Why wear a ribbon?

"because I suffer from depression, bi-polar disorder, PTS, and anxiety." (ksmi)

MDJunction to me

"This has been one of the most supportive places I have ever been. I found MDJ by mistaking looking for drs to help me with my many health issues and since that day over a year ago I have found a tight nit little family that keeps me going when the times are tough and offers me a place of retreat to share my successes and failures with others. I get to see the humor and seriousness of what I experience as well as the resources to learn about my health conditions. Thanks MDJ" (peasha)

more testimonials

Going Home One Day Where There Is No Pain

I live for the Lord and His work...but I am living in pain while on this earth. My hope is that it wont last forever.

Myasthenia Gravis

Jun 08 2010

I got results back from my blood work. An antibody came back positive for an autoimmune neuromuscular disorder called Myasthenia Gravis. Im still looking it up but trying to get over the shock thatI wasnt crazy. I want to laugh because I am so happy they finally found something but at the same time I just want to cry. I have to see a neurologist now probably for more test and treatment options.

I should be happy but I think I need to cry first.

Previous diary posts by findinghope06:

Victory
2nd Doctors Appt

Docts Appt

Comments (1) Add Comment

written by treelover, June 17, 2010

I totally get this. I had been getting weaker for years. They found vit D defieciency that was so bad I was weakened by it. After treatment I was strong enough to do parttime work! I thought I was cured. I hadnt worked for years. Then July 08 I had increased my hours and moved to a new apartment and my dad had gotten alot sicker. I took a very hot shower, not normal for me. Just a few minutes in and suddenly my body started to change. My legs went...had to figure out how to keep from falling. I sat for a long time soaking on the toilet, hardly able to breath. That was the day I was admitted and diagnosed as probable myasthenia gravis. Unfortunately my blood tests have never been positive and no one around here will diagnose my firmly and give me the expenseive treatments without it.

Do cry as you need it to release. tears really are a chemical release. But yes you are very lucky your blood is definitively positive. The state I live in doesnt have an MG foundation. I use Kansas City and Minnesota. They are both nice and will help at this time.
Annie...sending you gentle hugs