I have been having a really hard time lately. I stopped my meds a while ago but I am sure I will start again soon. I have been very stressed out as well, so I know that makes things worse. Me and myfiancee have been going through alot lately since I have been dealing with this, he doesn't think he can handle what is going on. But to be honest he doesn't have to go through as much as I do. I understand he needs to be the one to help me through this but I feel like I am going through this alone. So as sad as this may seem I need to get help from people on the internet, I don't even know their real names but I have them to talk to! I wish things were easier that is all. I never thought my life would be like this, I thought it would be a breeze!

I went to see my doctor and he said I should stay on my meds, but it is so hard. I have 2 little girls and I used to be so active in their lives, and taking my meds just makes me so tired I can't even last a full day without needing a nap. But I go to see my neurologist on the 11 of August so hopefully she can start me on something else. Although living with ET there isn't much that you can take to keep you awake!