Me and My Fibro

Good Very Rainy Morning.. From Northern Michigan...

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Could Prednisone be the answer for me?

Ive not felt this human in over 3 years. I'm not holding my breath yet, I've only felt this good for a week. But it's been the most gloriousweek I can ever remember having. Maybe because I aprreciate it more than I ever have. How we be thankful for our health when we've never known what it's like to be unhealthy. Well now that I&#

I seem to only write when I'm feeling blue and my pain is high.

So whomever reads my diary entries, I really do have a great life in so many ways. I have a good husband of 26 yrs, we have3 beautiful kids, and one super awesome 21 month old grandson. Also, I have a young lady who moved with us when she was 16, I consider her my daughter. Along with many others who have stayed with us a

I am so so tired. I don't sleep regularly. Anymore, I almost get no sleep at all. And now with my Wellbutrin mg raised, I feel energetic but it's false energy, that I worry is harming me. Ihave become close to OCD about the way the house looks, so I'm constantly cleaning. Which is causing me so much more pain. Tonight I feel like every bone in body has snapped. I hurt everywhere, li

Yep... Woke up this a.m feeling so much better. I felt relief, thinking the flare was over, if only for a day. But now it's rearing it's ugly head, thinking that's it's sneaky. It started out in my arm, slowly moving down into my hand and then up into my shoulder, down my back.. Now it's all over my upper body.. The pain became so bad, I had to take a pain pill and now I

For my health, and personal well being, I avoid drama, and confrontation. Even though in my house it may be noisy and filled with people, there are never any arguements, no fights. I'm not sayingthat my kids have never argued, but two out of three are grown, the youngest is 17. They all get along beautifully. We all respect each other. 

I enjoyed this day!

Went to the hospital with my hubby for his colonoscopy. Waited for a few hrs in the waiting room (miserable part). Afterwards, he felt perfectly fine, so we went out to eatand then we bought a new fridge, and then he bought me a new love seat for our back deck. We walked around the store for quite a while. It was fun. We talked and laughed. We almost never get these ki

Trying not to be a big baby but how long does this need to go on?? I can't look to the left, without screaming pain shooting thru my shoulder and neck.. I thought for a while that maybe I slepton it wrong but it's only gotten worse as the day progresses.. I have moments where I don't think I can do this much longer.. I'm not suicidal, just beyond exhausted. Wiped out. My stomach

OUCH!!!

My nerve endings are freaking out and making me twitch and shooting really mean pain all thru my body...

Ajay has a friend over that's never stayed here before, and I'm trying to converse with them and my pain an twitching makes Brad look at me funny. I get embarrassed but Ajay gets up and without saying sword brings me a neurontin and Vicodin and a glass of water. A

This afternoon my husband and I cleaned the middle floor of our house and it looks so nice :) I was able to get ALL of the laundry done!! Plus... We made potato salad for tomorrow! Woo

Can't figure out why I keep going into one flare after another with almost no time to breathe inbetween??

I hurt so badly with shooting pains between my shoulder blades. It's hurting bad enough that I am crying... I don't ever cry over physical pain..

Today was my sons 17th birthday. It's a good thing he isn't little expecting a birthday party. Lol. He made enoug

Yesterday evening into the morning was miserable!! I got sick to ky stomach that turned into an all night thing. Dry heaves and then dark blood, only a small amount, but still.. What the heck?? I hadcold clammy sweats and was and some point.. I was miserable. Today I've spent just trying to recooperate. My rib cage is killing me

Tomorrow I turn 44...

I really don't want to celebrate. Birthdays are for the living not the existing. And for the past 3 years now- I haven't been 'living'... I merely exist because there really is no other choice. Don't get me wrong- I'm anything but suicidal or ungrateful. I'm exhausted, in pain, disappointed, disillusioned, but I do have many happy moments

I could feel today coming two day ago, and then yesterday I knew for sure it was on its way... Woke up this morning feeling like a Mac truck drove right over me.. Nothing surprising or new. My legswere painful tree stumps, that dead weight feeling with shooting pains. I couldn't even bend down to pick anything up off the floor.. It traveled into my shoulders and everywhere. My pain meds don

Alrighty this is turning out to be quite the night. I had dinner and within an hour started feeling really crummy. I went up to bed for a while and laid down, woke up with a terrible belly ache, moreof an distended abdomen. A lot of pain, and very weak feeling.. What the heck?? I went and sat in the love seat on the back deck, fell asleep til 1ish, abdomen still distended and I feel super crumm

Well.... This definitely has to be a Prednisone thing! I could not get full last night!!!! I ate and ate and then ate some more. It was almost like in a frenzied manner. Which yes I am over weight now, but nnot due to stuffing my face full of food all night. Well last night, you wouldve thought that I had entered an eating marathon! I just couldnt stop. 2 bowls of cereal, saltines, an apple, half

Today I called my oldest sister. I had the conversation in my head before I dialed her number. I was going to be condencending, I was going to tell her hurtful things. Only the truth, about her husband. In my mind, it was time. But... then she said Hello. She lives in a think happy thoughts world, no grasp of some ugly realities. So we talked, and I felt okay with leaving her in her daisy picking,

Dentist appt today, 2 teeth fixed. thats a good thing. i am starting to take care of myself. but i feel sick. i ran out of my savella 2 days ago and the pharmacy had some mix up on it...so i couldnt getit until today. the prednisone is really taking its toll on me. not seeing the up side to it at all today. i am just hoping i sleep this all off tonight and wake up with a much better feeling in the

Ive been on this thru out my whole life, with my asthma. But its been quite some time. Also each time its a different reaction. This time, no hallucinating or face swelling. Instead its the heart palpitationsand sleep deprivation... I only slept from after 4:30am-7:20am... Really? Why even bother??? Lol. Since then, Ive torn my entire fridge apart and bleached every nook and shelf and drawer insid

What an exciting filled day for my oldest! Kala is an Army Reservist and part-time student with a full time job. She did a photo shoot about a month ago by a photographer who has some good friends in the modeling industry, well she recieved a call back and has been asked to do a photo shoot tomorrow @ 1. woot! She is pretty excited! And then she recieved a call right after that for a job interview

So tonight 3am- its me, Grey's Anatomy and well I guess my diary? The whole world sleeps around me. But my mind wont shut down? Perhaps the Prednisone is doing this? I woke up this morning at 6am.. I didnt nap, I was active, went for quite a nice long walk on our trails, I walked around WalMart.. So what gives!!? Thats a lot more than I do in a weeks time normally. So... Here I sit. Not complainin

I wrote for at least an hour, clicked save and POOF gone! It's way too long to rewrite for now... Maybe later?

It was about this friend whos been my friend for 30 yrs and today she blockedme on Facebook..  

Ive been in this flare that is wiping me out, depleting me of all energy and today its all catching up to me... i feel drained..the weather is another dreary gloomy wet dark moist grey day.. How can aperson survive day after day like this with fibro or even depression? I know it wont last forever and the sun will find its way back into the N Michigan sky.. But until it does I will suffer. I need a

This is just going to be me rambling to myself... Sometimes I won't even make sense, but I don't really care. I went to the Dr twice this week.. Got my blood work back. Negative on Lupusand Rheumatoid Arthritis. Whoop