MDJunction - People Helping People

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  "Chronic Fatigue Syndrome. " (Quando62)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

MDJunction testimonials
sandinnalee My journey through confusing health problems.


Jun 01 2010
Does anyone have a problem with their adult children seeming distant or nonreactive to their medical problems?  I have two daughters and they lost their Dad when he was only 42.  Anything thatcomes up with my health seems to cause them to seem to lack empathy while they come running to me with the slightest problems.  I don't get it.

Previous diary posts by sandinnalee:
Comments (1)Add Comment
written by bearlie, June 02, 2010
Hi Sandinnalee,
My guess would be that your daughters can't deal with the idea of anything happening to you. Since they have already lost their dad, i'm thinking they're probably in denial about you having problems. They might think you're gonna be healthy and there-for-them forever. I doubt they realize they're being selfish.

A lot of the time, friends can be more supportive than family.

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