When I went to bed on Friday(8/7) I stayed there until Tuesday(8/12). Getting up to use the bathroom of course, when I couldn't hold it any longer.This happened alot in the past however now, I don't feel guilty,well not as much.I tell myself that if this is what I need to get "me" 2gether then this is what I will do..I slept alot and actually felt refreshed. The kids were out,the house was quiet..Yes I could of went to the movies,fishing or one of the many things I want to do on my own but this particuliar time I WANTED to rest..really REST..so I DID..Proud of me...

Now the down side...those dog-gone 'tremors',mycolonus, low grade seizures...I don't know what to call them. All I know is that it all starte with shaky hands, then arms. Jerking of the head came next, thenbiting of my tongue..waking in my sleep after a very painful jerk of my body,then waking after I hit the floor. The 1st time I figured I just fell out of bed. by the 3rd time after banging my head on the table b4 hitting the floor.I knew this was not good..then it happened not only when i was sleep but now while I'm awake, walking, talking, sitting whenever...it's just more painful when I'm unaware...neuro docs try to say" due to meds" but this started b4 meds...now I'm on klonopin prn..started on low dosage when episodes happens ,having to increase now due to episode are growing and intensity of jerks/tremors are picking up...Everytime I think i have one condition some what do'able it either worsens or something new pops up...

Hey what do you do?

You Pray and deal with it..and NO it's not easy at all...of course I cry my eyes out....until I can't see...then I fight some more...

thank you for listening and being my friend..does this sound like you?

let me know...

Mowse..

God Bless you all.