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A community of patients, family members and friends dedicated to dealing with Dercum's Disease, together.
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Adiposis Dolorosa Community› Adiposis Dolorosa Diaries
Latest Dercum's Disease Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"Hello my friendsYou haven't heard from me for over a nearly a year, personal circumstances and this illness has completed collapsed my soul into at present a mess of emotions and the&nbs..." |
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"Well today I found out I have more health issues. On top of the Dercums Disease that I have an extremely rare condition called Chiari Maliformation. Its to much to type for me right now, so here is th..." |
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"STILL RAINING HERE IN NYC! I took care of my responsibilities. My step daughters have no concept of respect or understanding or care. They only think of themselves. They have to be the most selfish yo..." |
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"My body again is keeping me from doing what I need to do. I want to go to dad's funeral Friday in kansas but with this lung infection, very low heart rate due to these lumps pressing on my chest. ..." |
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"Well today I woke up and I am in so much pain today but I still have to get up at 6 am, get my wife out of bed, literally lift her up and place her in her scooter, dress her, give her her meds for the..." |
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"Well today was another day I made excuses not to travel from my home I live on Long Island, NY) to visit my parents( they live in Ozone Park Queens, NY one of the 5 Boroughs of New York City). For the..." |
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"My phone rang this evening with a number from Palm Springs, California...possibly a creditor??no...to my surprise it was a woman responding to my request to communicate verbally over the phone about" |
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"My doctor told me thanks to the articles I gave him, he has another patient that is showing symptoms of DD. Maybe as more doctors know of this disease we may get more interest in controlling its " |
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"I had Lipomas for over 20 years, then I got in an accident. I had so much pain I could not even pull my socks on at times. I was sent to multiple doctors and MRIs. I was told I had permanent nerve dam..." |
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" Today was a day of little sleep, and nerve pain. I got to bed about 6:40 AM, after working 12 hours. We got to deal with 2 suicidal people, 1 homicidal person, and a multitude" |
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" I got to thinking today. It is amazing how each of my lipomas seem to have their own personality. Some lipomas hurt upon waking, some hurt after eating, some after showering. Most all of them" |
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" I am trying to get prepared for my two doctors appointments on 8/1. I have written out all of my symptoms, how long I have been dealing with the issued, where all my lipomas are located, and " |
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" I had my father call me today, after I fought to get out of bed. I worked and worked to get my back muscles to do what I needed them to do, and finally was able to raise up out of bed. I shuffle..." |
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" Today was a good day....finally! I got to spend the whole day with my wife and my family at the lake, and we had a really good time. I got to laugh and cut up with my nephews and nieces. Was " |
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" I am a 38 year old male, and I try to remember my past. The normal things a child should remember about childhood. You know, that bike you had, the things you did with you parents...etc, etc." |
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" I often think about why I was born into this world? I have had SO much go wrong, from gout to this lovely (not) Dercums Disease, to other health problems. I told my mom and dad that I think " |
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" Once again I awake 3 1/2 hours after going to sleep. The horrible back and rib pain is my daily alarm clock. I have had lipomas for several years, just didn't realize I had Dercums. I hurt" |
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"I feel like I am such a freak among my friends and acquaintances. I feel I have to explain myself over and over about what is wrong w me. No one will ever understand the unique pain and suffering that" |
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"We are having a population explosion on the farm. We have new lambs (still) 4 goslings, 3 Chicks, and one duckling. We have picked up 6 Guinea fowl and 6 turkeys today. I" |
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"Went to PGH with to visit my husbands mom and I took my 68 year old mother along. We wanted to do so many things but I am so limited in walking. So we rented hoover round scooters and scooted all over" |
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"Still hanging in there with the rest of you. We are a strong bunch." |
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"Still hanging in there with the rest of you. We are a strong bunch." |
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"Today the surgeon from JH called to say nothing showed on the CT scan. I was not surprised at all. Actually it was her assistant that called and while she was polite and nice I seem to " |
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"Yesterday was the tenth anniversary of the day I met my husband. I spent most of the day crying because of the pain and frustration of selling like an invalid. I don't do much anymore. I feel so" |
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