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"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
helpful to me and now I can't go a day without coming in at least 4 or five times a day! I Love my family here.
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Kat's Path Toward Health - Kat5150's diary
View Profile I thought I'd start this to document any improvements now that I finally have a doctor who will help me. It will serve as a record of how my meds work (or don't) and any other progress or set backs that I have.



Just Wow--Lots of New Stuff
Oct 11 2008

I am a bit overwhelmed here and all I can say is Wow.

A few weeks ago my son got here.  That has been pretty stressful especially since my mom died around the same time.  And my daughtergot engaged.  So it has been crazy here.  Thankfully, I went back to see my doctor about a week ago.

She said I am weird (like I needed a doctor to t ell me that) because I have a lot of things going on,  only one of which is fibromyalgia.  I am still trying to wrap my brain around it all.  Next time I am bringing a notebook so I can remember everything.  Here is the rundown:

*She strongly feel s that I am in the early stages of lupus.  Too early to treat since I don't "officially" have enough symptomps yet.

*I have an arrhythmia in my heart, which is why I have been having chest pains for years that all my doctors have ignored.

*I have a chronic viral something-or-other (can't remember what she called it) which is why I am so exhausted.  My body has apparently been fighting a chronic virus for a very long time.  My EBV was through the roof.

*My thyroid is sluggish.

*My blood pressure is very low.

She changed most of my meds so now I have oxycodone (which I am scared to take)  two muscle relaxers (one she said is what they give people with MS), a thyroid medication and prednisone.  And don't you know how thrilled I am to be gaining weight with the prednisone (yes, I am being sarcastic).

She said if the steroid works she will definately diagnose me with--something.  I can't remember what she said.  See why I need a notebook?  She also wants to test me for Lyme's disease.

She told my husband that I am very sick and that I am the most stoic person she has ever met.  We discussed moving out of Florida but she asked that we stay at least long enough for her to come to a complete diagnosis and a treatment plan.  That way I have something to give my new doctor.  I think that sounds like a great idea. :)  I'm so glad she is figuring things out.

So, wow.  That's lots of stuff.  My head is spinning.  Still.  She did also give me a B12 shot.  I have to say that I felt great for a few days.  Like my brain was working again.  It gives me a bit of hope actually.  Like maybe I can get some of my old life back again.

She said that once the thyroid medicine starts working I will feel a lot better and should even lose some weight (woohoo!) so I am anxious for that.  Unfortunately, right now I am sick again.  Flu maybe.  So it may take longer than anticipated to start seeing improvement.  I'll try to be patient though.  What else can I do? 





Comments (2)Add Comment
written by Cori, October 11, 2008
She sounds like a very thourough doctor that's good. I wish you the best and am sorry that you are going through so much right now. You can do it
written by ALCSS2008, October 11, 2008
Wow, you do have alot going on. I am sorry about your mom. I am sure that was very hard for you. It sounds like your doctor is being very thorough. I like that she is continuing to diagnose nd not just being satisfied with one diagnosis. Florida--sounds good to me. I live in Western Maryland and we are gearing up for winter.
Sandi

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