fluffyluggage

This weekend was so amazing, but I also had a terrible flare. It was funny because my family was visiting with a doctor friend of ours, and she asked about me. My mom started talking about all my symptoms, how I hadn't gotten much in the way of answers, doctors hadn't paid much attention to me, etc, but that I was starting to do a little better. The doctor asked WHY on Earth I hadn't been tested for Lyme. I think this startled both my mom and my sister, since neither of them have been terribly supportive of me. My mom just thinks I'm a hypochondriac, as I have about a million diagnoses, and I think she believes that I've gone from doctor to doctor till I get a diagnosis I want, IDK. My sister threw in my face via nasty-gram about a month ago that she'd been living with Lyme for 6 years, and I shared none of her symptoms, so I needed to just move on and get over it, although prior to that, she'd claimed to be cured. Huh...

So, I'm not sure what their initial reaction was, probably a bit of jaw-dropping and all that. But, they got me out to talk with her, and although she's no longer in private practice, she does want to order the tests for me--and she said for me to tell her what she wants me to test for! Go figure that one! So, now I need to get my research back out--I've buried it somewhere, thinking I'd never have need for it again, since no one so far has believed me! And then I'll need to get back on my old protocol, or at least some of it for a couple-3 weeks before I take the tests, so it's all going to take a bit of time, but it looks like I might have a light at the end of that ever-lasting tunnel I've been in!

While I've been so sick, I have had a pretty good 3-4 weeks. I've been on Neurontin (Gabapentin), and I've been doing so well, I even had to call my doc when I had this last flare. I can't believe I didn't even know it was a flare! I felt pretty stupid calling them to ask about it, and then they told me it was a flare--I was thinking that damn, I used to live like this every single day, and now having to deal with it for about 4-5 days was soooo miserable. I was using my TENS unit, and thank heavens I took it with me when we went shopping over the weekend, cuz I could barely walk by the time we were done shopping. In fact, we hardly got to finish, I was in so much pain, and my right leg was not really doing a good job of holding me up! It didn't want to work very well, and my right hand wasn't doing a very good job of holding anything, either.

So... That was sorta how things have been going recently. I haven't written in ages, but thought it was time to write some more stuff out. Things have been so much better recently. I took my protocol for about 52 weeks--a full year, but had to stop cuz I got sooooo very sick (the flu--possibly swine flu, accd to my PCP, but no idea for sure--and then bronchitis afterward!). I would say I got about 40% better on the protocol, so it was definitely working. I think I have a good chance of getting a positive test when I do test, but I can't be certain.

I'll update everyone when it happens! :D