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jpcrps"When I found MD Junction, I was in the beginning stages of RSD/CRPS. I was scared, lacked knowledge about the condition, and felt very alone.

MD Junction changed all of that for me. I found friendship and terrific information from people who had first-hand knowledge of this syndrome. It was and still is a big part of my life.

MDJ was my first step on the journey of grief; from denial to acceptance. I am now inspired to help others by sharing this amazing site and sharing my own experiences. I am very impressed that one forum site can provide hope and inspiration to people suffering from so many different conditions. I am proud to be a part of this community.
~ Jenny
" (jpcrps)

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Zahc Once the title of a failed blog I attempted, which can still be found, I believe, somewhere lost in Google Land, which I may try to resurrect, it is now a collection of thoughts, ideas, and dreams, very much influenced by the Lupus/Fibro/Chronic Pain I have; this enterprize--too--may fail, and I very much crave your kind support, truthful comments, and encouragement as I try to find my way, and--in doing so-- hope to offer the same to all who suffer even as I do.
There can be no pretention; there will be no lies, nor deception. Or false hopes.
In search of honesty and awareness, I can only offer up my prayers, thoughts, aspirations.
The 'Postern Of Fate' is but a gate, beyond which lay the uncertainties of the real world; inside lies the refuge, the comfort, security and sanctuary that we make of our homes, to guard against the unknowable.
All I have to offer is my limited and personal insight. Though, I readily offer--too--a ready ear, and--I hope, an open heart.
And--as always--I wish all 'well days' and peaceful nights.
Love,
'Zahc'
...Read More


" The Irony Of Dreams, And The Disappointment "

Jul 08 2012


" The Irony Of Dreams, And The Disappointment "


( originally written, July 13, 2008 )


07/10/12


To my very dearest friends, and constant, loyal readers,

Prologue:


I frequently awake to mornings unremarkable in promise, or in gain, or of purpose, depending on the level of pain I almost always awake to; and thus based on those criteria, can chart the progress of my day that may range from hopeful to helpless.


But somehow, this morning seems different, if for no other reason than that it was to agony that dragged me-most unwilling-from the utter ‘unawareness' that sleep can sometimes confer, up to the ‘surface', and full-into the kind of pain that paralyzes the will, and almost all bodily movement; I hardly dare to move as this horrendous global pain would destroy all meaningful thought or volition.


Forgive me, dearest friends, for I fully know that you have mental, and/or physical illnesses whose by-product is but a dreary mind cloud, and pain to an extent that makes you cry, and rock in place, and take-really-anything you can to try to limit pain's onslaught and duration.


You reluctantly give up the bed and any sleep as a cause lost; again the pain has won a pyrrhic victory, for-by now-how little we have to fight with. You may be up so early, that everyone else in the house is still asleep; you are both reassured by their comfortable snores, yet...you resent that blissful state as unattainable.


You may sit somewhere so that the light will not disturb anyone, and, having taken all the medication you can ( and, sometimes a little more ), push the pets off the sofa so that you can hug a cushion, while rolling yourself into a little ball of purest agony, subconsciously seeking to take up as little space as you can.


And, slowly sip at a still-too-hot mug of coffee, and as the occasional tear runs down your face, you sigh, that kind of sigh that is a prayer, for you have gotten up too early, and, since this looks to be a ‘pain day', mentally rehearse your schedule, wishing you could just be left alone, instead.


So I will not violate your kind befriending of me by reciting a veritable ‘Chinese Restaurant's menu, with convenient numbers listing all my pain, distress, or despair; my MDJ Profile sums it up pretty well; the rest I leave to your imagination.


Even though I love my dear dog Daisy so very, very much...still...it took almost an hour, and several tries to just leave my kitchen chair to attend to her few, and little needs. I hate to-in effect-neglect her for even that time, as it was she who adopted us twelve years ago, and since, she has been my buddy and my pal.


While rummaging-through a cabinet, looking for a new, lined tablet to do some budgetary work on ( you too know the feeling, when so much of the month is still to come ), when I came across a little, stapled set of notes that I had written 07/13/08, and I was curious as to what compelled that entry, particularly as, four years ago, I had not as yet been diagnosed with Lupus, Fibromyalgia, R.A., and was, if memory serves, two months away from having to have my appendix removed, so, in that regard, I might have been in the pain associated with it. Oh, and I forgot pneumonia, too.


And so, my very dearest friends, while I stop to rest, recharge, regroup while still so very congested, with your most kind approval, I want to share those now, four year old thoughts with you, for-in matters of the heart-some things never change...do they?


" The Irony Of Dreams, And The Disappointment "


I just awoke from a long, and pleasant dream I knew to be false; yet I encouraged it to last as long as it could last until physical necessity forced me awake and fully conscious.

First, my mother and father were still alive, happy, and healthy in ways that had eliminated all chance of illness or despair.


That we were exceedingly well-off was apparent from the rugs, to the fine furnishings, to the art hanging in rows against the wall, which was a most pleasing blue.


My father had come down to my room to bring the mail, and a rare liqueur he wanted me to try; I found it to be in all ways most satisfying, as it surrounded me with a golden warmth, but without any of the base qualities that liqueur sometimes seems to have.


In the mail were packages of small, but exquisitely crafted cigarettes, and, upon my sampling them, found them to be satisfactory as well.


At the top of the walls was an etched and marked tray ceiling, from which depended in scalloped, arcing lines, hundreds, and hundreds of puppets, from ‘Pierrot', to ‘William Tell', from childish, bucolic efforts to those with more edge, to some as frightening as to have been the product of utter nightmare.

At the end of this enormous room-mounted on the wall-was at least an eight-foot wide, flat, television screen; this passingly displayed the news, but as the volume was off, it was ignored.


None of us had health problems, and I reveled in every second I spent with my mom and dad.


And, although it was a dream, on some abstract or visceral level, I knew that something was wrong. And that my mother and father were dead. Still, even with an uncertain anxiety, I chose the illusion, quite content to stay there.


But in time, everything must die; dreams must die by fading before an unwelcome reality. I did my best-I believe-to hold on to various elements as they faded away, slipping-through my mind's hands, each element becoming irretrievably lost.


I fought most hard about my father and mother, losing ground to their presence, then their awareness, then their shadows, until the echoes of even quantum particles were forcibly taken from me. I believed I would have gladly given my life at the time to remain there; to hear my parent's happy laughter, and their kind exchanges, to have them near me. Sometimes, it seems, the simulacrum of an object would-by taking the ascendant-become more ‘real' than the object itself.


Suddenly I was wide awake as the dirty tide of unwanted reality coursed over me. And, perhaps it was not strange that there was a deep regret that surpassed all other regrets.


What had waked me up to full awareness, was the very real need to get up to the bathroom. It then struck me with a kind of irony ( perhaps known only to adults ), that-quite against my will-I had been forced, cast out, from but an example of Eden, by nature of having a full bladder.


End

I thank you for your most kind, and understanding patience, and loyal readership, my dearest friends. Please always know that you ever occupy a large place within my heart.


‘Zahc'



Previous diary posts by Zahc:
Comments (2)Add Comment
written by jmick, July 09, 2012
That was a wonderfully beautiful reflection, and I have to say that your prologue -- while in essence describing the anguish many of us go through on the "bad days" -- made me realize that there is much to be appreciate on the "so-so" days. Sometimes, even when in pain, or anxiety, or frustration, we can look back on worse times and appreciate that things could very well be worse.
written by STRENUBA, July 10, 2012
Reminds me of Patton when he realized that all glory is fleeting. So is everything in our lives, whether it be love, hate, joy, pain.
The great equalizer assures us of this. Wonderful writing, as always my friend.
Bryan

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