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  "for all my friends that have this disease" (jjones4774)

MDJunction to me

Claire138"It's been a year since I joined the Parkinson's Disease Support Group on MDJunction and all I can say is thank you all for the support, compassion and friendship I've received and been able to give as well. It was a lonely night when I came upon this site, but the nights aren't that lonely anymore...
With gratitude to all...
Claire138 (aka Bonnie)
" (Claire138)

more testimonials
cinderella well here are my thoughts on my struggles and triumphs, i hope to share my story honestly and help others through their journey.


goodbye

Sep 14 2009

B) the really great news i have to share with all of you who have at any stage communicated with me is that i have had some really good breakthroughs and i have also had some terrible turns over thepast few months... well i went to the pain clinic in June and then again in July,all the travelling really left me so sore and exhausted that the only place i ended up was in bed as i couldnt walk again, then i was finally able to get on to my computer and it wouldnt work properly as my internet security had expired and the kids were still using it to do their stuff, and the computer got a trogen virus so i had to save up to get it fixed and when i got back on my status as group leader had been deleted, and i found this out when i went in to give the group their hugs and, anyway it doesnt matter anymore i realise i must have really sucked as a group support leader anyway otherwise the management would have at least written to me first to ask if there was a reason i hadnt been on lately... oh well never mind i decided not to write anything then as i was very upset and angry,so best not to at that time,after all i had been the group leader for over a year, and in that time i set up advertising and stuff on heaps of other sites and groups to encourage more people to use this site in order to make it a better place for us all to communicate, i have been trying to do research to write articles about scheuermann's disease as it is such a terrible painful illness, i have written a few things there but i have been unable to find alot of info so i had contacted the university in Sydney to get some information to share on mdjunctionin the articles section of this page i have devoted so much of my time to this site (mdjunction)and i really have put in a great amount of effort, considering, i am  sorry was, group leader on 2 groups, this one and the step families  anyway i am just saying to all that it was a lovely time in my life when you all were writing messages to me and i was writing back, and i am sorry that i wasnt there for you all the past few months while i have had stuff going on in my life. but anyway this is goodbye from me, as i am disgusted that i have been treated in such an unfair way... so i am not going to use this site anymore if you wish to communicate with me any further please write to me at my email address.... cinderella1800@gmail.com

thanks for all support you gave to me over the period of time you used this site that i once felt was my only reason (other than my family) to keep on living

gotta go now though, hugs to you... and if you do write to me i look forward to it.

cinderella

 

:dry: :dry:



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