Why wear a ribbon?

"for my mommy" (lexywillis)

MDJunction to me

"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
of people who understand the name and the symptoms/issues that come with it.
MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction." (MissNikkiAnn)

more testimonials

Hi there!!

My first day -

Hello everyone, first of all English is not my mother tongue so I apologize for any misspellling. I was diagnosed with melanoma 8 years ago, a small mole in my left arm. it was excised, my sentinel node test was clean, and I kept on muy normal life, being supervised all the time.

This summer I had some seizures. Cerebral metastasis. Just one (lucky me) I went through brain surgery and radiation. Apparently I'm fine from that, except that i have a few metastasis in my liver and lungs. I do not have the Braf mutation so i do not qualify for Zelboraf. Now I am on Dacarbazine awaiting for 'Yervoy' (ipilimumab). What more? oh!.......I feel sick,but I'm still here and willing to be a litttle longer.

Well Hello everyone!!

Introduction

Nov 29 2011

My first day -

Hello everyone, first of all English is not my mother tongue so I apologize for any misspellling. I was diagnosed with melanoma 8 years ago, a smallmole in my left arm. it was excised, my sentinel node test was clean, and I kept on muy normal life, being supervised all the time.

This summer I had some seizures. Cerebral metastasis. Just one (lucky me) I went through brain surgery and radiation. Apparently I'm fine from that, except that i have a few metastasis in my liver and lungs. I do not have the Braf mutation so i do not qualify for Zelboraf. Now I am on Dacarbazine awaiting for 'Yervoy' (ipilimumab). What more? oh!.......I feel sick,but I'm still here and willing to be a litttle longer.

Well Hello everyone!!

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