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neshama48"Having Crohn's Disease for over 26 years, in the first few years, it lonely and isolating.
Though now my disease is in a near perfect remission, my friends and family are sympathetic to me, but I can not talk to them about this disease. When I stumbled across MD Junction, and met others who had the same disease I was not alone in battling the disease. MD Junction is like a second family, without the judgement or guilt of having Crohn's Disease, but they do give you love and support.
" (neshama48)

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SpazyJess

Inside the mind of Jess

A way to look at this journey we call life through my eyes.


Behind Green Eyes

Jun 02 2009

Two steps forward, one step back....

I feel like as soon as I start feeling better, the sooner the other half of my disorder rears it's ugly head again.

I'm really tired of going through this. Right now I want to just sleep all of the time as if an anchor is drawing me further into the depths of the sea and when I'm awake and the "anchor" lifts a bit, I get irritated easily and frustrated that I'm getting irritated, and at times feel very empty and alone.

I'm so sick of this fucking roller coaster bullshit! Pardon my french; that's just how I feel at the moment.

I swear, I should just be quiet when I'm doing well b/c I jinx myself whenever I say something

Note to self: shut your mouth Jess when doing well; just shine bright by being supportive and not talk about how great you're feeling.



Previous diary posts by SpazyJess:
Comments (9)Add Comment
written by YorkieLove, June 02, 2009
I'm sorry that you're feeling down. Be kind to yourself. You will feel better soon enough.
written by SpazyJess, June 02, 2009
Thanks Yorkielove. What you said means a lot!
written by hopefull1, June 02, 2009
Don't be so hard on yourself. It's only normal to want to share when all is great in your world. I'm sure it brightens the day of your friends and family when you shine. Listen to your body and rest when it needs it. Think of yourself as a battery recharging so you can shine brightly again.
Blessings, Steffanie
written by SpazyJess, June 03, 2009
Thank you for your kind words hopefull1 and Ashley this illness does suck butt, big butt I may add. Thanks for your well wishes hon. HOpefully I'll be back to "normal" (whatever the hell that is, LOL!) in no time.
written by babyboyjames, June 06, 2009
yeah i know.. im on a forever rollercoaster it seems.. i hit bottom acouple of times but im waiting to crash
written by Kathryn, June 07, 2009
Your title reminds me of a limp bizkit song here are the lyrics, I hope this makes you feel better:


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No one knows what it's like

To be the bad man

To be the sad man

Behind blue eyes



No one knows what it's like

To be hated

To be fated

To telling only lies



But my dreams

They aren't as empty

As my conscience seems to be



I have hours, only lonely

My love is vengeance

That's never free



No one knows what it's like

To feel these feelings

Like I do

And I blame you



No one bites back as hard

On their anger

None of my pain and woe

Can show through



But my dreams

They aren't as empty

As my conscience seems to be



I have hours, only lonely

My love is vengeance

That's never free



When my fist clenches, crack it open

Before I use it and lose my cool

When I smile, tell me some bad news

Before I laugh and act like a fool



If I swallow anything evil

Put your finger down my throat

If I shiver, please give me a blanket

Keep me warm, let me wear your coat



No one knows what it's like

To be the bad man

To be the sad man

Behind blue eyes

written by SpazyJess, June 07, 2009
Kathryn,
My title is a metaphor for the Who song you posted the lyrics to smilies/wink.gif I can totally relate to that song and it can apply to struggles with BP disorder. Thank you for posting the lyricssmilies/smiley.gif I looooovvvveee that song!
written by Thoughtmistress, August 05, 2009
I love that song, and I also have green eyes!
Nobody who doesn't have this disorder can possibly understand how difficult it is.
Sending you happy healing thoughts.
written by SpazyJess, August 05, 2009
Yay someone else who has green eyes! smilies/wink.gif

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