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"HS and the chronic pain of RA" (pickupman)

MDJunction to me

MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
of people who understand the name and the symptoms/issues that come with it.
MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
" (MissNikkiAnn)

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CS1964

Cheryl's Diary

A place to share things and vent.


Monday, October 31st

Oct 31 2011
It was one of those days I just felt so exhausted.  It was  so frustrating.  I feel guilty like I should be doing more but my body just doesn't feel like doing any morethan I need to to get through the day.  The headache and usual achiness didn't help either.  It felt like their was this electrical shock from the base of my head down my spine.  I try not to mention this stuff to people that I am close with cause I don't want them to think I want sympathy.  It would be nice though to feel free to just be open and honest about what is going on without wondering are they thinking I am trying to justify being lazy or a slacker.  That is the one thing with fibro. we can't see aha see here is the test or tests that say this is specifically what I have like my husband can with the xrays and test results of his back problems.  I guess we in the fibro. community as a whole need  to really emphasize to those we encounter who may doubt that what we are going through is real that just because we can't show that here is x or y from a test result at the present time doesn't mean a problem doesn't exist. Hopefully in the future there will be ways to more specifically point out that a particular person has fibro. Until then we need to advocate for ourselves. Hope I haven't been stepping on my soap box for too long.  Later. Take care all.  <gentle hugs> Cheryl

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