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Lyme Bytes

This is my Diary about Late Stage Lyme Disease (LSLD). I also have several other illnesses. But the Lyme is taking the stage right now. As I learn more, Lyme may have caused and/or at least exacerbated my past diagnosed illnesses. From autoimmune troubles to cancers to TB infection to ALS. An incredible journey. An update - I am also carrying bartonella, babesia, and malaria. Parasite Party, I guess. I have a doctor in Seattle that says he is committed to saving my life. ...Read More

Brain Lesions - lyme, ms/als, ccsvi...the list grows

Jun 18 2012

I have 3 brain lesions in 3 different lobes per CCSVI testing. Plus significant CCSVI in both large jugular veins and some other veins. And some things growing on my neck bones. And chronic pansinusitiswhich I already had surgery for. My cancer numbers show I am out of remission. Just wondering how long it will be before I know what the lesions are from and what we are going to do about them? And how much pain further testing is going to cause. It seems surreal. It also seems impossible that all 3 of them are benign and can just be allowed to stay and sit there. One of the lesions I swear I can pinpoint. At times it feels like someone has speared me behind my left eye. I know I am in the hands of God so I won't worry too much. Luckily, my husband just told me to get my passport and it looks like I might get a real honeymoon where I get to pick a place. Right now Italy, Germany, Africa, St. Lucia, are all sounding great.

Previous diary posts by SnackCakes:

CCSVI and FL1953
Sleep, Seizures, and Stress
Secretly Scared
Churning, gurgling, and spewing like a volcano
Day 1 of treatment

Going back on treatment
lyme
bad lyme flare
easy, breezy, and wheezy
Trouble breathing

Comments (2) Add Comment

written by harpgirl, June 28, 2012

I have MS. Lesions can be caused for all sorts of things. They can come and go. Pictures of them are just a snapshot. Only when they turn into black holes are they permanent.

If you have CCSVI then you know the blood is pooling back up into your brain. This too causes lesions. Just heard about some place in NY doing free treatments for CCSVI. It is part of research. Don't know much about it, other than it is happening in New York. Don't think it is the Hubbard Foundation, but I am sure they would know about it. I think they are the best.

How are brain lesion determined by CCSVI testing? The only way to determine brain lesions is with an MRI (with and without contrast.) Now you could see the flow of blood moving upward and pooling I guess. But that isn't a lesion. Lesions are benign. Tumor's are the only thing that can be cancerous.

written by SnackCakes, July 05, 2012

I had 2 hours of MRI scans in Las Vegas. xrays and an ultrasound. The scanner there is also a 'special' one made by Siemens for this kind of testing. I believe Dr. Haacke modifies the scanner also but not sure this is true. Dr. John Nelson was my neurologist. I just now got all results from all of the testing there. I have more than 50 percent of blood back flowing into the brain. The lesions were seen in the MRIs - both with and without contrast I think.