My #'s will not go up...continuing to drop at their own pace..making me weaker and weaker. totally out of my control. I don't know what to do. I have no appetite and no energy. No appetite should mean I'm loosing weight but NO I gained 7lbs. in 6 days..could that be the huge twisting bulge of my intestines or the swelling of my bladder causing me to use the bathroom all hours of the night? I fell out across my bed fully dressed at 3:45pm yesterday..i was suppose to go out for my niece's movie night for her birthday but i couldn't move...i finally got up tonite at 10pm to put on something comfortable. Every Friday i have an iron transfusion at the hematologist and yesterday my hemaglobin was at its lowest ever. My bp was at its highest of 172/112 after taking all of my bp meds for the entire day at night..What do I do? I am at a scary place right now..at times, kidneys,liver,heart, shortness of breath, bladder pain,bone pain,trigeminal neuralgia, migraines,teeth falling out,constipation, dark urine,increased lumps in both breasts,unable to focus to drive car, blurry vision,nausea, dizziness,bumping into things when i walk, seizure like tremors returning, pain making me loose my mind, i cry until i can longer breath thru my nose, it seems like all of this stuff still isn't enough i have to suffer some more....i don't get it, however i take it..there's a plan for me, God has a plan for me and i have to be STRONG, i have to face it ALL..I live, I Pray and I keep the FAITH...