|Aug 02 2009|
It has been a while since I have felt well enough to make an entry but a lot has changed. Change is a good thing. I have found I am intolerant of more new drugs, the hard way of course. Now weedingout what works and what I can take.
Best news of all, I found a LLMD, yeah........ He is knowledgeable and I now have a doc in the same state! I learned so much from my appointment (over 2 hours) and I thought I knew a lot. Of course that day was a reminder of how I am just scratching the surface of all the problems I face having gone undiagnosed for years.
It is still amazing to me how these little tiny bugs can be so very devistating to the human body. I am taking an herb now for chronic fatigue syndrome, day 3 and I have not had so much energy in so long! I hope thats what it is. Everything, even the fever of 100 I walk around with most of the time is tolerable with the added energy. Also doubled my thyroid meds as it has once again changed and now I am too low.
Boy I wish I owned a pharmacy. Mepron is like $1400 for a one month supply. That is just crazy. I am so lucky to have parents that are able to help me financially because I am flat broke. I have applied for disability for the second time but even if I get approved it will only help. I don't know how I could do it without my husband and parents. Right now I am just trying to figure out how to keep my home as I have not worked or brought in a paycheck now for almost 2 years. Tuff since I was the head of household before becoming ill.
The heat is just kicking my butt. We broke all time records last week with temperatures over 100. Rain, rain please come back. That is why I live in the pacific northwest!
Cognitive problems get worse in the heat. Not that I was a rocket scientist to begin with but it definitely is magnified with the heat. Thank God for the small AC unit in my bedroom window or I'd be staying with the in-laws to get some sleep.
OK, things that have improved since I began treatment in March. I rarely have numbness which I had all the time prior. Raynauds has improved markedly and I no longer take medication to control it. My gait has also greatly improved which is huge. My neighbors probably think I'm a drunk the way I stumble around some days. Oh well at least I am well enough to stumble around, so what if I give em all something to talk about. :)
Sick of being sick
Crazy with Excitement & Full of Stress
Getting better is hard work
Tiny light at the end of the tunnel
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