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Khylie

Each and everyday will get better....

My diary is pretty much about how i feel, and the things that are happening in my life. I'd keep a real diary, but I don't want my boyfriend reading it so i'm excited to have some personal space! haha


pleurisy

Apr 18 2011

I am so thankful to have medicade. Yet, everything is getting worse. I just want to die.

I was hospitalized twice  in the past month because of pleurisy. Also found out i have a heart shunt. Still waiting for the doctor to call me back about that. My problems are coming back and i am so frustrated. I have no one to talk to, and i don't want to seem like a "poor me" but i am so fed up. I'm doing everyhing i can to help myself. 

I still can't poop on my own. need laxatives and it's been over two weeks.  I still can't lay on my right side which has caused me rashes all over my left side. I can't walk without standing all the way straight..i have tohunch over so the pain stays calm in my chest and side. when i do lay down i feel like my left side is spazzing..it's just miserable. And now on top of all of that my teeth are falling out. well..more chipping..but they look horrible. i take such good care of my body. i stopped smoking, i brush my teeth twice a day..(but the past two days i can't brush more than once cuz i have blisters all in my mouth), drinking prune juice, trying to eat healty...it's just not working.

I'm afraid that no one is ever going to understand how i feel and that i am so alone in this world. i'm working my ass off just to be able to afford dr's bills yet working so much is making me sick. i seriously just want to get hit by a car. it's so hard for me to want to die this badly...but i can't cause that pain on the ppl i love. so i choose to suffer. yet i stay strong for everyone so i just feel like all this pain is going to get worse and i'm never going to get better.

i have never regretted having lupus, or had a problem with my lupus until now. inever even noticed it to much besides the fatigue, occasional rashes, and swelling. Now it's like my body gives up on me. and honestly...i give up on my body. 

someone please talk to me. 



Previous diary posts by Khylie:
Comments (2)Add Comment
written by anonymus123, April 18, 2011
I have felt the way you are feeling now, like your body is giving up on you even though you do everything you can for it, make sacrifices that no one seems to understand, but it will get better- i promise you- i have days too where i wake up wishing that I hadnt, that maybe i would stop burdening those around me, they would grieve and move on if i just never woke up- but that is not the answer, please see your doctor!obviously the meds they are giving you are not enough... there are pain meds that are effective for teh pleurisy- they do work, I must work full time as well to afford all of this so i understand where you are coming from- you are not alone!!! this is a hard battle but we can win!- together!!!
written by Khylie, April 18, 2011
thank you so much for your kind words.that did help me a lot! it's good to know someone knows how i feel!!!
i see my doctor on thursday...so not to much longer! smilies/tongue.gif

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