: 3

Started 100mg doxy 2x/day.

...

Tuesday - 12/7

Dec 07 2010

headache: - (shooting pains on left side of head)

stomach: -

upper back: 2

fatigue: 6

anxiety: 3

shooting pains: 5

muscle twitches: 3

muscle soreness: 3

...

Saturday - 12/4

Dec 04 2010

headache: -

stomach: -

upper back: 2

fatigue: 6

anxiety: 2

shooting pains: 4

muscle twitches: 2

muscle soreness: 2

Had an episode of "the shakes" tonight, which I also experienced this past Monday.  Not anxiety related at all- I just sat there calmly and it eventually passed.   I also learned that I will be restarting abx...

Wednesday - 12/1

Dec 01 2010

headache: +

stomach: -

upper back: 2

fatigue: 5

anxiety: 2

shooting pains: 2

muscle twitches: 2

muscle soreness: 2

...

Tuesday - 11/30

Nov 30 2010

headache: +

stomach: -

upper back: 3

fatigue: 5

anxiety: 2

shooting pains: 2

muscle twitches: 2

muscle soreness: 4

Soles of feet still have the "muscle soreness" feeling... seemed to notice it more in the evening today.  Down the back of my neck on the right side it is very tender to touch.  The right ankle pain seems worst...

Sunday, 11/28

Nov 28 2010

headache: -

stomach: -

upper back: 3

fatigue: 5

anxiety: 3

shooting pains: 3

muscle twitches: 2

muscle soreness: 2

Still having sore soles of feet (inthe morning especially)... I'm not sure if it is the same kind of lyme/coinfection "soreness", because it feels more like muscle soreness.  Will have to keep tracking this symptom....

Sunday, 11/21

Nov 21 2010

headache: -

stomach: -

upper back: 2

fatigue: 7

anxiety: 4

shooting pains: 5

muscle twitches: 2

muscle soreness: 2...

Wednesday, 11/17

Nov 17 2010

headache: -

stomach: -

upper back: 4

fatigue: 5

anxiety: 2

shooting pains: 5

muscle twitches: 3

muscle soreness: 4...

Tuesday, 11/16

Nov 16 2010

headache: -

stomach: -

upper back: 3

fatigue: 6

anxiety: 3

shooting pains: 3

muscle twitches: 3

muscle soreness: 6

...

Monday, 11/15

Nov 15 2010

Still absolutely exhausted.  Felt like I was in a fog all day at work.  Extreme muscle soreness today, especially in my thighs, glutes, and calves.  Even my feet (in the arch of my foot) have been sore lately.   Ughh... tomorrow will be better I'm sure :)

headache: -

stomach: +

upper back: 2

fatigue: 7

anxiety: 2

shooting pains:...

Sunday, 11/14

Nov 14 2010

headache: -

stomach: +

upper back: 2

fatigue: 7

anxiety: 2

shooting pains: 3

muscle twitches: 3

Still sooo exhausted.  Slept 12 hours last night and stilllaid around most of the day.  I'm wondering if my system is just working "over time" from adding all of these new herbal remedies, in addition to the diflucan for yeast detox.&n...

Saturday, 11/13

Nov 13 2010

Just started artemesinin (?sp) today.  Haven't noticed any herxing yet.  Hopefully it will stay that way.  I am taking smilax now, and my naturopath said that should help with theherxing so, we'll see!  I'm still really fatigued though!  I just can't seem to shake it....

headache: -

stomach: -

upper back: 3

fatigue: 6

anxiet...

Thursday - 11/11

Nov 11 2010

I've been slacking off on my yoga lately, and I cheated (but only a little bit) on my diet today.  Oh well, hopefully I will have more energy next week!  Today was uneventful symptom-wise, other than a few stabbing pains in my hand and foot, and some muscle twitches in my legs.  

  • headache: -
  • stomach: -
  • upper back: 3
  • fatigue: 5
  • anxiet...

Wednesday - 11/10

Nov 10 2010

So exhausted today, but what else is new?  My symptoms: 

  • headache: -
  • stomach: +
  • upper back: 3
  • fatigue: 7
  • anxiety: 3
...

Monday - 11/8

Nov 08 2010

I'm tired as usual, but I still feel as if I've been a bit more tired than usual lately.  Symptom log:

  • headache: -
  • stomach: -
  • upper back: 3
  • fatigue: 6
  • anxiety: 2 
The strange pinching sensation in my back seems to have disappeared, although I now am noticing some nerve-like pain on the left side of my neck.  I only feel...

Sleepy Saturday

Nov 06 2010
I woke up this morning around 9ish (actually, I was woken by the telephone) and couldn't go back to sleep, even though I was soooo exhausted.  I stayed in bed for about an hour and lied therewhile I had terrible muscle twitching in my side and back.  I got up, and relocated to the couch, where I laid until 3pm.  Not much of a productive day for me.  Oh well- I guess my body...

Tired, but doing okay

Nov 03 2010
I seem to be tolerating all of the new natural herbs and supplements well.  I'm not sure if I'm extra tired because things are being "cleared" from my body, but for some reason my fatigue has been worse this week.  My anxiety has been much better, but I am afraid that it will flare in a week when it usually does (along with all of my other symptoms).  I've got...

New treatment plan

Nov 02 2010

I just saw an LLMD who is a Naturopath, so my treatment regimen is going to change.  I am awaiting test results from IgenX to see if I test positive for Babesia, so this is just a basic plan tostrengthen/detox my body over the next few weeks.

Week 1:

-Nerve tonic, Smilax, Soothe & Relaxxx (Researched Nutrtionals), Transfer Factor Multi-Immune (Researched Nutritionals)


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