Why wear a ribbon?

"Because I have New Daily Persistant Headache and awareness of it really needs to..." (ellennelle)

MDJunction to me

"MD junction is a place for us to share our experiences both good and bad it is a safe haven from the ignorant and the doubters a place to vent ask advice or just get away from it all.
I am shell I am a parent with aspergers syndrome.
Four of my six children are autistic also.
I hope to give an insight from an autistic view.
" (spectrummum)
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Journey - dragonjewel's diary
View Profile Here I am trying to understand this disease. It answers many questions and resolves several questions. Yet leaves a few that although few are important. Now what? What do I do? What does Crohns really mean?



blast it all
Apr 30 2008

I hurt and am so tired here. I am getting headaches left and right here with the depo lupo shot. I was told go ahead and take ibprofen and I am like what do I do next week when I am not supposed tohave that for my colonscopy????

Plus I hated the way the dr would not give me any info for crohns until he does he get his colonoscopy - what the biopsy from my appendix? coleslaw?
Come  on- lets take what we know and take care of this like NOW! Then worse I vented about it on my mommy site and some of the replies made me feel like they thought I want crohns. Its a nasty disease and I am stuck with it so I just want to get a handle on  it now!!

What is so wrong with that? I am only 25 years old! I have two small children and a disabled husband that depend on me and I work full time. I need to get my ducks in a row around this thing so I don't let them down. And that is the way it is.
I found out what is wrong  lets  get  collar on it. Instead I have another week yet until the procedure and who knows how long  until the followup. What am I supposed to do in the mean time? I am so from tired with the headaches and then if I sleep wrong I aggravate my whiplash. I can't win! I feel the depression sneaking in here and it frustrating.

 





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