| Jun 14 2008 |
My daughter has been ill with stomach problems for the last 5 yrs. Her first diagnosis was H-pylori. We went through the treatment for that and she just got worse and then she had her gallbladderremoved, and she did not get better so then she was told she had gastritis but that did not fit so they finally diagnosed her with severe chronic constipation and sent her to a colon surgeon but she will not treat her because she has OCD issues that prevent her from taking the anal rectal physiology testing so now we are back to square one with no doctor to help her, if anyone out there knows of a doctor willing to help her without the ARP test please let me know. my e-mail is jackieburdette@gmail.com. The last time I took her to the doctor they said she probably had the adult version of hirschprungs disease because she has all the symptoms I think it is called intestinal neuronal dysplasia. The doctors say that the only way to treat is with surgery and if it is not treated her intestines could get so backed up that they could rupture and she could die but they also say they will not do anything without a definite diagnosis which they can get with a colonoscopy where they can do a biopsy to test for this disease but they also say that the most reccomended test is the anal rectal physiology test which they know she can't do and they are refusing to do anything because of this test instead of at least trying to use the colonoscopy to try to find the final diagnosis for her. I am almost at my wits end as to what to do or how to help her so I am reaching out for help, please if you know of any doctor willing to help her without insisting on the ARP testing please contact me.
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