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cscwem

Fibro Daily

My day by day feelings life journeys


March 5, 2012

Mar 05 2012

It's been sometime since I have wrote here, so I guess now is the time to get off my butt and do it.

The doctor's office had tried reaching me like mad today. I went in and seen them about my swollen feet on Thursday and they drew blood. The nurse told me my D-dimer was elevated and they wanted me to get an ultra sound then asked how swollen my feet were since I was seen in the office, I told her they were almost back to normal, just a little but puffy. She then told me not to worry about it and just keep the follow up with my regular doctor on Friday unless they go completely swollen again. I guess an elevated d-dimer can mean a blood clot somewhere. When I was seen in the office the PA-C put me on water pills and potassium. I guess it has helped because before that, the swelling would not go down hardly at all just a little in the day time and went up more at night for like 2 weeks straight.

I wish I could say I was having pain free days, they range from a 7-10 most days. Yesterday was about a 6, the temperature outside reached about 50 degrees and it was nice so we went and actually did a little shopping. Needless to say by the time I got home I was exhausted and in pain and we didn't shop for much and only went to 3 stores looking for the items we needed. But I did notice the difference with the sunshine and the little bit of warmth.

The other night I bought some bottles of Vitamin B-12, I am going to try them out for a couple weeks and see if I notice any difference. It says to dissolve them under the tongue for 30 seconds before swallowing them and you can take 1-3 micro-lozenges. I already drink energy drinks trying to get just an ounce of energy out of them.

I can't wait to see my new rheumatologist April 2nd. I have never seen a rheumy yet and I am hoping they can shine more light then my primary doctor since she does not do much besides listen to me. She does get stuff done but when it comes to pain pills, she has me on two hydros a day 5/500's and says once April comes she is putting me back on one a day since the weather will be changing. Two a day isn't even enough right now, I take one in the morning and one in the afternoon and it takes the edge off and that is it and when evening rolls around I am hurting all over again. I do not want to change doctors because I really like my doctor, perhaps I can persuade her to send me to a pain management specialist. I would try the shots to see if they help as long as they are open to doing more if the shots don't help. I have read too many mixed reviews on the shots here.

Okay, well that's enough for now........ 


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written by kildare56, March 05, 2012
Very interesting entry. I got the pain management referral, but it's too soon for a verdict. The pain I have is very widely dispersed and varied. I had an injection in my left hip that has proven very helpful. At the same time, I had three in my right shoulder without effect. One of the problems is that the doc is the only game in town. At that, she's covering a clinic intended for three doctors by herself. Bad though this may sound, her problem IS my problem, so I don't care. Just fix it! I was supposed to have morphine injections in my back last Thursday, but my BP was too low. Most pain doctors are willing to go to stronger meds if necessary. They will try everything else first. The problem with the meds is that you do build a tolerance. That's doesn't sound like much now, but I do know of cases in which people went that route only to find a few years later that they had cancer (as an example) and were in complete agony. The pain meds were no longer helping because of their tolerance. It is such a fine line to walk. I do believe in using pain meds when needed, yet I also don't know how far I'm willing to take that. So, you see, this is not meant to sound "preachy". I just don't know.

Family doctors should do pain referrals. They are not knowledgeable enough in this area. Fibro is a very new diagnosis and many GPs still refuse to believe it's real. Those that do are hampered at every turn by the DEA. Believe me, the DEA is no friend of the public. They'd much rather show an arrest that allow fifty people badly needed pain relief. I truly wish them all the pain in the world. Time for me to shut up! Thanks for the entry!

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