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Jun 17
2008

exams . . .

Posted by AprilStar in yaworkwhateverventsupport groupssupportstresssickof being sickrant offpersonal experiencespersonal experiencepeople helping peoplepanic disorderpanic attackspaniconline support groupsmy progressMy mood todaymy diaryhelping peoplehelp peoplefrustrationfrustratedfreedomfatigueenergydepressionanxiety attacksanxiety

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Exams start tomorrow.  I'm really not ready for them.  Usually i been studying forever for them already, but this time I just couldn't.  I don't know how many times I tried, but I just can't focus enough to get anything done.  Don't know how I'm going to manage to write my math exam tomorrow. 

And I'm so tired too.  Been looking for apartments for the past 2 days, now we're just waiting for approval for the one and we're done that. That'll be good, one less thing to stress about.  (Though I'm extremely burnt now from walking around in the sun for so long).  

I found a summer job though, that's a good thing.  I start pretty much the day after I get back from holidays, which means I have to move as soon as I get back from holidays too.  That'll be fun 8(

Just a bit stressed right now with everything that has to be done in the next week.   Don't know how I'm going to get it all done.  

Still really wanting to cut as well, though I know it won't help me at all.  It'll just make me have one more thing to think about and hate myself over, but the urge is still so strong.  As of tomorrow it'll be 2 months since I last cut.  I want to keep that, but I'm scared that I'm going to end up cutting eventually anyways, and the longer I wait the worse it'll be when I do it again, and the worse I'll feel about it after, which will make me do even more.  Maybe it would have been better if I hadn't stopped at all.  Maybe it would have been better if I had ended my life.  

I don't know, just not having a very good night.  Especially with all this stress happening on top of everything else.  I just don't know what I'm going to do.  But I want to cut so bad . . . . . 



May 27
2008

I HATE LIFE!

Posted by AprilStar in whateverventstressrant offpersonal experiencespersonal experiencepersonal diarypeople helping peoplepanic attackspanichelping peoplehelp peoplefrustrationfrustratedfreedomfatigueenergydisrespectdisappointmentdepressionanxiety attacksanxietyanger

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I HATE LIFE!!!  I hate it all!  I'm sick of it and just want it all to end.  Don't want to be here anymore.  Tired of it all.  Just want it all to go away.  

Stressed about school, frustrated with my stupid ex, really just not liking life.  

I'm so exhausted I don't even know how to fight it anymore.  Don't want to fight it anymore.  Just want it to be over. 

 I HATE IT!!!

May 26
2008

. . .

Posted by AprilStar in whateverventsupport groupsstresssickof being sickrecoveryrant offpersonal experiencespersonal experiencepersonal diaryMy mood todaymedicationhelping peoplehelp peoplefrustrationfrustratedfreedomenergydisappointmentdepressionanxiety

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So, still in a lot of pain.  And these stupid stitches are driving me crazy.  I hate my teeth, and they're not even there.  I'm so bored out of mind my having to sit at homeall day.  I'd do stuff if it didn't hurt so much, but all I have to do is watch movies, and these stupid painkillers make me so tired.  

Ex hasn't been bothering me too much today, mainly because he had to go to school, but that's a good thing.   

 Well, other than that, I'm pretty much hating life.  I've been really having a bad time these past 2 weeks, and not being able to talk to my counselor hasn't helped at all.  Going to see her on Wednesday again, but that's a long time away.  Why is it so hard for me to deal with my life on my own?  Why do I want to cut so badly?  Why can't I just get better?  I hate all these questions, and I just don't know what to do.   Was hoping writing here and trying to get some of the thoughts out would help, but I just don't know what to say, and it really doesn't seem to be helping me yet.  If only I could turn my brain off when I didn't want to think anymore . . . it'd be so much easier, but it doesn't work that way, which means I'm still thinking.  I hate life,  hate these thoughts, hate myself for not being able to get out of it, I just hate it all.  I want this to end so badly, but don't know how.  I just want it all to go away . . . .

May 25
2008

AHHH!!!

Posted by AprilStar in whateverventstressrant offpersonal experiencespersonal experiencepeople helping peoplehelping peoplehelp peopleheartbrokenfrustrationfrustrateddisrespectdisappointmentdepressioncanceranxietyanger

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I am NOT in a good mood today. I'm in so much pain from these stupid teeth and so sick and tired of lying around in my house with nothing to do. It's just not making me in a ; very good mood to begin with.

Then my ex-bf started texting me again. I asked him why he's blaming all this on me. He said he hasn't, but that's not what he said the other day. He said he's just under too much stress right now. WHATEVER! He keeps saying things like he never wanted to hurt and and what not, well then he should never have said anything in the first place. So I asked him what's been so stressful in his life. He said it's because of all the pain he's in and all the tests (apparently he might have cancer). Yes, I know that can been stressful, I know from experience what it's like to have to go through all those tests and not know what's wrong with you, but then he dared to say that I wouldn't understand and that I have no idea what he's going through. How does he know what I've been through? How does he dare say something like that? AHG! I'm just so angry at him right now . . .



May 23
2008

TRIGGER!

Posted by AprilStar in whateverventstressrant offpersonal experiencespersonal experiencepeople helping peoplepaniconline support groupslovehelping peoplehelp peopleheartbrokenfrustrationfrustratedexplaindisrespectdisappointmentdepressionanxietyanger

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So, my day was ok today I guess.  Went on a school trip.  Got back and I was so exhausted (which means it's harder for me to fight the thoughts I'm having).  Then I got a text frommy ex-bf telling me how he's been cutting (which I had no idea he was doing) because he misses me so much.  And he basically said he got the idea to cut from me too.  Well, that makes me feel just wonderful about myself.  And now those thoughts of cutting are even stronger in my head, and I want to cut even more now.  I just don't know what to do.  I'm so confused.   I just don't know what to feel anymore, but I know what I want to do . . . 
May 17
2008

the first night back

Posted by fairhopegal in recoveryrebuildingpersonal experiencesHusbandbi polar 2

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Yesterday I picked my husband up from a 2 month stay at the hospital.  It began ok.  He seemed less than happy about coming home even thoug I know that's what he wanted.  After a longawait sit down bath and greeting the children and getting dinner, which he didn't eat, he went to look at his stuff.  I had moved most of the valuables out of the house and to his place of business.  This upset him greatly.  There was no clear communication when he was manic between me or his business partner and him.  So, last night he got only 3 1/2 hours of sleep despite very sedating meds and I had to deal with him being awake and waking me up.  My hope is its just because he's readjusting to life at home.....
May 14
2008

Late at Sharing My News! May 12 Fibromylagia Awareness Day

Posted by Enya4me in personal experiencesHOPEfrustratedfibromyaligiafibromyalgiaFibrofatiguedoctor problemsdisabilitydepressionCOPEchronic pain

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 On Fibromylagia Awareness Day I wanted to do something special at the college I attended, but I didn't have the energy. This quarter I have 2 online classes, I don't think the extra energy to attend the classroom is in me right now.

I called the local newspaper on Friday May 9th, The Post Bulletin, and asked if they were publishing anything for Fibromylagia AwarenessDay and the Gentlemen that answered said "yes he thought Jeff from the health dept was running something." I said thank you and hung up. I thought about this a bit more and decided it was a bit more personable to me and I wanted to say more.

I called back to the editorial dept. and started rambling on (like I have been known to do to who ever answer the phone-like they know who I am-), and this new gentlemen expalined to me he wasn't the first person.I felt so silly like always.

This second person ended up being Jeff from the health dept. There was going to be a small add in the paper on Fibromylagia and there was going to be speakers up at the Capital. However, he was going to interview a family that he was going to run an article on at a later date and asked me if I wanted to be interviewed as well, I accepted. Well we ended up talking the phone for over an hour.

Jeff asked some basic questions such as when you say you hurt all over, what do you mean? or Do you think some doctors don't believe that fibro even exist ?  I spoke of the emotional part of fibro with him, feeling alone and isolated most of the time. I declined the family photo unlike the other "family" he will be interviewing. I am alone in my struggle with no support and this is why I declined the family photo. My son reminded me not to long ago that it has been quite a few years now that I haven't felt good. He didn't remember when I last felt good. I about started to cry because he was half saying it as a smartass and half as concern so both ways I wanted to cry.

I got into more depth with this reporter and explained to him how chronic fatigue and fibro were connected to each other and he had to refrase me. "So you think Chrinic Fatigue and Fibromylagia are related", I said "very much so if not one in the same". I got into detail about how the medical community needs to recognize CFS just as much as fibro and if you go to the Center for Disease Control they actually launched a national campaign in 2006 for doctors to start recognizeing CFS and on their web site doctors can continue their education and receive college credits 

http://www.cdc.gov/cfs/

another site that is a basic site to explain your immune system is

http://encarta.msn.com/encyclopedia_761575681/Immune_System.html

I think if my immune system would have been better perpared and not so run down, I wouldn't be in the shape that I am in right now. I do want to thank God for the opportunity to try and understand my situation and ask him for his guidence because I use to, and still do, want the answers yesterday to what am I suspose to do. One day at a time is hard.

 Anyways I did my share of awareness and I have a feeling it isn't going to stop here for this town that I live in, at least not for me. Maybe it won't be an everyday thing, but before Jeff at the Post Bulletin, I was creating waves around this town with this clinic that so many look up to, and we should for many things. My mother had a massive stroke with her whole left side down. Now less than 1 year later she is back at home and is driving-how awsome is that! However, research money is not being spent in all the right directions.

I fly to Seattle to the www.fibroandfatigue.com  now with great hopes. My primary care is aware of this and is ok with this as well. The problem is I need to get organized as a person to get my supplements and other things together. Right now I can hardly organize myself with daily living let alone anything else. I just cannot understand what happened to me almost overnight....I was slipping for quite a while though but almost overnight I became so inmobile and out of sorts.

May 08
2008

The Beginning

Posted by shellymania in personal experiencespersonal experiencepersonal diarymy progressintroductionIntrodepressionbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionbi polar 2anxiety

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I have been keeping my moods (and tears) to myself since I was 11 and first started to show symptoms. Funny..having just been diagnosed as BP 1 at the age of 31, I think that some people in my family don't realise it's such a big deal, or don't really believe it, because I have spent do much energy over the last 20 years keeping all the agony and ups and downs well hidden. My facade was build stronger than the Berlin wall but even that monsterous construction built to divide had to come down eventually.

I don't do drugs or drink; have been married for 11 years, am still working but it is just so hard. I feel like I can't keep up the effort trying to keep it together anymore. I guess if I had to sum up my life in one word to date it would be "suffering". Don't get me wrong...I am quite happy some of the time. I am lucky to be married to a great guy who has been with me all the way. I have at times achieved greatness academically, in my career and in my creative pursuits. But sustaining anything has always alluded me. Nothing lasts because I cannot go the distance. things start to slip and spirial out of control. I start to worry about what I am doing, the self doubts creep in and take over, soon I am not answering the phone, then not leaving the hours, or the bed or sofa. I am worthless. I am nothing. I am pain absolute. I feel no pain just numbness that goes on forever.

 One day suddenly the sun will shine again, the birds will chirp and I will begin to see them again.  

Something awakens in me. I feel alive. I feel free. I feel happy. I feel such joy in life that my heart could burst with the enormity of it all. I push myself to make the most of every experience. I achieve again. I am great. I take on more and more and more because it is my destiny. I hear music and laugh at the strangest things. I cannot stop. I cannot sleep. It coarse through my veins like poison. Every muscle is tense and ready for action. My mind is a wide screen tv constantly playing and replaying the interactions of yesterday, today, and tommorrow. I talk too fast that no one can understand. I spend too much money. I spend out of control and love the power it gives me. I write elbourate business plans guaranteed to make my fortune. I stay up all night. I organise the house til 2am that has fallen into disorder during depressions past. Life is grand for me but no so grand for those around me. I start to stumble and fall. I cannot keep up with what I have started. Nothing gets finished. Projects and inspirations lie abandoned. I am confused. I am exhausted. I cannot get up. I crash again and wait for the day the sun started shining again.

I am just about to start medication for the first time so am not looking forward to the process of that. I am looking forward to hopefully the point in the future whether I have found something that works for me and doesn't take to much of me away with the rollarcoaster ride. Not that I really know who I am anymore. What is me? What is my illness? What is balance and what is normal? Too much time has been lost and can never be claimed back again. Time to start again. Time for a new beginning.

Apr 30
2008

Trying to Generate Some Buzz!!

Posted by LifeWithShaky in personal experiencespeople helping peopleparkinsons diseaseeducateblogsawarenessadvocate

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I really need to get some hits on my blog - Life With Shaky.  (I really hope this isn't considered spam!!)  I try to advocate and educate for those with Parkinson's Disease, and thisblog is just one of many ways I am doing that.  Some if you have Parkinson's Disease or you know someone who does, please see          www.lifewithshaky.blogspot.com

 

Apr 06
2008

Another New Med To Try

Posted by DaisyGirl1 in personal experiencesmedicationfrustrationfibromyalgiachronic pain

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This last week was one of the worst for me. My pain was so intense, I told  my fiance that I just wanted to go "home" to God.  Between this pain and the depression thatset in, I didn't want to be in this ravaged body any longer. Thank God this man that I love with my heart and soul is so very loving and caring. He always gets me through these bad times. He's so patient and trys to help me with so many things.

I went to the doctor on Friday. My doctor is very supportive with all of my ailments and put me on a different fibro pain med. I just got off the Lyrica after trying it out for  the past two weeks. This is probably a good med, but just not for me. I had such bad migraines from it, that I just had to stop taking it. We'll see if the new one works better! 

Feb 28
2008

Treatments: What Works & What Doesn't

Posted by Lorelei_M in personal experiencesmuscle spasmschronic painchronic nerve painBROWN SEQUARD SYNDROMEbr

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What Works & What Doesn't

Chronic Pain
What Works?
A Glass of Wine
Pros:
This strongly depends if you are taking any other medication. It may sound over simplifiedbut if you are not on any medications try a glass of wine. I have found it particularly useful. It works and has the least side effects of everything I've tried. In 5 years of chronic nerve pain I have been on everything. It takes usually 75% of my nerve pain away with no side effects or long term health problems.

Cons:
You cannot drink alcohol while on most meds. Consumption of excessive alcohol while taking pain relievers can be dangerous to your health. Also, it is not suited for those who have substance abuse problems for obvious reasons. The pain relief is temporary and inconsistent. Not for those under 21. (1) According to the Surgeon general, women should not drink alcoholic beverages during pregnancy because of the risk of birth defects. (2) Consumption of alcoholic beverages impairs your ability to drive a car or operate machinery, and may cause health problems.

Cymbalta
Pros:
Within two days of taking Cymbalta my nerve pain was 100 % gone. For the first time in 5 years! I could wear my clothes and get hugs without cringing and writhing in pain. Also Cymbalta is an anti-depressant so I was happy! Really happy! If you are an insomnia take this at night. It can cause drowsiness. People of most ages can take it!

Cons:
All miracle drugs have a catch. You have to have a prescription and be well monitored on Cymbalta. It can cause drastic behavior changes. Also, I personally when on this drug was sick for the first two weeks. It caused nausea and constipation and I was extremely tired. I stayed on Cymbalta for 6 months. Eventually, after the first two week period the side effects went away. Cymbalta for me was best taken at night. The drowsiness never went away. But I would wake up refreshed if I took it at night. Cymbalta has lots of other side effects which I will not comment on here. Also you CANNOT have alcohol on this med.

2.    Muscle Spasms
What Works?
A Glass of Wine
Pros:
Ok. I know you may think that I am an alcoholic, but here me out on this one. Wine and Alcohol have been used throughout the centuries as an awesome pain reliever and muscle relaxants. It is through the abuses of alcohol that is gets its bad name. Wine naturally relaxes the muscles and your "attitude" I have found that spasms increase 10 fold with stress and pain for those with Brown Séquard Syndrome. A simple glass or two depending on your body weight relieves the "trigger" for spasms.

Cons:
You cannot drink alcohol while on most meds. Consumption of excessive alcohol while taking pain relievers can be dangerous to your health. Also, it is not suited for those who have substance abuse problems for obvious reasons. Not for those under 21. (1) According to the Surgeon general, women should not drink alcoholic beverages during pregnancy because of the risk of birth defects. (2) Consumption of alcoholic beverages impairs your ability to drive a car or operate machinery, and may cause health problems.


Baclofen / Lioresal
Pros:
Baclofen is a muscle relaxer and an antispastic agent. It is used to treat muscle symptoms caused by multiple sclerosis, including spasm, pain, and stiffness. I have used Baclofen. It got me through some pretty rough times.

Cons:
Baclofen can cause side effects that may impair your thinking or reactions. Be careful if you drive or do anything that requires you to be awake and alert. Avoid drinking alcohol. It can increase some of the side effects of Baclofen. Do not use Baclofen at a time when muscle tone is needed to assure safe balance and movement for certain activities. In some situations, it may endanger your physical safety to be in a state of reduced muscle tone. Taken in high doses it can also cause you to loose massive amounts of hair. You may have withdrawal symptoms such as seizures or hallucinations, when you stop using Baclofen after using it over a long period of time. Do not stop using this medication suddenly without first talking to your doctor. You may need to use less and less before you stop the medication completely.

More Helpful Hints
Beyond a healthy glass of wine, no matter where you stand on that issue, there are other natural safe things you can do. Here are some great ways to stay healthy.

Stay on a Diet. Forever.
Don't starve yourself. Don't overeat. Maintain a healthy weight. If you are too heavy, it puts extra strains on your muscles causing more pain. Being over weight causes an abundance of problems. You already have Brown Séquard Syndrome. You don't need more problems.

Also Being underweight is a huge health hazards. BBS'ers fall a lot. If you are just skin and bones. You are going to have lots of broken bones!

2.    Exercise or Exorcise.
Your choice. Keeping up with your physical therapy is the best thing you can ever do. You need to keep active. Even If you never go back to therapy do it at home. If you don't use what you have, your muscles will atrophy causing great depression and pain.

Extraordinary pain! If you don't Exercise, your family and nurses may want to Exorcise you!

3.    Talk
Communication is your best friend. Talk to everyone. Talk to your nurses, doctors, cleaning staff, pastor, boss, co-workers, friends, family, dog, cat, fish, the lady carrying your groceries, the priest, the gas station tenant, your phone operator, teachers, anyone. Say what's on your mind. Share your needs. No one can read your mind. No one can see your heart pain. No one can possibly feel your nerve pain. Share your feelings, thoughts, ideas, concerns, thank you's and wish lists.

4.     Enjoy where you are.
Are you working? Enjoy the paycheck and comradery of those you work with. Are you in the hospital? Enjoy the prepared meals, cable tv, and sponge baths. Are you at home? Well, There's no place like home. Are you walking? Good for you. Are you in a wheelchair? Accidentally run over someone's toes. Be grateful.  It helps others help you.  

I am not a doctor. This is purely written from my life's experiences. Before changing anything you do talk to your doctor!

Feb 23
2008

How Do You Help Those With Depression?

Posted by uswalker in plastic surgerypersonal experiencespersonal experiencepeople helping peopleonline support groupsmy progressMy mood todaymy daily moodmood swingsmedicationlouie rochon bloglouie rochonhelp peoplefrustrationexplaindisrespectdepressionbipolar disorderbipolar 2bipolarbi polar 2 depressionawarenessanxiety attacksanxiety

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Recently I got an email from a woman in Germany, desperately seeking advice on how to communicate with her BiPolar friend who is acting 'strange' (Imagine That!).  I get at leasta dozen of these type of emaials a day from my art web site (The Bio section, where I candidly talk about my depression). 

Anyway, I responded to her in my blog.  Check it out if you arre interested.

 http://www.uswalker3.blogspot.com

 

Feb 18
2008

Bi-Polar, the Sculpture

Posted by uswalker in perswonal diarypersonal experiencespersonal experiencepersonal diarypeople helping peoplepanic disorderpanic attacksonline support groupsmy progressMy mood todaymy diarymy daily moodmood swingsmedicationlouie rochon bloglouie rochoninvisable diseaseshelp peopledepressionbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionawarenessanxiety attacksanxietyanorexic

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I never did share my art with my new friends ... think you might like the piece entitled "Bi-Polar."  You may see a lot of my personality in my work as well as my disease.  Enjoy. 

Louie  http://rochonsculpture.artspan.com/

Feb 16
2008

The Miracle of the Good Dog.

Posted by uswalker in personal experiencespersonal diarypeople helping peoplepanic attacksonline support groupsmy progressMy mood todaymy diarymy daily moodmood swingsmedicationlouie rochon bloglouie rochonhelp peoplefrustrationCrohns Diseasechronic painbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionawarenessanxiety attacksanxiety

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The Story of how 'Daily Good Dog Feedings' Started.

It is one of those stories that can change your life, forever, ignitinga spark of hope and offering up a powerfully effective yet simple technique. The story of the Good Dog has changed my life forever and as you will see, the lives of many others around the world.

Often, when I'm suffering from my mental illness, (Bi-Polar II), mania and depression as well as severe ADHD, when hope fades into desperation, I pray, No, I plead with God to listen to me, to help relieve of my suffering ... yet, I hear nothing but that maddeing silence.

This story is about how God answered my pleading prayer, not only giving me hope and strength but also giving me the idea of lighting a single candle that has already lit thousands of other's candles all over this planet, providing a little daily flicker of hope that others can light their own candles and find their way out of the dark.

Oh, back to the story ... sorry, I do get a bit manic when I write ...

About a year ago, I was undergoing a particularly bad bout of debilitating depression, hiding it from those around me, as usual, while dying inside. I was at an alcohol support meeting when someone shared a simple story.  My life has never been the same since then.

Funny how sometimes somebody says something that sticks, that becomes a permanent fouundation on which you can rebuild your entire life.  Perhaps I was at a place in my life that I was worn out and ready to listen. That day, God answered my pleading prayer, through one guy, that I had not seen before or since that meeting, one of my angels - there have been, many!

Finally ... The Story that Changed My Life, Forever ...

ABOUT 'Daily Good Dog Feedings'

A Native American Elder told a story about his people believe that we all have, within us, a 'Good Dog' and a 'Bad Dog,' that are always fighting to be in control.

My friend asked him, "Which One Wins?"

The elder simply replied, "The One That You Feed."

That anonymous angel shared that story with me in January of 2007.  At the time of hearing it, I thought, "Cool story, after 20 years around this place, it's amazing to hear something I've never heard before."  That was it, just a simple story that I thought was pretty cool.  I filed it into my brain with all the other clutter accumulated from 54 years of mostly useless thinking and went about trying to survive another day of my life.

That very next morning (mornings are the hardest time for my depression) I seemed to be especially aware of my thoughts. I watched as my mind instantly went towards fear, dread and self hate; it's as if I was watching myself watching myself and condemning myself.

My depression, especially when mixed with extreme mania at the same time, can cause me to feel disconnected, totally fragmented from my-self (whatever self is) and the rest of the world.  That morning was especially harsh, feeling as I was hovering over myself, watching this pathetic human parasite in that dirty bathrobe smoking a cigarette and filled with hate and disgust and anguish of feeling so alone and anger at God for feeling like such a victim for having to endure this kind of pain.  You get the picture ... it was a pretty atypical morning for me. 

Normally, it would take a full pot of coffee and a 1/2 pack of smokes before I could start making a meager plan for coping through the day.  This was my life, trying to figure out how I could hide from everyone around me, for an entire day, pretending like I was normal, until I could close the door to my room, alone, put on my dirty bathrobe and finally, feel a sense of relief in closing off the world, until morning.  And it would start over again.  Every single morning, day after painful day, it would start  over again like a perverted mnetally ill version of 'Groundhogs Day.'  This was, my life.  But this morning, looking back, was a morning unlike any other morning I had ever experienced.  This morning something would change my life forever ... back to the story ...

That January morning, slumped in a chair, sucking coffee and cigs in my dirty bathrobe, suddenly a thought, a clear thought (that's a novelty in and of itelf) came to mind.  The story of the Good Dog vs. Bad Dog popped into my foggy little mind as well as the words of Eckhart Tolle. 

Eckhart Tolle's The Power of Now, which I had studied for years trying desperately to find relief, asserts that ...  Emotions are Caused by Our Thoughts and Our Thoughts come from What We Think and What We Think is Determined by What We CHOOSE to Think!

That's what God was telling me through my angel and his story of the Dog, and through my memories of the words of Tolle ... that I have the power of choice of how I feel.  "Oh Sure I do," I thought, "Right!."

"OK," I thought, "I'll give this a try. Like what do I have to lose?"  At first, trying to think of something positive when I had grown morbidly accustomed to the gloom and doom of endless years of depression, seemed impossible.  Yet the concept of the Dog made so much sense to me.  I had to reach for some hope.  I was watching myself die.

I forced myself to make a mental 'Gratitude List,' something I had done over the years with success, when I remembered to do it.  It was like trying to turn around the Titanic, after it had sunk, but I tried, God I tried to think of things that I was grateful for, yet I was filled with such self hate, fear, rage, and fragmented thinking.   I did manage to scribble a few mental gratitudes.  Within minutes, I noticed that my depression was 'different' ... not as overwhelming, still there and very powerful, but not taking me over completely. 

As the weeks went on, forcing myself to listen to the Good Dog and forcing myself to stay firmly planted in the present moment (as best I could), I was noticing a change, a BIG CHANGE in depression, on a more permanent basis.  I was getting help, medically, but I believe that this mental trick, this forcing my head to focus on something positive, worked and worked better and better each day.

Running out of positive thoughts and things to be grateful for, I started reading and researching to find life affirming quotes, poems and short stories.  I started writing them down as I searched for positive 'Good Dog' reinforcement.  Then I started emailing them to my son, who said he was having some depression.  I would research and put together a daily email with a combination of quotes, short stories or poems and send them out with the title ... 'Daily Good Dog Feedings.'

Before long, word spread like wildfires, as people forwarded these 'Daily Good Dog Feedings' to their friends and family.  As I am writing this to you today, there are thousands of people from all over the world that are receiving the Dog, which I affectionately call it today.  I am in contact with dozens of people every day.  I am making friends with people I have never met, yet feel a bond as strong as those of close friends, why ... because we understand each other.  We are survivors and we are all in the same lifeboat together.  We need to help each other, not to die, but to get stronger and live, to recover from a disease that can be managed, if we choose to recover.

Anyway, I'm rambling cause I'm pretty manic today but hey, rather ramble on about something positive than hide in bed, beating myself up.

I have spent my entire life in this painfully lonely and dark place; the insanity of mental illness. I'm done suffering!  If I suffer now, it's my choice because today I have tools and I use them.  I have my Good Dog choice, my doctor and medications as well as many other tools I can use if I CHOOSE to heal. 

Today I choose life and today life is sweet, even though there are painful episodes from time to time.  Today, even the pain feels good as it reminds me that I'm alive.   I'm not going back into hell.  I've been there and it's not all that it's cracked up to be.

Hope you decide to have great weekend.

God Bless Us All, We Deserve It.

Louie (uswalker)  http://rochonsculpture.artspan.com/mbr_bio.php

NOTE:  I am happy to share the 'Daily Good Dog Feediing' with anyone that wants it ... just email me at uswalker3@hotmail.com  I am not doing this for two reasons, first because this daily practice keeps me alive and secondly, because it feels really great to be able to help others. 

 

Feb 16
2008

My Journey, Thus Far....

Posted by MotherofBoys in personal experiencespersonal experiencepersonal diarypeople helping peopleonline support groupsdepressionbipolarasd

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It is a relatively quiet Saturday (as quiet as it can be with three boys in the house) and I am in some sort of remaniscent mood.

Because of that, I thought I would write about my situation, the past 4-years.

 After years of trying to conceive, my husband and I finally received the great news....We were expecting!!!  As the first few weeks went on, however, I found it quite unusual that I already looked like I was at the end of my first trimester.

Finally, we reached the point (6-8 weeks) where the Dr. said he would do an ultrasound and see what was going on.

He was a very nice Dr..  He explained everything that we were looking at, on the monitor.  All it looked like was a piece of rice in a ball of water, with a little blink here and there.  As we found out, that blink was the heart beating.

The Dr. made sure that we understood all that he had been explaining to us and after a very "pregnant" (not to be puny) pause, I eventually said "There are more aren't there?".  He looked at me and said yes.  he then moved around so we could see better.  My husband said "We are having Twins!".  I looked at him and said "No dear, we are having triplets.  These two are Identical twins and the other one (that the Dr. has shown first) is a singlet."

All the way home, I didn't know whether to cry or be happy.  We were definately going to have a family, and all with only one pregnancy!

As the weeks continued on, complications arrose and I was put on bedrest.  I was also referred to a High Risk Fetal Specialist.

I can't begin to tell you how many ultrasounds were done of the children.  I lost count somewhere along the line.

However, I remember at week 22, going to the Fetal Specialist and him going through the ultrasound telling us what he was looking at and how the children (which we already knew were going to be boys - all of them) were progressing......when he said "One of the Identical boys has passed away.".  We were devistated!  I made him show us how he knew for sure, and it was quite obvious.

Now, we were down to two.  Would they survive?  The remaining identical twin had a chance of passing away too, depending on how the placenta, he had shared, had developed.  Unfortunately, there was no way to find out except to just keep monitoring, hoping and praying that with each Dr. visit he would still be found alive.

The days were eternal.  I was home, alone all day long.  The only time I was allowed to get out of bed was to go to the restroom.  I was also allowed to leave the bed, walk down the hall and lay down on the sofa (I was so glad we have a single story home.  I was also glad that we have a bathroom at each end of the house too.)

At week 24 I went into pre-term labor.  At the hospital, they attempted to put me on a medication that would have allowed me to go home, but I could hardly breath after the medication was given (a side affect).  So I had to stay in the hospital, on a Magnesium drip.

At week 25, my labor again started.  For 6 hours they tried everything they could to stop it but to no avail.  I was transferred to the nearest hospital that had the highest rated NICU, in the area.

Once there, they were able to stop my labor and start me on steriods (to help mature the boy's lungs faster).

For the next 3 weeks, I was in the High Risk Maternity Ward.  Day in and day out I waisted away  the hours watching t.v. and sleeping.

Christmas Eve I had fallen asleep while watching a Christmas special.  I awoke when I neede to use the restroom and that is when everything started for myself, the High Risk Maternity Ward and Labor and Delivery.

This time, there was no stopping it.  The children were going to be born!

They were the first children, in that hospital, born on Christmas day .  Both weighed under 3 pounds. 

The twins would spend the next 2 months in the NICU and finally, come home around Valentine's day weighing over 5 pounds.

Unfortunately, for me, I had been transformed into "medical staff" and was not afforded the opportunity to be a mother.

I felt overwhelmed.  I was tired.  I was sad.  When the twins were asleep, all I could do was vegetate or cry.

My O.B. told me it was the baby blues.  I believed her because she was my doctor and I didn't know otherwise.

For months I went on like this.  I was getting worse as each day passed.  There was no way that I could return to work and the State Disability department was not convinced that I couldn't return to work.

The Disability department set up an appointment for me to go and see one of their Psychologists.

He was a terrible man!  He kept asking all kinds of questions that I couldn't answer.  He wanted me to tell him that I was depressed.  At that time, I didn't know that was what was going on with me so I told him "It's your job to diagnose me!"

Eventually, after an hour of "Police Interrigation" the appointment was over and I was allowed to leave.  I was in tears, big sobbing "buffalo" tears.  As I passed by him, on the way out of the room, he said "You had better get yourself some help before you find yourself on T.V. after having done something terrible to your children."

What a monster!

I had never thought of doing anything to my children and I had even told him that.  

I had never done anything to my children.

How could he be so cruel!

But, that cruelty sent me to a counselor who worked with me for months.

I had PPD and it has transformed into severe depression.

Would I ever see the light, at the end of the tunnel, again?

Eventually, through my counseling, I came to the point where I realized that I needed medication as well.  I started seeing a Psy.D. and have been on medication since.

After only a few months, I felt well enough to return to work and with my Dr. and counselor's approval, I sought out a new job.

Six months later, we were pregnant (not planned) again.  This pregnancy had its difficult moments too.  At week 9, halfway through a 2 week vacation and a few miles away from home (like over 2000), I had to go to the emergency room for severe abdominal pain.  We found out that I had an ectopic in addition to the child we knew I was carrying.

Needless to say, after giving birth, to our third child, at week 37, I went into PPD again.

This time, it wasn't nearly as bad.  This time I knew there was light, at the end of the tunnel.  This time I impatiently waited for the hormones to pass and the meds to take over again.

Unfortunately, I do not feel as well as I had when I returned to work, after the twins.  But there is a lot more on my plate right now:  the twins are developmentally delayed (because they were born at 29 weeks) and then have recently been found to be ASD (one is high functioning and the other is low end moderate functioning) and our little one is showing signs already.

Anyway, I did not put my story here to elicit sympathy, rather, I put it here in the hopes that it will bring some understanding to someone else, who might be suffering through any of the things I have gone or am going through.

I had nobody.  I want to be somebody for someone who has nobody.  That is why I share my story.

Feb 06
2008

Good Dog or Bad Dog?

Posted by uswalker in perswonal diarypersonal experiencespersonal experiencepersonal diarypeople helping peoplepanic disorderpanic attacksonline support groupsmy progressMy mood todaymy diarymy daily moodmood swingsmedicationlouie rochon bloglouie rochonfrustrationeating disorderdepressionchronic painbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionanxiety attacksanxiety

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This SharePost is a response letter to a friend from this forum as it represented where my head is at this am. 

Hope you don't mind, MC.

 

Dear MC,

 

Thanks for your comments. It's true that when I write, I challenge my intentions; it's almost like I have discussions with my 'self,' on paper. Hey, why not? We do it all the time in our heads. It's kind of fun when you write it down as you can actually see the demons working away at you, each trying to have their way with you. Kind of P_____sses them off when you see them, exposed.

 

I wrote a blog a month or so ago, in which I saw for myself, firsthand, this ongoing discussion - (fight for controlling interest of my head).  Check it out if you are interested ... http://www.uswalker3.blogspot.com/

 

I write a daily email inspiration (positive life affirming quotes, poems, parables, etc).  This daily mailing which has taken on a life of it's own over the past year, growing each day to include people from all parts of this planet, is called the 'Daily Good Dog Feeding.' 

 

Here is the story about how Good Dog was born.  I mention this because it reminds me of those two voices in my head ... as well as inviting you to receive it as my gift to you, if you'd like.

 

 

ABOUT 'Daily Good Dog Feedings' 

A friend shared a story with me about a meeting he once had with a Native American elder. This story had a great impact on me. The elder told my friend that his people believe that we all have, within us, a 'Good Dog' and a 'Bad Dog,' that are always fighting to be in control. My friend asked, "Which One Wins?" The elder simply replied, "The One That You Feed."

 

______ . ______

 

I started researching and sending out a daily inspirational message to my son as well as to reinforce the 'Good Dog' in me. Thinking my friends might find it of value, I added some people. Soon, it took on a life of it's own. This simple story, from my friend, has grown into something that has greatly improved the quality of my life and from what I hear, from people from all over the planet. What a blessing. Want to be added to the list? Email me ... uswalker3@hotmail.com

 

Big Smile

You or anyone else reading my rantings are welcome to receive Good Dog.  Just send me an email.  Cancel any time, if you don't like it and I will NEVER sell it out with Ads or use the names. Promise.

 

I really love to share this with people. It makes me feel great to do something that I know makes life a little better place for others.

Kind of selfish, but hey, I'm human.

 

 

You know, MC, this email column that I write every day is one of those 'God Shots,' a powerful tool that I use every morning, and have for over a year now.  I get so many positive responses from people, that I have come to look at it as a responsibility for me. 

 

Even when I am suffering from extreme depression, which is usually the first few hours of most days, this mandatory self-requirement forces me to turn my minds attention around towards a positive 'Good Dog.'

 

Without this tool, I'm afraid that I would spend many days hiding under the blankets, feeling sorry for myself and falling victim to my disease.  I am so done with that energy - having done that all my life and really don't have time for it these days! 

 

I have to admit, this may sound simple, (changing your mood by focusing on Good Dog) and it is simple ... but it is FAR FROM EASYBeating mental illness is not whimps!  Many days, it's like turning the Titanic around, but you know, I've found that I can always turn it around, with constant steady pressure.  Some days, it runs my ass over.  Oh well, 2 steps forward, 1 step back - Progress, Not Perfection is my goal these days.

 

Good Dog always helps turn around my attitude, inspite of my mind's intentions.  I have found that my attitude is a direct reflection of my emotions, and my emotions come from my thoughts and my thoughts come from whatever it is that I CHOOSE to focus on.  Seems to be totally backwards, putting the acrt before the horse, but it works, for me. 

 

I have found this to be a valuable tool for my emotional survival, something I need to work at, very hard, each and every day, hour by hour, minute by minute - sometimes.

 

In the Dog, I always use quotes, poems or parables that seem to address what issues I need to focus on. Funny how that works; it's almost as if I do my part and sit my ass down at my laptop ... then God takes over and writes what He wants. I am not claiming to have any inside connection with the Big Guy - it just seems that whenever I do my part, ideas pop into my head.  I just have to type. 

 

It's pretty much the same with my sculptures - I have to do my part and walk out into that cold studio when everything within me is screaming NO ... and usually, within a short time, ideas come to me and I start getting excited.  All I need to do is allow my body to move around and put stuff together and eventually, VOILA ... something is created that was just a pile of stuff.

 

One thing that I have found out for a fact ... I have never written one word or created one piece of art, from under my blankets. That is where my disease wants me to be - in bed, despising myself for my illness, trying with all it's might to convince me that I am a worth-less, use-less pathetic parasite carbon based life module.  I say F______ the disease ... I got stuff to do.  I have a life to live and even though it seems, some days, that I can literally feel it's cold breath on my neck as I am moving on, I AM moving on.  If I stop, then it catches up and takes me down.  Most days, I out run it.  Some days i don't.  That's' life.  Those days, I just stand there and hurt and that's OK. 

 

The real miracle for me these days, is that I don't feel desperate to run around trying to find something to put out the flames.  Being a Dual Diagnosis (recovering from BPII as well as an alcoholic) it is my nature to feel the need to not feel the pain, to obliterate my emotions when they hurt so bad.  In all actuality, I am addicted to damned near everything.  I am addicted to 'MORE,' more of anything has always been my answer to pain and suffering, which of course causes more pain and suffering.  You name it, food, alcohol, legal and illegal drugs, workaholism, relationships (or in my case - hostages), sex ... i mean, there is NO END to where my 'self' wants to hide.  I have spent my entire life is FEAR, which up until an accuarte diagnosis of BP and proper meds, FEAR stood for F--- everything and Run.  Today is stands for Face Everything and Recover.

 

OK, now I've noticed that my mania has kicked in as I'm rambling on and on.  Sorry mania, time to cool your jets for a while.  I'm in control these days.  Thanks for listening to my head.

 

 

God Bless Us All, We Deserve It.

 

Louie R (uswalker) http://rochonsculpture.artspan.com/mbr_bio.php

Feb 02
2008

Vaccine for Depresssion

Posted by uswalker in perswonal diarypersonal experiencespersonal experiencepersonal diarypeople helping peoplepanic disorderpanic attacksonline support groupsmy progressMy mood todaymy diarymy daily moodlouie rochon bloglouie rochondepressionbipolarbi-polarbi polar 2 depressionanxiety attacksanxiety

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About a year ago, I started writing a daily email inspirational to my son, entitled 'Daily Good Dog Feeding,' which I started to help myself first thing in the morningto point my head in the right direction.  It's helped me a lot.  Since then, it has taken on a life of it's own, spreading all over the planet.  Must be helping other people point their head in the right direction as well.

Anyway ...  have been struggling with BiPolar II depression all of my life and did not have a proper diagnosis until last year.  Finally, over the past 12 months, I have found great relief, actually finding balance, most days.  This is nothing short of a miracle, for me.  Every day, I use every tool in my bag of tricks to stay well.  I fight hard for daily sanity.  I'm sick and tired of letting the demons win over my mind.

There are days that aren't so fun, but on the whole, just having hope in my life again - is simply amazing and I couldn't be more grateful.  I am so happy that I didn't end my life as I never knew life could be this good.

I wanted to share one of the quotes from a recent 'Daily Good Dog Feeding' that I have on my wall.  I take my meds, religiously, every day.  I also read all my favorite positive quotes that I have collected from my daily email project.  This is one of them.  Hope it helps you as it has me ...

 

Vaccine for Depression

"... and therein lies the genius of my teacher, my mother's mother, who fulfilled herself completely by always forgetting herself in the joy of the welfare of all those around her. This is the only real cure for depression.

It is the prescription that would come from any authentic spiritual physician. If you dwell upon yourself and your own private satisfactions, the first disappointment will throw you into a depression.

If you can train to think more and more of the needs of all those around you, to work with people around you even if they are not always pleasant, you will be making yourself immune to depression, and you will be helping others to do the same."

From

THE PROPHET, Kahlil Gibran.

 

Louie R (uswalker) 

http://rochonsculpture.artspan.com/mbr_bio.php

Jan 30
2008

Getting Help ... A Doctor Story

Posted by uswalker in stressperswonal diarypersonal experiencespersonal experiencepersonal diarypeople helping peoplepanic attacksonline support groupsmy progressMy mood todaymy diarymy daily moodmood swingsmedicationlouie rochon bloglouie rochonfrustrationdisrespectdepressionbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionanxiety

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Looking back over what I have written, I apologize (no, I don't) for ranting a bit ... I am a bit, a BIT manic right now, and blurted out some memories.  It's helped me.  Here it goes ...

 

I have learned to be very careful with who I share my mental ilnness issues with, as I do with my alcoholism.  Unfortunately, there is still so much misunderstanding about depression, with 'normies' that experience situational depression from time to time.  They look at us with contempt, as weak because they had the strength to 'pick themselves up', 'think happy thoughts' or whatever form of self discipline they used that they judge us as lacking.

 

It really isn't their fault.  They simply don't understand.  I'm learning this even more, everyday, especially the last few days with all the comments I've gotten from 'normies' that have expressed that they have a different way of looking at those they love, struggling with mental illness.

 

The most maddening part of my journey, was the ignorance and misunderstanding of my illness and symptoms from the very people that I have always believed I could trust - the medical profession.

 

Sometimes it would take me a year of intense suffering before I was worn down enough to be able to crawl into my doc's office and lay out all my symptoms, only to be told "Sounds like you a have a bit of depression." 

 

"A BIT OF DEPRESSION, YOU .......... .........!" I think.  Then she gives me that nervous, almost scared little smurk of hers and shoves a piece of paper with 12 questions into my hand, leaves the room and asks me to evaluate my 'bit of depression.'   Hell, I can't evaluate up or down, black or white, reality from delusion ... I can barely hold the pen as I am shaking so bad from the inside out and she wants me to calmly assess MY condition?

 

Then, she comes back, glances at the paper, and says, "Yes, seems like you are pretty gloomy these days."  OK, that's about it!  This ...... is going to get a a good healthy dose of MY reality. 

 

"Hey doc, do you think it's normal to wake up in the morning and the first thought of the day, is that you want to be dead.  Do you think it's normal, that in order for me to even fall asleep at night, I create these elaborate fantasies of my own death, complete with my hands folded neatly across my chest, which fills me with a sick sort of peace, that lulls me into a fantasy that reassures me that the pain is over, that I have to fool myself into thinking I am dead, in order to function?"

 

"Well, does sound a bit serious."  She uses that word 'bit' just one more time, and I think she will get a first hand lesson and example of exactly what 'going mental' looks like, right here here in her little cubicle.  "OK, calm down wacko, let's try and get some help," I reassure myself.

 

"So, what do you think we ought to do?" she asks, ME!!!! 

 

THAT's IT ... I'm done acting sane.  I can no longer control it and start shaking and crying ... ****, I hate that.  A 54 year old man, that has always prided himself on being able to handle anything that life has to throw at me, has totally broken down in front of my incompetent medical expert. 

 

"What do I think we should do,"  I shout at her. 

 

"Do you have any idea what it took for me to walk in here today.  It took me 6 months of agony to even pick up that damned phone to make an appointment and now ... NOW, you ask ME, what I think?" 

 

"I CAN't Think anymore, that's why I am here.  I don't trust my thinking.  I'm scared.  I'm scared to death that I'm losing my mind.  Do you have any clue how terrifying that is, to believe that you are actually losing the ability to control yourself, to function or to even pretend to be OK?  Do you have any clue as to the fear I have of what it would be like to be locked away, forgotten and written off, lost forever in a coma of insanity?  I NEED YOU, to HELP ME!!!!  I don't know what to do.  For two years, I've been coming to see you, beating around the bush, always afraid that you are thinking in the back of your mind, "Oh here comes that hypocondriac ... wonder what new symptoms he has now.  My sick mind won't even allow me to look into the eys of your staff nurses imagining that they are all laughing at me as well, hell, they probabaly laugh about me at lunch.  This is the what my head thinks about ... Do YOU think normal people obsess over these kinds of things D O C T O R ?  I need help, please, help me."

 

I felt better.  Relieved.  Had a sense of hope that maybe she will finally understand the depth of my suffering, that I'm not making this stuff up, that I need help .... until ... once again, I see that scared, nervous look on her face as she attempts a smile and says, "Alrighty then, I think we should try an anti-depressant." 

 

"Oh GOD!  I have so been here before, for 15 years, I have so been here, and have tried every kind of anti-depressant known to medical science," I think to myself.  Maybe I should just walk into a mental hospital, lie down on the floor and let them whisk me away into Zoo-land ... I just don't care anymore."  This, was my experience with the medical community, for many years.

 

As I've written in my journals, it took many more years, before I happened upon the perfect storm, a set of circumstances that availed a new opportunity to get the proper care, medical professionals that understood what they were talking about.  Do I regret those years.  Not really.  Guess it took what it took to get here.  Do I wish I would have found the proper diagnosis earlier in life, saving so many years of pain and suffering.  Yes, of course, but that's just not the path I was supposed to walk.

 

Today, I will NEVER stop trying because I KNOW what it feels like to be alive and even though I may not be there, as I write, I've been shown the miracle of sanity.  It was possible once and it is possible again.  I will never give up on myself.  This disease is treatable.

 

For anyone out there that is suffering and has lost hope and feels embarrased and humiliated - I suggest that you GET MAD!  Do whatever you need to do to get listened to and don't be afraid to express your pain and ask for help.  My ego held me back, for so many years from uttering the three most powerful words I have ever verbalized, resulting in almost instantaneous results ... "I NEED HELP.  Please help me."

 

God Bless Us All.  We deserve it. 

Louie R. (Uswalker);

http://rochonsculpture.artspan.com/mbr_bio.php

Jan 28
2008

The Fork, a razors edge of insanity

Posted by uswalker in stresspersonal experiencespersonal experiencepersonal diarypeople helping peopleonline support groupsMy mood todaymy diarymy daily moodmood swingslouie rochon bloglouie rochondepressionbipolar disorderbipolar 2bipolarbi-polarbi polar 2 depressionanxiety

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The Fork, a razors edge of insanity.

Another long night.

Every now and then, conditions are just right, just enough pouring rain hitting the window with just the right rhythm at just the right hours; the quiet small hours when it all stops and it feels safe. Last night was one of those nights - dark, quiet, safe. Precious moments, really, when I savor each second and can breathe, again, finally, feeling safe.

I was reading, somewhere, that it is quite common when entering the envelope of spiritual enlightenment, for all hell to break loose. Why? Because as you experience the Truth, the other side, there is a heightened sensitivity to all thoughts, all emotions and that which used to serve as a calm protected harbor from the relentless storms of