Diary Entries for Solupie

Doing ok!!

Solupie

It's nice to come here and write down my thoughts .. And it's even better that I can say its been a good week! I was seriously thinking that I still had the wrong diagnosis:( just seemedlike nothing was getting better, that none of the drugs were helping.... But I am so happy to say that things are looking up;) my pain level is at least down to a 4! I really didn't think this aqua therapy was gonna help, but WOW, was I wrong;) 2 weeks in and I can tell the difference,. My rh [...]

Scared:(((. Nervous and frustrated

Solupie

I hate the fact that I don't know everything I need to know about this disease called lupus :( I read books I ask ?s . But yet I feel so dumb, crazy,lost, frustrated....... The list goes on....whyam I having these crazy spells again?? ( dizziness, balance, eyes not being able to focus.) it's scares me so much that these are coming back:( the last time this started I went to neurologist who did MRI s, ct scans , test for seizures.. And came up with nothin... The spells got worse and [...]

Alone

Solupie

Where do I begin?? Feeling so lost and alone;( do my friends? Not care or not understand or are they just tired of hearing it ? I really try not to complain about things to them ... To anyonereally.... But maybe I do ? The past month or so has been pure hell on me;( in the past 9 days I have had 5 doctor app. Plus been for ct scans and transvaginal ultrasound? Just totally exhausted from all of it not to mention not being on my mtx for two weeks cause of antibiotics and infections? I ca [...]

Crazy Ride

Solupie

Ugh... These last couple weeks have been insane:( the bleeding the pain and now my blood sugar dropping all the time? So... Family dr has been blaming the mtx for the bleeding and sugar problems.. Rheumy says no way? This is crazy... So today I finally saw my Obgyn.. He agrees not from the mtx! But unfortunately he did find some other issues :( which we begin some not so nice test and biopsies :( he also agrees that the mtx wouldn't mess with my sugars... I've been going t [...]

Let's see what happens

Solupie

Well bleeding has stopped for a few days;) took my shot on Monday again and so far so good in that aspect;) headaches and feeling lethargic from the shot:( hormones seem to be settling down ... Go see my Obgyn on aug 1st hopefully he has some answers to this madness... Blood work was ok? My sed rate is elevated again ? But considering everything going on that's understandable... Also a little anemic which why wouldn't I be? But over all I'm doing better... S [...]

Questioning everything?

Solupie

So now what??? My hormones are running wild... Sitting and cryin why? Don't really know? Maybe I'm finally losing it? No shot this past week going to try again Monday? Bleeding has left up (finally) today spent sleeping trying to get rid of the headache ? Stressing over all this:(( tired of one set back after another... Anxiously awaiting my blood results... Monday can't come fast enough.... Is this menopause or the meds.. Or the lupus or just a combo of all? Crazy time im having... [...]

Not again

Solupie

I'm so frustrated :( I don't understand , here it is July 4 th only 2 days after my shot and I'm bleeding again? Just doesn't make since to me? There saying there is no connectionbetween the two? But really I started the shots July 11 th, july 14th I got my period, then again July 24 th and now again today ??? It's just been insane ? Guess I'm gonna have to call my gyno and get things checked out? Gee just what I need? More things to deal with ? Not AGAIN;(( [...]

Hoping for a better tomorrow !!!

Solupie

What a day???? Didn't have much pep?? Slept a lot, not sure what's happening? Life seems to be so hum drum.... Feel like I'm fighting a losing battle with everything and everyone? Just don't seem right ? I love everyone and have always taken care of my family my friends, he'll anyone who s needed me? Now well since I've been ill I feel like I've lost it all ? I guess I'm just not that fun loving gal anymore?? Today was shot day!!! Yippie!! Just took headache pills [...]

3rd shot....

Solupie

Of course another headache, pretty bad today ... Talked to dr Surapaneni about my period she wants me to see my gyno just to rule out any possible problems... She had great news about my sed rate and blood work results my sed rate is actually really dropping!!! So hopefully this keeps up and the treatment keeps working;)) she says we're definitely on the right track ;)) FINALLY!!!!!!

Second methotrexate shot

Solupie

Horrible headache today: just doesn't want to go away even after 2 headache pills? Stomach issues seem better than with the pills? Trying to stay positive in the fact we changed ... Guess we will see ? Guess I'm still in that denial stage? Questioning this whole diagnosis? Things seem better then boom im blah again ???