Why wear a ribbon?

"My step-son was recently diagnosed with carcinoid syndrome" (ericas)

MDJunction to me

"I was alone and desperate with my disease when I found MDJunction. Finding so many great people that understood my illness and could relate the same feelings to me was a life saver. I now have many new friends here that help me out of my bad days and for that I am very THANKFUL!" (libit)

more testimonials

Facing MG

I am going to jot down My journey with admitting I have MG and dealing with it with hopefully new friends that share the same disease or knows someone who does.

Been a while

Jul 01 2011

I havent been on here for a long while. I have been trying to get Myself together after being in the hospital for only 4 days. the shortest amount of time ever! However, I am on prednisone for yet another6 days. I have ballooned up and all I am doing is eating salads and tuna. However, i am breathing soo good. I am walking up and down stairs and yesterday I spent a whole day out with a friend. I was so worried that I wouldnt get to the normal point again. Have you ever felt like that when you were sick? That this is it. Im never going to feel good again. Thats what this disease makes Me feel like. Like I am a prisoner in My own body and it wont get better. And each time it does I am equally surpised as the last time I got better. LOl so, I am on the road to normalicy and I hope to see you all there.

Previous diary posts by realness1:

Its tricky again!
Baffled by My disease
Feeling Bad

Feeling Sorry For Myself
About Me

Comments (2) Add Comment

written by MGHouston, July 01, 2011

Hi I feel the same way. I was in the hospital after in came home the Dr increased my prednisone I have been on Prednisone for 5 yrs
I have not this good in over a year. I have been doing things I havent done in yrs. We can enjoy the times we feel good.I had begun to feel I would not ever feel good any more you just dont know.I hope you keep doing great.

written by realness1, July 01, 2011

Thank you for that. I didnt even know that I could be on prednisone for that long. I am a little scared because I am almost through with it. Im wondering how I will sustain without it. Thanks for the heads up.