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aTinaL"To me, Mdjunction comes down to motivation. The support and information I have found here motivated me to take a very proactive stance regarding my illness. This led me to find medication and doctors that are giving me my life back.
More important than even the motivation, though, is the friendship I have found at MDJ. I have made some of the best friends of my entire life right here in this group. Even though most of us have never met, it feels as if we have known each other for years.
If Angels walk among us, and I believe that they do, most of them are here at MDJ.
" (aTinaL)

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raynedae A space for me to log my symptoms etc.


Intervention

May 01 2010

So I caught one of my nosier sisters going through my cabinets last time she visited.  She found the big box that I keep all my meds and supplements in.  Her eyes were huge.

The otherday I got a call from another sister, the one who used to be a hospital corpsman in the Navy.  She asked me a few questions about my fibromyalgia, then started in on the drugs I take for it.

I told her what I take which isn't that much really...Cymbalta, gabapentin, klonopin, meloxicam, a blood pressure med & claritan.  I DO take a ton of supplements, 5 or 6 at last count. 

So the sister on the phone asked me what I was taking and why so I told her....she had no idea what half of them are...so much for her "knowledge".  She said that I must be diabetic if they have me on gabapentin and I told her no, I'm taking it for fibromyalgia.  "Why are you on klonopin?"  Because I'm pretty anxious for a lot of reasons"...."well just be careful, you don't have to take every pill they give you..."  Well, duh!!!

Then she started in on the lectures about exercise.  "You should be swimming or doing water aerobics"  "No, I can't, I'm allergic to chlorine."  "Well where Mom swims they don't use chlorine"...am I supposed to drive 20 miles every day to swim with my stepmother????  I don't think so.  As she continued to lecture me about swimming I finally told her "I haven't worn a swimsuit in over 20 years and I'm not going to start now!" 

I told her I do stretches and when it stops pouring everyday, I'll go back to walking. 

This really pissed me off.  None of my sisters has even acknowledged my fibromyalgia until now and now they're accusing me of being a drug addict!  And then to treat me like I don't know the first thing about fibromyalgia when she doesn't even know that gabapentin is used off label for fibro pain! 

Then she started questioning me about PTSD and tried to tell me that mine shouldn't be still bothering me, 24 years after my trauma...oh, her bf & my ex-bf both are still having nightmares about Vietnam..."but that's different".......  GRRRRRRRR

Apparently I'm taking up valuable shrink time that ought to be going to a wounded warrior..."And is your BF doing therapy?"  No answer---"How about you?  You told me that you were still having nightmares about Somalia"  no answer to that either. 

I told her that whenever I see a car wreck in real life or even in a movie or on TV, it triggers my PTSD.  Whenever it snows, it triggers my PTSD.  Whenever the temperature drops below freezing, it triggers my PTSD.   I start getting very depressed and anxious as soon as I see the Halloween candy come out and it continues until December 26.  When friends or family die, it triggers my PTSD...and this year has been the worst EVER for death, and it's only May. 

I know she did it out of love but it still pisses me off to accuse me of being a drug addict and to insinuate that my PTSD isn't treatment worthy...NO ONE can understand another person's PTSD.  

 Rant over. 



Previous diary posts by raynedae:
Comments (2)Add Comment
written by Clarita, May 01, 2010
Sweet friend,Truly hoping some rainbow blessings come your way soon. Know what it is like to have a family member accuse you of being a drug addict- really frustrating to put it v mildly!! Pleased that read your diary entry today. Am praying for your sister's heart to soften as well as for her to have a lightbulb flashing Eureka moment so she truly understands fibromyalgia and PTSD so then change her attitude to you to a much more loving one.

Feel for your pains- emotional as well as physical. Wish could beam right up to you with a gentle hug plus a shoulder to lean on. Would love you to be able to vent to me face to face. Think you are a special lady so it angers me when others fail to treat you as such, truly!

You have had a most challenging time recently in all kinds of tough ways sweetpea. Asking heaven along wtih all the angels to mightily bless you right here right now- may it be so!

Hoping lots of random acts of kindness comes your way really soon too as you sure deserve it!!

Feel free to pm this British bat girl anytime- am a good listener plus care.

Rooting for you massively!!

Hoping you will be sublimely blessed this Sunday.

Hold on tightly!! Take excellent care of your most fantastic self!

Very gentle extra special hugs, Love your friend come rain or shine for always, dolphin smiles Clarita xooxooxoox smilies/smiley.gif
written by SurvivorByChoice, September 06, 2010
WE could be twins!
SBC

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