Diary Entries for izzyhuss57

Small bowel troubles

izzyhuss57

Well my X-ray showed 3 loops of my small bowel thicken and fibrous. I am having off and on eating problems with nausea and vomiting. My GI doctor stumped....any ideas out there? Anyone hadsomething similar?

vasculitis

izzyhuss57

I am in remission right now, except for the episcleritis. It continues to cause me so much pain and tearing. The dry mouth is bad too. Oh well

Eyes

izzyhuss57

Well, haven't been here for awhile. Been real sick. Best of all my eyes are now being affected and I can tell my doctor is concerned how this can be happening with all they are doingfor me.

Well answer is I don't have a clue. But I developed Episcleritis in my left eye..very painful. So on eye drops (more prednisone) as my weight continues to climb. The hard part is that it is difficult to drive or be on this computer. Half of my vision is a b [...]

Still good!

izzyhuss57

Well, I am good again today! thank God! Not sure why...but I am so very grateful for the good times. I am trying to not overdo and go slow hoping the good feelings will last. I am onday 4 I think, can't remember of course. LOL Cloudy here in AZ today, so good day to rest and relax with my husband. Take a nap because I want to instead of forced to. Thats a good thing. I wish and pray the same for all my friends and anyone else that reads this diary no [...]

Good days ahead!

izzyhuss57

For the last few days I have been good! Oh how good it feels when I get those days...thank you Jesus. I hope you all have some good days too. This is my first real run since I had mychemo back in Jan. So it was a hard 6 weeks.

Tired

izzyhuss57

I had my sol medrol iv on Saturday, it worked for one whole day. Now I am down again. I don't understand my Lupus yet. Seems to have a mind of its own. I try to watch for trendsand I see one or two, but sometimes no reason at all. Very tired today. Have a good day you all.

Fear

izzyhuss57

I write poetry when down.

Good day...

izzyhuss57

I was supposed to get a CT scan to check for a blood clot in my lungs. I was having shortness of breath and chest pain for almost a month. Woke up this morning and it is all gone. Doesroaming aches and pains happen to you? It is weird. This morning at 5:20 am I was awoke by bad shooting pains in my left knee. Then I finally had to get up because of it. Now 9:14 am it is gone. CRAZY

And the beat goes on...

izzyhuss57

Good morning. Just got back from doctor. Having a CAT scan tomorrow for possible blood clot in my lung. Been having shortness of breath on exertion for about a month now. Painin two specific areas on my upper chest. Weird?

Sometime I feel like a nut when I go to the doctors. So many symptoms that as a nurse I never saw. Do any of you have lines going down your fingertips? How about red spots (do not hurt) on your tongue?

Solu-Mederol

izzyhuss57

Yesterday my nurse came infused me with Solu-Mederol IV. It took almost all day to take effect, but I woke up this morning so much better. She comes back today to give me another 500mg. So I should be zooming my tomorrow. So my spirits are up today. Another day of rest and then maybe I can go do something fun. Getting dressed would be a great start!

1/28/2011

izzyhuss57

Hope someone is out there. I feel so alone. Don't get me wrong my husband is great...maybe a little too protective. More like a caretaker these days than husband. What do Iexpect? Been in bed in relapse since Sunday. Relapses zap my mood and confidence. Tomorrow though I have my home care nurse coming to give me my SoluMedrol IV treatment and that should boost me for awhile. I am not sure how long they will give it to me but it sure seems to br [...]