MDJunction - People Helping People
 

Why wear a ribbon?

  "because I hate substance abuse, aids and heart disease" (scaredparent)

MDJunction to me

libit"I was alone and desperate with my disease when I found MDJunction. Finding so many great people that understood my illness and could relate the same feelings to me was a life saver. I now have many new friends here that help me out of my bad days and for that I am very THANKFUL!" (libit)

more testimonials
Zahc Once the title of a failed blog I attempted, which can still be found, I believe, somewhere lost in Google Land, which I may try to resurrect, it is now a collection of thoughts, ideas, and dreams, very much influenced by the Lupus/Fibro/Chronic Pain I have; this enterprize--too--may fail, and I very much crave your kind support, truthful comments, and encouragement as I try to find my way, and--in doing so-- hope to offer the same to all who suffer even as I do.
There can be no pretention; there will be no lies, nor deception. Or false hopes.
In search of honesty and awareness, I can only offer up my prayers, thoughts, aspirations.
The 'Postern Of Fate' is but a gate, beyond which lay the uncertainties of the real world; inside lies the refuge, the comfort, security and sanctuary that we make of our homes, to guard against the unknowable.
All I have to offer is my limited and personal insight. Though, I readily offer--too--a ready ear, and--I hope, an open heart.
And--as always--I wish all 'well days' and peaceful nights.
Love,
'Zahc'
...Read More


" It's Two: three-four a.m., And I Could Use..."

Jul 06 2012


" It's Two: three-four a.m., And I Could Use..."


( based upon too-many a true story )


As always, to my most wonderfully kind, enduring friends, and so important, ever loyal readers,


Prologue


How many times have you been prescribed a medication, only to find it has some terrible, disrupting side-effect, that-subsequently requires the ordering of a different medication, which also may evidence untoward side-effects as well; and so, thus begins the ever-increasing spiral of medications to help medications, to help medications?


And, before long, that single, original prescription blossoms into a home-accumulated micro-pharmacy based one just one medication Too soon, all of them are needed in the prevention, stabilization, and amelioration of a physical complaint that-while valid ( I will not argue efficacy ), it would, nevertheless show how these ‘train car' prescriptions begin to affect each other, making some work too efficiently, and others, not nearly enough.


And, my dearest, one even casual look at my MDJ profile will show why I am on so many medications, any one of which might suddenly react abnormally; and with the slight assistance I receive for their increasing cost, sometimes with the help, of course of my Primary, or pharmacist, every so often, an overall review of all prescriptions must be made to see what I can safely do without.


Many of these former scripts have been dropped from my pharmacy plan, part D, wherein confusion is the watchword of the hour. Why, for example, Ambien 10 mgs, CR is no longer covered, but that Ambien 10 mgs tabs still are.


From time to time, other, considered ‘necessary' medications get dropped for no apparent reason. And to continue those, I now have to pay ‘full price', or pay the still exorbitant ‘discounted price.


Some time ago, when my Seroquel could only be had in ‘brand', it cost $870.00 a month! Although it has since become generic, I of course I now pay less, but the Klonopin still weighs-in at nearly $50.00 a month, and other medications are as nearly high.


Even with the needed reduction of required medications I must take, I would roughly estimate my current medication bill to exceed $1,900.00 a month. Who can afford that? And since these meds have multiple doses throughout the day, each considered of vital necessity, please tell me, dearest friends, where does the ‘winnowing' begin?


At one time, I was taking over twenty-six, different medications a day. With more to come. This could not be allowed to occur


Its funny, I suppose-when looking back---that that I cannot afford or take the medications specific to my illness: the Lyrica, for fibromyalgia caused a pronounced swelling in my legs, until I could barely walk; the Plaquinal, for R.A., lists potential blindness among its most dire side-effects.


And so, to many of my physical, or mental complaints must be treated ‘palliatively', instead of directly.


However, with the help of our Creator, and my Primary, I have been able to reduce that ‘merry-go-‘round' collection of bottles and bottles of pills and tablets, to-I hope-a more manageable amount, for, too many times, a huge, handful of pills consisted of my supper, as I had NO taste for food.


So I would urge you, dearest friends, to be diligent and cautious, but-when able-to decrease the amount of uncontrolled spiraling that seems, inevitably, to occur over time, and with the addition of treatment for ‘new' complaints.


I interrupt my planned topic to speak of this with you, for, as in my case, in trying to load my medications for the week, I would-invariably-make grave mistakes, by inadvertently doubling the doses, or, forgetting where in the line of medications that ranged before me like silent soldiers I happened to be.

My ‘hoped-for' goal, my ever dearest friends, is to help you with your medications...a most important adjunct in the process of your treatment and care.
For you know-I hope-by now-that your safety and health and wellbeing are ever my concern; and, as this weekend begins, I ever wish for you no pain, or distress, but-rather, full-surrounded by those ( myself included ! ) who love you dearly.
With any troubles you may have flown far away.
And always...watched over, kept safe, and happy by the constant ministering of purest angels.


I

" It's two: three-four a.m., and I could use a friend
to-perhaps-sit quiet with me here
until my shaking stops, and all my most recent nightmares end;
To pause, to wipe-away a tear.
Or, was it just a leg cramp and a migraine that drove me out of bed
to find my way out to my kitchen chair, instead?
For I could use a kind, devoted friend to help calm every fear
until, whatever bleak angels I could summon-up, attend.


II


It's two: five-six a.m., and I could use an arm
to hold me up when I cannot find my way;
one whose steady strength would keep me safe from harm ( or, to help me don my socks to keep me warm ! ).
As untold, ‘Fibro-flare's' unutterable agony blurs the sight, and makes all stationary objects sway.
To help me to the bathroom down the hall,
when a tired unsteadiness might make me fall.
That arm ( and hand ) so gently touch the crying pain away
that somehow reassures from all alarm.


III


It's four: one-eight a.m., and I could use a voice
that-patiently-would ever speak to me in quiet tones:
"Your illness never was your choice...
You've nothing to atone."
Although its very late, and, both of us still up,
please light my trembling cigarettes, and share my mug of coffee, heated up.
"Although you may feel so lonely, yet you have never been alone.
You didn't realize that others love you too? For that, alone, rejoice."


IV


It's five: two-six a.m., and I could use a prayer;
some whispered words of hope, from an ever-gentle heart,
to cause some lasting comfort to be visited there.
Oh, kind, enduring friend, please stay with me until the dawn...its greying light impart.
The medication-by itself-can never chase away all pain, all fear.
Instead...a grateful prayer, while said with growing sigh, is answered back, that God is always near,
and that-despite my often tortured, lonely pain-He will always keep us in his loving care.


V


It's eight: one-five, a.m., and I could use some sense of ease.
Oh, dearest friend, how can I near in full thank you for you keeping vigil with me, until the accumulated medications took effect?
For who else would-without question-ruin their day from lack of sleep, to tend to my desires?
For your unselfish kindness in my frequent hours of need, helped keep my monsters far away; I cannot help but offer you my love, and my respect.
The house and street-less quiet now-moves into another day, the twin to all the others.
While dear Daisy sleeps most fitfully on the rug, at fourteen, she-too-has pain, not unlike my own, which-unchecked-leeches life away, and smothers.
Remorse, regret, and sorrowed pain, will repeat an infinity of times I suspect,
but in your greater good, my caring friend, please know I wish you joy, true happiness...and peace.


End


And, please, please dear gentle friends, and ever, loyal readers that I love you dearly !

‘Zahc'



Previous diary posts by Zahc:
Comments (4)Add Comment
written by STRENUBA, July 06, 2012
"your illness was not your choice...You've nothing to atone". I do "rejoice" that I have found you my friend and your words. You have kept my demons away, at least, for a little while. Know that you are love here my friend. May peace be with you always,
Bryan
written by scorpioj, July 06, 2012
Your friends are here with you to help battle the demons as you help us to fight our own.We are grateful for your sharing of the gift of your words,for they are truly beautiful and poetic.I wish for you eased pain, restorative sleep, dreams of beauty and to wake with joy,
scorpioj
written by Tenar, July 07, 2012
"You've nothing to atone"--beautiful. Sending virtual hugs to you and dear Daisy.
written by mabri, July 08, 2012
Zahc,
I know how you feel, it is amazing how you have to take one med to cover up another, and yet another to cover up that one. I am always amazed at the lists of meds that one person takes in a day to keep whatever disease, syndrome, disorder or other under control.

I await the list that we previously spoke about to check into lower premiums or perhaps free meds that you are now having to pay for. Please let me know what they are, and I will gladly check on them for you. HUGS

Leave a comment
You must be logged in to leave a comment. Please register if you do not have an account yet.
busy


Members who read this post also read:

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved