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Lupusville USA: Mowse's Journey - mowse's diary
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As the intestines turn....and other stuff.
Sep 23 2008

Hello

Been going throug alot lately...My iron is dropping every week the # gets lower. I barely have enough energy to breath..Started iron transfusions last Friday,was down to 8 at that time. Retest on Friday the 25th. and new transfusion. Marrow's not making red blood cells, body's not absorbing vitamins/minerals needed to survive and /or fight off cancers. Both kidneys now have stones again. Bladder has 2 stones enlarged inside...WoW! the Pain!...Bladder is the size of a healthy tropicana orange,  cysts & lesions on my liver have increased in number and size, teeth have started chipping off again, Due to iron being so low and rest off blood dangerously low I am unable to get out of bed sometimes...Now heres the whopper..my intestines are twisting due to scar tissue from bypass surgery..getting to point where it's leaving me severely bloated with difficulty breathing, a nasty pain in my chest with vomitting up food i can no longer digest due to the fact that I'm full.I go without a bowel movement from days to weeks to months sometimes, I'm unable to pass gas and when I do it smells of an old dead person, bm's are in skinny slivers when and if they do happen,There's a pain like no other..My gastro doc says" Unfortunately" I'll have to hospitalized and fed by I.V. and /or have affected portion of intestines removed.."Unfortunately"..he kept using that word over and over again..So I focus on everything at once: the stones, intestines, iron or lack there of, my bladder's war with the stones that won't come out and when they do move..OOOUUUCH!!! So that means some type of surgical removal or whatever they do..either situation you look at seems to spell out hospital time...So, does any of this sound familiar to anyone out there...please let me know...Sometimes I feel as if I'm loosing my battle with depression and I feel so overwhelmed and exhausted...I do have my sons Daniel and Rell..my awesome support team..but sometimes I feel like a burden to them..they get upset when I say that..so  sshhh, don't tell them I said that...Be well my friends, always in my PRAYERS

Mowse,





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