Our initial diagoses... (32 wks pregnant & In England)

The doctors thought our baby was on the small side so i was sent for a growth scan. During this scan, the sonographertold me what she thought she saw and went and got another sonagrapher who confirmed her thoughts. She said your baby has CDH, its very, very serious and took me to another room where i had to wait for another doctor to come see me. This doctor couldnt answer any of my questions, said it should have been picked up at my 20 week scan, gave me a CDH leaflet told me it is very serious but go home and try not to worry (who wouldnt??) and to come back the next day to see a specialist.

The following day with the specialist..

 we researched as much as we could on the net so we went as prepared as we thought we could be. We had a scan basically just to confirm what we were told the previous day and booked in to see the professor of fetal medicine 2 days later.

 The Professor...

He did a detailed scan however as the baby at this point was 32 weeks, he couldnt get a clear enough view. Told us the babys stomach and bowel is in her chest, she's too small for her gestation so he's now concerned theres a possibility she may have down syndrome or chromosonal problem aswell.. not making our little 1's diagnoses any better!

It was at this point we decided to have our baby in Melbourne, Australia (34 wks pregant)

So far in Melbourne.. (its been a week and a 1/2)

They havent been able to tell us anymore at this point. I've had another detailed scan and because our babys still too small, i will be having them every week until she's delivered. I'm meeting with the surgeons who'll be performing her operation this Tuesday after my next scan. Hopefully they'll be able to tell us more of what to expect...