Cori's Story

I have had hidradenitis for a long time now -- at first I thought it was just bad acne, associated with my then-unknown disease of PCOS.  But when it started getting bad and not healing, well, allthose lumps had to be something else.  I didn't get diagnosed until my late 20's -- even though I had had the disease for several years.  I first started noticing lumps under my arms -- lumps that would get real big and then burst and then never heal.  I then started getting lumps in my vaginal area and then on my inner upper thighs.  I then started to get lumps under my breasts and on my breasts.  Then I started getting lumps on my hips and lower back.  And now I have lumps on the inside of my rear end.  I find it so painful to sit.  I wish I knew why I had this.  I wish I knew what the purpose was.  It's so hard to be in such pain.  But what really pisses me off is that no one is doing anything about this disease.  Why?????  If everyone had to have this disease for just 2 months, they would see and understand and they would do something to cure it.  But no, because it's not popular, let's ignore it and focus on diseases that make money, like cancer and diabetes.  What's even worse is that the doctors don't want to remove the lesions and lumps and icky spots.  They just want us to put a cream on it -- why can't we find surgeons who are willing to give us relief and remove the spots?  Why does this have to be so hard?  Why are the doctors so lazy?  Why are the researchers so greedy?  And why must we suffer?