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Why wear a ribbon?

  "pulmonary hypertension" (Izola1953)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

MDJunction testimonials
littlepea This is going to be my way of trying to cope with my husband's illness. The illness his doctor said he didn't have that nearly killed him on 2-15-09 when his esophagus exploded (my best description of what happened that night).



Another day in paradise!

Jun 05 2009
Progress...finished therapy in May and goes to the Y 2-3 times a week now. Not sleeping very well, but much better than when he first got out of the hospital in March. Grouchy....I can't seem to doanything that pleases him. Started driving againg about a month ago but only to the Y and once in a while to the store, never more than 20-25 miles. Seems to be tired most of the time, has little to no energy and frequently complains of discomfort in his side. Doesn't eat very much, maybe a 4th of what he used to but is maintaining his weight and has fluid under control. He seems sad most of the time and even our precious grand baby can't always pull him out of that. Wish I could do something to make things better.

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