MDJunction - People Helping People
 

Why wear a ribbon?

 
"I have lupus" (marchelle3)

MDJunction to me

grandmasylvia"MDJ has been "a soft place to fall" for me as Dr Phil says. I have this very painful rare disease Dercum's Disease and take comfort in finding others here who share their knowledge and compassion. Many
members have helped me just by understanding my anguish and validating
my pain. We are working together to encourage research toward a cure.
" (grandmasylvia)

more testimonials
lilhannon872005

My Diary

Updates on my condition and how I'm living with pain.


Year 5 Begins Tomorrow

Sep 08 2011

Hi all,

Well, I think I instinctively knew that I'd be writing another one of these, but of course I hoped I wouldn't.  Tomorrow is September 9th, marking four years of pain.  Last year I did an inventory of good things, which shows you that I just had a certain level resolve at the time.  I'll be honest and say that a lot of that resolve is gone.  It just feels like I've been trying so hard and nothing gets better, honestly, things just get worse.  I'm tired all of the time, and it all just feels weightier and weightier every day.  I'm getting closer and closer to that place where I just want to throw my hands in the air and give up on working and going to school.  

 Had an appointment with the doc on Wednesday, he wants to do the 200 unit concentration of Botox two more times... which I'm not happy about at all.  He also put me on Naratripan, which is basically just and extended release Imitrex.  I'm taking two a day, everyday, which is a pain in the ass because my insurance will only give me 9 at a time, so I'll be back in 4 days to refill it.... Really stupid.  I don't really think this is going to help, because once again, my headache is not migraine related, but he wanted to try it out.

Anyways, I guess that's all.  Sorry its not more uplifting this time around.  Hope you all are feeling better than I am these days.

Sarrah



Previous diary posts by lilhannon872005:
Comments (1)Add Comment
written by MissZoe, September 14, 2011
Hi Sarrah,
I know that probably everyone has a different solution for you. I don't promise that.
My headache is coming up on three years in a little over a month. I can't imagine five. I am so proud of you for making it this far.
I used to have bad days (8/10 or higher)five or six days out of the week. I just recently went five and a half weeks with out a day over 4/10. My secret? Massage therapy.
Maybe you have already tried it, maybe not. If not, it might be worth a shot. I truly hope for you that you find a solution. I believe you will, I believe we all will.
Stay strongsmilies/smiley.gif

Leave a comment
You must be logged in to leave a comment. Please register if you do not have an account yet.
busy


Members who read this post also read:

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved