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"I wear this ribbon for my daughter Elisabeth as she often struggles with epileps..." (elisabethfo1)
Arnold Chiari Malformation Support Group
A community of patients, family members and friends dedicated to dealing with Arnold Chiari Malformation, together.
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Latest Arnold Chiari Malformation Diaries
LITLEFAWN3
 
" Look over your shoulder, thats God following you. Look into the storm, thats Christ coming toward you...Max L"
LITLEFAWN3
 
"A true friend will listen to what no one elese will. All of you have helped me through this horrific pain of Trigeminal Neuralgia. It is so hard for even us the sufferer to express how this hurts phys..."
prism
 
"Lord, This  desolate, deserted place, dark and dank-Smelling of death-   Even the air grows thick-weighted by grief. Be"
EliMommy "Our first neurosurgeon appointment was on 12/17 and not sure if it was a good appointment or a bad one. We got in really good, not a long wait. Then here they come the team of medical students. In our"
Avasmommy
 
"Well Faith's ears we have put on hold, hoping that as she gets older that it will prevent her from having tubes placed.  The doctor said it would be ok to wait it out and see.  Since "
roy
 
"Hello MDJunction family!So many things I want to talk to you all about… ;-)I'll start with a BIG thank you to all our advocates"
EliMommy "Well...if you ask me Eli started having a problems from early on. He always would cry and nothing would help him. Daddy and I would exhaust ourselves with playing with toys, bathing, peek-a-boo, rocki..."
prism
 
"At the end of a 13 hour car ride, beginning at 2am. and 4/5 hours in ER again~ I just need to unload. How could it have happened, AGAIN? I have been sO careful. My seizures have"
roy
 
" Good day my friends ;-) Unbelievable! It’s mid November 2009. I just can’t believe it’s been almost 10 years since Y2K and believing"
Avasmommy
 
"Well Faith had a hearing screening in Preschool last week, to find that she failed two different ones.  So I took her to an ENT(ears nose and throat specialist).  Turns out she has some hear..."
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