My daughter has been ill with stomach problems for the last 5 yrs. Her first diagnosis was H-pylori. We went through the treatment for that and she just got worse and then she had her gallbladderremoved, and she did not get better so then she was told  she had gastritis but that did not fit so they finally diagnosed her with severe chronic constipation and sent her to a colon surgeon but she will not treat her because she has OCD issues that prevent her from taking the anal rectal physiology testing so now we are back to square one with no doctor to help her, if anyone out there knows of a doctor willing to help her without the ARP test please let me know. my e-mail is jackieburdette@gmail.com. The last time I took her to the doctor they said she probably had the adult version of hirschprungs disease because she has all the symptoms I think it is called intestinal neuronal dysplasia. The doctors say that the only way to treat is with surgery and if it is not treated her intestines could get so backed up that they could rupture and she could die but they also say they will not do anything without a definite diagnosis which they can get with a colonoscopy where they can do a biopsy to test for this disease but they also say that the most reccomended test is the anal rectal physiology test which they know she can't do and they are refusing to do anything because of this test instead of at least trying to use the colonoscopy to try to find the final diagnosis for her. I am almost at my wits end as to what to do or how to help her so I am reaching out for help, please if you know of any doctor willing to help her without insisting on the ARP testing please contact me.

 its about 12:30 and I am STILL in bed. Taking a shower just seems like  so much energy output.  I am just past halfway in doing my effudex treatments.  I have been having side effects, headaches, nausea and SEVERE fatigue, along with cramping, burning and a discharge. All the laying in bed from the fatigue is really doing a number on my back and neck. 

  I am so sick of being sick and sick of not being able to just wake up, like a normal person and just go do the things that need to be done.  I know its not this way every day and probably has a whole lot to do with the cancer and its treatment.

  I wish  I were more like those "warrior women" that go through cancer and even worse chemo/rads and still make it to the PTA meetings the gym and have dinner on the table in her perfectly clean house....grrr

  Ahh well, I suppose I should just quit bitching and be happy about what I do have.  Off to the shower