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Nevayda"Mdjunction Tourette Syndrome site has given me the opportunity to share my experience of raising a child with TS, with others, especially those with new diagnosis. Support is essential for families and individuals with tourette as is information. I'm glad to have the opportunity to be there. I also learn as I go as others share their experience and knowledge." (Nevayda)

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LeslieBaker There is nothing commonplace about sharing your body with PD. What is noteworthy though is by scribing a journal; it is a documentation of life - one that is personal; yet one that can be passed onto a doctor. In the essence of forgetfulness at times, or venting at absurd vexations; creating a periodical documents my life through joys and tribulations.


Tapering off Mirapex

Aug 13 2009

I reported as directed to the doctor this morning with how I was tolerating the Tigan 3 times a day along with the Mirapex.

The overall consensus was that I am not tolerating the medicationwell and that the side effects are more detrimental to me than the medication is helpful.  That's the frustrating part  - when the medicine helps and you can see improvement but the side effects are worse.

So, for the next two days I've got to taper down to 0.50 mg - 1 tablet 3 times a day.  Then day 3 to reduce it down to 0.25 mg - 1 tablet 3 times a day for two days.  And, during this time, as the nausea starts subsiding, I'm to reduce the amount of Tigan being used to prevent vomiting.

After that, I'll be medication free until September 3rd.  The doctor wants me to be totally free and clear of all medications for that appointment so that he can decide if Requip will be the best way to go at this point or perhaps another medication; or a combination of medications.

I'm not certain as to what my feelings / emotions are about this at this time.   I'm still absorbing the doctor's latest decision.  The whole venture, I will admit, scares me half to death to be totally symptomatic again and needing a lot of help.  I'd been regaining some independence and now we're going back to square one.

However ... I still am trying to stay focused on - I may have Parkinson's Disease but I will not let it have me!  This will only be a temporary set back hopefully.



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