|May 30 2012|
I guess it's time for my traditional pre-IVIG status check.
Overall things are very good, comparatively. I can eat some but half of what I fixed for lunch is still on the platein the micro. I can speak some but I found myself straining to enunciate about a minute into a conversation and then I start to get nasal after a couple more minutes. I also am having some pain in my neck because of the weak muscles. Eyes are a bit droopy which leads to the classic head tilt and thus the more tired neck muscles. My other body strength remains good and breathing is good too.
So for the first time I feel like my infusion will be more about improving my quality of life than it will be about saving it. With that said I can't help but wonder if at some point we might find a status that allows me to return to work.
I should note that my wife has been sick with a cold for a few days and I started to feel some scratchy throat last night. I don't think this will interfere with the infusion tomorrow but I am starting to be concerned that at 5 in the afternoon I still haven't received my supplies.
April 28, 2012 - 1 Week post IVIG Status Check
April 24, 2012
April 21, 2012
April 17, 2012
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