Why wear a ribbon?

"For my son - Wesley" (wesleysmom)

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"I joined this site when i hit my ultimate low. Joining has helped me connect with others who understand me and how i feel and has helped me keep some sanity in my life.
Suzanne
" (sisters4life)
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Journey - dragonjewel's diary
Here I am trying to understand this disease. It answers many questions and resolves several questions. Yet leaves a few that although few are important. Now what? What do I do? What does Crohns really mean?



blast it all
Apr 30 2008

I hurt and am so tired here. I am getting headaches left and right here with the depo lupo shot. I was told go ahead and take ibprofen and I am like what do I do next week when I am not supposed tohave that for my colonscopy????

Plus I hated the way the dr would not give me any info for crohns until he does he get his colonoscopy - what the biopsy from my appendix? coleslaw?
Come  on- lets take what we know and take care of this like NOW! Then worse I vented about it on my mommy site and some of the replies made me feel like they thought I want crohns. Its a nasty disease and I am stuck with it so I just want to get a handle on  it now!!

What is so wrong with that? I am only 25 years old! I have two small children and a disabled husband that depend on me and I work full time. I need to get my ducks in a row around this thing so I don't let them down. And that is the way it is.
I found out what is wrong  lets  get  collar on it. Instead I have another week yet until the procedure and who knows how long  until the followup. What am I supposed to do in the mean time? I am so from tired with the headaches and then if I sleep wrong I aggravate my whiplash. I can't win! I feel the depression sneaking in here and it frustrating.

 



Depo-Lupo Day2
Apr 16 2008
The sore hips is down to stiff muscles i am able stretch out. I was sure tired through. Ended up needing a 4 hour nap. My belly button incision is pretty sore today. More than it has been in a week andmy surgery was 3 weeks ago.  I know in the brochure it said I could be more sore the first week or two? Maybe a bit of bloating causes the sore belly button being I was due for my period today.  I am not so much getting hot flashes so much as feeling flushed.  Otherwise so far good and craving KFC mashed potatoes. 
Depo Lupo Day-1
Apr 15 2008

Well, on top of my crohns I am also in the middle of dealing endometriosis. I have a moderate case where there were patches they were able to remove that this far has made a difference already.
For the rest my OB went with 6 months of Depo Lupo. I got the injection today at 1:30. So for my hip is more stiff than sore and after 10pm I felt a bit more flushed that usual. Although that could have to due with my dear 22 month olds sheer stubborness. Goodness, she is so full of her bounce.
No nausea and I did remember to take all 4 pills of my master multiple today. 

My appendix incision stil ache signification, but his week only at the end of the day and i took my ibuprofen as  my ob ordered. 
are they sure?
Apr 14 2008
Alright, now I wonder if i have something else. I have no diahhrea problem. Instead I have constant constipation and nausea issues. I have the mouth sores and rectal bleeding. In past I have had gastricinfections that couldn't be cultured and only cleared up with leviquin. Plus when that happen various organs get inflamed like my kidney swelled up 3 times it size in then it was my appendix 3 weeks ago and the pathology came back as crohns. I am so confused.
dunno
Apr 14 2008

I really do not know what to think of this disease. I tell my many friends about it and come to find out they know of people with it.  I am finding sites that explain how its an auto-immune diseasethat attacks the GI Track. Great, what do I do with it? What is the diet suggested for crohns? Are you supposed to run your butt off?  WHAT THE HELL YOU SUPPOSED TO DO?
I get to see the gastric dr next week. But what should I expect? What should I ask?